RE: [TMIC] Deb's Pain Pump Surgery Results
Janice, I would rather have gone your route but they said it would not help my type of pain. Glad it is working for you. Will let you all know within the next month or so how well it worked (takes long time to titrate dosage). Make it a great day, Deb From: Janice Nichols [mailto:jannic...@gmail.com] Sent: Monday, June 10, 2013 10:59 AM To: Deb Monteleone; TMIC Subject: Re: [TMIC] Deb's Pain Pump Surgery Results Deb, This sounds a little like my implant covering nerve pain with sensations rather than meds. But, it also sounds like I had less pain than you do.Please keep us posted on each step of the way.Besides being interesting, we really want it to work for you. Sounds like it has already started.Good luck. Janice From: Deb Monteleone mailto:aiki...@optonline.net Sent: Sunday, June 09, 2013 2:06 PM To: TMIC mailto:tmic-list@eskimo.com Subject: [TMIC] Deb's Pain Pump Surgery Results Hi All, Jude, I hope your pain pump quest is going well. Here are the results of my pump implant surgery on Wednesday 6/5 (5yrs to day of 1st TM symptom) The surgery went well. It was a long day; got to hospital at 9:00 am, surgery from 12:00 to about 1:30, then onto recovery and finally left at 6:30 pm. Silly me, I was not expecting it to be this uncomfortable and restraining. The stitches are on lower back, a hockey puck sized pump is under my skin in the front/right and bruises on right side from front to back (path of catheter). The left side is the only area untouched. I can’t really judge the effectiveness of the pain medication as of yet, due to the small amount my body is receiving. Prialt needs to be titrated slowly, it will be a month or more before they can get it up to the level I need. Currently it’s giving the same level as the trial which seemed to help with some pain in my butt and thighs. Thankfully, it seems to be doing the same now. My lower legs and feet are still pretty bad, hopefully the effect will travel further down my legs as they increase the dosage. With another week and a half off of work, I’m sure I’ll be able to heal just fine. Thanks for all your support and friendship. Make it a great day, Deb
Re: [TMIC] Deb's Pain Pump Surgery Results
By all means, keep us posted on progress. Janice From: Deb Monteleone Sent: Tuesday, June 11, 2013 12:03 PM To: 'Janice Nichols' Cc: tmic-l...@eskimo.net Subject: RE: [TMIC] Deb's Pain Pump Surgery Results Janice, I would rather have gone your route but they said it would not help my type of pain. Glad it is working for you. Will let you all know within the next month or so how well it worked (takes long time to titrate dosage). Make it a great day, Deb From: Janice Nichols [mailto:jannic...@gmail.com] Sent: Monday, June 10, 2013 10:59 AM To: Deb Monteleone; TMIC Subject: Re: [TMIC] Deb's Pain Pump Surgery Results Deb, This sounds a little like my implant covering nerve pain with sensations rather than meds. But, it also sounds like I had less pain than you do.Please keep us posted on each step of the way.Besides being interesting, we really want it to work for you. Sounds like it has already started.Good luck. Janice From: Deb Monteleone Sent: Sunday, June 09, 2013 2:06 PM To: TMIC Subject: [TMIC] Deb's Pain Pump Surgery Results Hi All, Jude, I hope your pain pump quest is going well. Here are the results of my pump implant surgery on Wednesday 6/5 (5yrs to day of 1st TM symptom) The surgery went well. It was a long day; got to hospital at 9:00 am, surgery from 12:00 to about 1:30, then onto recovery and finally left at 6:30 pm. Silly me, I was not expecting it to be this uncomfortable and restraining. The stitches are on lower back, a hockey puck sized pump is under my skin in the front/right and bruises on right side from front to back (path of catheter). The left side is the only area untouched. I can’t really judge the effectiveness of the pain medication as of yet, due to the small amount my body is receiving. Prialt needs to be titrated slowly, it will be a month or more before they can get it up to the level I need. Currently it’s giving the same level as the trial which seemed to help with some pain in my butt and thighs. Thankfully, it seems to be doing the same now. My lower legs and feet are still pretty bad, hopefully the effect will travel further down my legs as they increase the dosage. With another week and a half off of work, I’m sure I’ll be able to heal just fine. Thanks for all your support and friendship. Make it a great day, Deb
Re: [TMIC] Deb's Pain Pump Surgery Results
Deb, This sounds a little like my implant covering nerve pain with sensations rather than meds. But, it also sounds like I had less pain than you do.Please keep us posted on each step of the way.Besides being interesting, we really want it to work for you. Sounds like it has already started.Good luck. Janice From: Deb Monteleone Sent: Sunday, June 09, 2013 2:06 PM To: TMIC Subject: [TMIC] Deb's Pain Pump Surgery Results Hi All, Jude, I hope your pain pump quest is going well. Here are the results of my pump implant surgery on Wednesday 6/5 (5yrs to day of 1st TM symptom) The surgery went well. It was a long day; got to hospital at 9:00 am, surgery from 12:00 to about 1:30, then onto recovery and finally left at 6:30 pm. Silly me, I was not expecting it to be this uncomfortable and restraining. The stitches are on lower back, a hockey puck sized pump is under my skin in the front/right and bruises on right side from front to back (path of catheter). The left side is the only area untouched. I can’t really judge the effectiveness of the pain medication as of yet, due to the small amount my body is receiving. Prialt needs to be titrated slowly, it will be a month or more before they can get it up to the level I need. Currently it’s giving the same level as the trial which seemed to help with some pain in my butt and thighs. Thankfully, it seems to be doing the same now. My lower legs and feet are still pretty bad, hopefully the effect will travel further down my legs as they increase the dosage. With another week and a half off of work, I’m sure I’ll be able to heal just fine. Thanks for all your support and friendship. Make it a great day, Deb
