Re: [TMIC] HELP WITH UNSUBSCRIBING..and WELCOME NEWBIES A QUESTION
Title: AOL Email Hi Lynn, my dear friend... When I first switched to Lyrica it took me about three times before I was able to make it through the whole regime of titering off of the Neurontin while getting onto the Lyrica. The pain was bad, real bad at times and all I could do was to take enough pain pills to knock myself out and slept for a week or so. Now, after almost a month, I am glad that I stuck with it because I feel ever so much better. Most of the banding sensation that caused the majority of my pain is gone, or so much more relaxed, that I barely notice it. The burning pain is gone unless I push myself during rehab. Then it comes back with a vengeance, but only for a minute or so. Now, I am happy to be on Lyrica and know that you will be too, if you can only find a way to get through the adjustment period of only a few days. (Although at the time, it feels like it is going to last forever!) Good Luck, keep on trying and know that I am with you in heart... Peace and Prayers, Jude
Re: [TMIC] HELP WITH UNSUBSCRIBING..and WELCOME NEWBIES A QUESTION
Mornin' Jude ~ Thank you honey for letting me know your experience with the Lyrica. I started keeping a file on Lyrica emails and they are running about 80% for and 20% against it.. I'm leaning toward trying it my banding has been so much worse lately. It used to just come and go for a day at a time.now when it hits it will last sometimes 3 or 4 days. My pet boa constrictor never used to squeeze me this hard...! I don't know why you're having trouble getting emails through to me. it's probably AOL again..! When they come back to you, just keepresending themthey should eventually get through to me. I wish I could get high speed internet access but it isn't available out here in the "boonies" of Reno beneath the mountains yet. Bill isn't ready to switch ISP's yetso, for now, I'm stuck with AOL dial-up. Yuck..! Love ya, Lynn
Re: [TMIC] HELP WITH UNSUBSCRIBING..and WELCOME NEWBIES A QUESTION
Hi Jude ~ Please don't feel badlyI think we all feel "twitchy" at times and sometimes wish we could take back something we said. I know I have...! We all just need to forgive each otherand ourselveson those days. I so hope things will improve for you Jude.. you are a good person and you don't deserve what you are going through right now. If you are new here..welcome to our family!! You have come to the right place. Ask anything you like.someone will be more than happy to answer any of your questions. As Bob Cook said, "Come on in...the water is fine." Bob, I loved your dinner table analogy...that was great! :-) Sometimes when I read your letters to the list I think you missed your calling.you should have been a writer. Some of your letters are amazing...! Sandy.I have a paraplegic friend that went through the shoulder surgery a while back and he is doing great. Once again he is able to wheel his wheelchair down his boat ramp and go fishing. Make sure Terry keeps his shoulder immobilized just like his doc says...that's the really important part. Bring warm clothes when you visit the Sierraswe have been getting snow on the mountain tops! I have a question about pain meds while I'm here. have any of you regretted switching from Neurontin to Lyrica...? Does the Lyrica help you with the burning pain...? Every time I try to decrease my Neurontin the burning pain gets so bad I have to keep on taking it. Thanks. Love to all, Lynn
[TMIC] hELP WITH UNSUBSCRIBING
Title: AOL Email I feel like I am acting like a big bitch (sorry if I offended anyone) . How do people find their way onto the TMIC List? Don't they know where to go to find out how to unsubscribe? I am so tired of emailing people to help them find their way off of the List! Is anyone else answering these cries for help besides me? Because if you are, that means that I can ignore them. There can't be too many people out there who are more computer ignorant than I, but I found out how to unsub when I needed to. It wasn't that difficult... I'm sorry to be so horrendous. It's very late or early, 3:33 a.m., I'm in a bunch of pain, and my sense of humor is about done in. I will take all of the chastisement I deserve in the morning. Love you all ~ Jude
Re: [TMIC] hELP WITH UNSUBSCRIBING
I feel like I am acting like a big bitch (sorry if I offended anyone) . How do people find their way onto the TMIC List? Jude, This is one of the mytsteries of the internet. I think that people are generally lazy. They are motivated when searching for us, then unmotivated (satiated) when leaving. We used to have an official Un-Greeter, but I believe they either died, retired, or Un-subscribed. Frank
Re: [TMIC] hELP WITH UNSUBSCRIBING
I PERSONALLY THINK A LOT OF THE 'NEWBIES TO THE LIST ARE DESPERATELY SEARCHING FOR ANSWERS IN A FORMAT OR PRESENTATION THEY CAN EASILY ABSORB WITHOUT INTERACTION ON A PERSONAL BASIS, AND WHEN THEY SEE E-MAIL FROM THE LIST THAT IS NOT CONDUCIVE TO AN IMMEDIATE INFORMATION SOURCE REGARDING THEIR REASONS FOR JOINING IN THE FIRST PLACE, THEY GET FRUSTRATED [WHICH, AS YOU ALL WELL KNOW, IS EASILY DONE IF YOU HAVE TM, DEVICS OR OTHER RELATED PROBLEMS] AND GIVE UP AND UNSUBSCRIBE. LIKE I SAID BEFORE, WE ARE LIKE A FAMILY SITTING DOWN FOR DINNER CONVERSING ABOUT WHATEVER ENTERS OUR MIND, AND NOT NECESSARILY WHAT EFFECTS THE 'FAMILY' AS A WHOLE. NEWBIES ARE AFRAID TO INITIATE SUBJECTS FOR CONVERSATION, BUT ARE JUST AT THE TABLE TO LISTEN FIRST AND SEE WHAT IS BEING SERVED UP. IF THEY DO NOT LIKE THE MENU, THEY LEAVE BEFORE DESERT IS SERVED, OR BETTER YET, THEY WAIT IN THE FOYER AND LISTEN TO WHAT IS GOING ON [EVES DROPPING] , AND IF THE MENU DOES NOT SOUND INTERESTING, THEY LEAVE WITHOUT SEEING WHAT IS FOR DESERT. SAID SIMPLY, WE POST LOTS OF E-MAIL THAT IS NOT ALL TOGETHER THAT INFORMATIVE OR INTERESTING TO NEWBIES AND THEY PACK UP AND LEAVE, MANY DO SO WITHOUT US EVEN KNOWING THEY WERE SUBSCRIBED. IT WOULD BE GREAT IF WE WERE INFORMED WHEN A NEWBIE JOINS, AND THEN THEY CAN BE SENT A FORM OR 'PAT' E-MAIL INFORMING THEM THEY ARE WELCOME AND TO BENEFIT FROM THE TMIC, THEY SHOULD INTRODUCE THEMSELVES AND POST THEIR INQUIRIES FOR RESPONSES, OTHERWISE, THEY WILL BE COMING IN ON A CONVERSATION OF E-MAILS THAT MAY WELL NOT MAKE SENSE TO THEM, THEY GET BORED TO A FEELING OF THE LIST NOT BEING WHAT THEY MIGHT HAVE THOUGHT IT WAS, AND LEAVE, WITHOUT SO MUCH AS A HOWDY-DO. IF LUBIN CAN'T HAVE THE SYSTEM MAKE AN ANNOUNCEMENT OF A NEWBIE JOINING FOR US TO WELCOME THEM TO THE DINNER TABLE AND TO JOIN IN, THEN MAYBE A SHORT SENTENCE AT THE BOTTOM OF OUR E-MAIL COULD WELCOME NEWBIES AND ASK THEM TO JOIN IN THE CONVERSATION OR POSE THEIR INQUIRIES AT ANY TIME, KINDA LIKE A SIGN AT THE DOORWAY SAYING, 'COMMON IN, THE WATER'S FINE' AND JOIN IN' , OR SOME SUCH. JMTCW. BOB FROM SPRING, TEXAS TM CLASS OF ' 94 T-1 PARA A DES This electronic message is confidential and is intended only for the use of the individual to whom it is addressed. The information may also be legally privileged. This transmission is sent in trust, for the sole purpose of delivery to the intended recipient. If you have received this transmission in error, you are hereby notified, that any use, dissemination, distribution or reproduction of this, transmission is strictly prohibited. If you are not the intended, recipient, please immediately notify me by reply electronic message and delete the message from your system. IRS Circular 230 Notice: Any advice contained in this message was not written and is not intended to be used, and cannot be used, by any taxpayer for the purpose of avoiding penalties with respect to taxes that may be imposed upon the taxpayer. [Original Message] From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; TMIC-LIST@eskimo.com Date: 10/10/2006 9:04:50 AM Subject: Re: [TMIC] hELP WITH UNSUBSCRIBING I feel like I am acting like a big bitch (sorry if I offended anyone) . How do people find their way onto the TMIC List? Jude, This is one of the mytsteries of the internet. I think that people are generally lazy. They are motivated when searching for us, then unmotivated (satiated) when leaving. We used to have an official Un-Greeter, but I believe they either died, retired, or Un-subscribed. Frank
Re: [TMIC] HELP WITH UNSUBSCRIBING
Hi Bob and All ~ Excellent letter Bobgreat ideas..! Thought I should pop in here and let everyone know that I have been handling the "unsubscribers" for many months now. I write to them off list as soon as I see their email. There are many reasons why they have unsubscribed...some of these people are still writing to me off list the main reasons are 1) Too many emails for me to handle right now 2) I'm only unsubscribing for a while (many reasons on this...vacations, etc)...3) I can't subscribe from my work computer any more..fortunately I have rarely had anyone unsubscribe because of any of our unsavory dinner table conversations. :-) Many of these people have subscribed again and are "up in the rafters" just "listening." I can totally understand why people just simply send an email to the list wanting to unsubscribe. It's so much easier than figuring out where the home page is that they subscribed from in the first place.. and they just KNOW that someone on the list will help them out. They are right! :-) That's what we are here for! :-) So. if you see someone wanting to unsubscribe just delete the message and know I will take care of them. If the day ever comes that I can't ...I will email the list and let someone else take over the job. Love to all, Lynn
Re: [TMIC] hELP WITH UNSUBSCRIBING
Bob, Excellent idea. My second most favorite site dealing with immuno- diseases is Brain Talk at Harvard Neurology, Multiple Sclerosis. BrainTalk does have a group for T.M., they try to welcome people but again it'x just sort of left up to the group. T,M, and M.S. have many similar symptoms and problems. F
Re: [TMIC] HELP WITH UNSUBSCRIBING
Title: AOL Email Lynn, You are so kind. I have made myself feel like an ass, again. I was feeling "twitchy" and took it out on "unsubs." Thanks for doing a job that no one thanks you for. Peace, Jude
