Fwd: Re: [TMIC] loss of bowel control
Note: forwarded message attached.SHOOT FIRST! ASKQUESTIONS LATER. What are the most popular cars? Find out at Yahoo! Autos ---BeginMessage--- HI SUE!! every ones situation is different when it comes to this issue,ive had tm since feb 2000,and ill tell you ive had some accidents in some bad places,such as therapy and in the car,the best you can do is try to schedule your bms.this may sound kind of strange ,but it can be done,i usually try to go every other day.unless the urge hits earlier..if you feel like you have to go,dont dought it for somthing else such as gas or an upset stomach,its better to be safe than sorry and try to go.ive found with myself i have to stimulate myself to go.this my seem weird to think about ,but you have to do whatever works for you.im partially paralysed from mid abd down and in a wheelchair.but have had to learn to work with what ive got.i dont know how long you have been a tmer,but the longer you get into the disease the more things will even out and things will start to regulate for you and there will be less accidents.dont be embarased,it happen! s and you just have to roll with it.write me back id love to hear from you. jeffSue Zieke [EMAIL PROTECTED] wrote: any suggestions for embarrassing loss of bowel control? it doesn't happen that often, every 2-3 weeks but is s embarrassing. please help. sue SHOOT FIRST! ASKQUESTIONS LATER. What are the most popular cars? Find out at Yahoo! Autos ---End Message---
Re: [TMIC] loss of bowel control
In a message dated 1/21/2006 6:01:08 PM Central Standard Time, [EMAIL PROTECTED] writes: any suggestions for embarrassing loss of bowel control? it doesn't happen that often, every 2-3 weeks but is s embarrassing. please help. sue Not being of much help re: loss of bowel control, the only things that I can suggest are those that work, more or less, for me. First, a good program that suits your personal ebb and flo. I am a go every day girl, while others are every 2 or 3 days. Figure out which you are then adhere to a program fit for you. I have found, through trial and error, over time, that two Senna Kot and three Colase over a three hour period during the mid-morning are enough to keep me regular and going at the same time each day. If I vary even a little bit from my program, I take the risk of embarrasing moments and discomfort. No fun at all. When I go out, if I do not feel "right" or am off of my schedule, I wear a brief and take a bag with things I might need in case of an accident. Best of luck to you my dear. I hope you get lots of good answers to your questions. Peace, Jude
Re: RE: [TMIC] loss of bowel control
Hey Frank I'VE TM 16yrs come May 2006 and still hoping to once again be able to dance, which was my favourite passtime once upon a time never give up I say !! - Original Message - From: [EMAIL PROTECTED] To: C E [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com Sent: Monday, January 23, 2006 2:17 PM Subject: Re: RE: [TMIC] loss of bowel control Carol, I've had TM since 2000 And am still unable to dance either fast or slow. The loss of dancing is one of my greatest. take care F
Re: [TMIC] loss of bowel control
When on cruise I go to dance floor with my walker and then get on floor pretending I am dancing. Porbably look like a fool but have a good time. Ann in Virginia
RE: [TMIC] loss of bowel control
Had the same problem. Then it went too fast but most of the times too slow. I ended in hospital for a few days. From there on I used lactulose dayly to keep it soft, and had bowl every day. When I did not manage to push it out, me was recomment, try to cauf it out. That works for me. Every day I see to get it out in time and accident hardly happened after that time. Wim from Holland Some quotes to hang on: When in the morning the sun rises, it is also ment for you! Enjoy the good days all day long. Bad days only last 24 hours. From: Sue Zieke [EMAIL PROTECTED] To: transverse myelitis club tmic-list@eskimo.com Subject: [TMIC] loss of bowel control Date: Sat, 21 Jan 2006 17:23:34 -0600 any suggestions for embarrassing loss of bowel control? it doesn't happen that often, every 2-3 weeks but is s embarrassing. please help. sue _ Meer ruimte nodig? Maak nu je eigen Space http://spaces.msn.nl/
Re: [TMIC] loss of bowel control
Frank, Don't give up!! I danced for the first time on the 9th anniversary of the day I was hospitalized/diagnosed!! janh Stillwater, OK
RE: [TMIC] loss of bowel control
Hi Sue. I don't what your situation is, but mine is partially paralyzed from midchest down. My neurologist has told me that bowel training is what we need to do, which is trying to be very scheduled in your bowel movements. I try to do mine every other day. he suggested every day but I hate it, so every other day is even too much for me!I have noticed that different foods effect my bladder control, but haven't really noticed any foods effecting my bowel patterns, or lack thereof! I still have 'spontaneous' bowel movements but they are much farther apart than they used to be. Good luck with it! DebC in MI.--- On Sat 01/21, Sue Zieke [EMAIL PROTECTED] wrote:From: Sue Zieke [mailto: [EMAIL PROTECTED]To: tmic-list@eskimo.comDate: Sat, 21 Jan 2006 17:23:34 -0600Subject: [TMIC] loss of bowel controlany suggestions for embarrassing loss of bowel control? it doesn't happen that often, every 2-3 weeks but is s embarrassing. please help. sueNo banners. No pop-ups. No kidding.Make My Way your home on the Web - http://www.myway.com
RE: [TMIC] loss of bowel control
Yes, bowel control is a huge issue. My neurologist also told me to try to do exercises much like us women would perform the kagel exercise only try to squeeze and hold the rectum muscle for a few seconds. I can't say that it has helped 100% as I also have some accidents...only my BM's are usually firm and roll right out when I set down on the pot. LOL! (Gotta have some humor with this crap!) And I do emphasize usually, but not always. Sometimes I have had some real messes. I have had TM since June 2005 and just now starting to get out and go places with friends. For a single, active, dancing mid age lady, the bowel control has been a major factor in holding me back from my social life since I got out of the wheel chair. I certainly do not have the mobility to dance like I use to, but I can still slow dance. Funny that you should list this question this weekend, because I just started tracking my BM's. I placed a little tablet in my bathroom that I record the times of my BM's so I can see how scheduled or spuratic they are. I carry wipes and undergarments with me to work. I might also add that I have to take Senacot, Colace and Miralax to keep them moving. Carol in Culver, Indiana From: Deb Casey [EMAIL PROTECTED] Reply-To: [EMAIL PROTECTED] To: [EMAIL PROTECTED], tmic-list@eskimo.com Subject: RE: [TMIC] loss of bowel control Date: Sun, 22 Jan 2006 17:26:19 -0500 (EST) Hi Sue. I don't what your situation is, but mine is partially paralyzed from midchest down. My neurologist has told me that bowel training is what we need to do, which is trying to be very scheduled in your bowel movements. I try to do mine every other day. he suggested every day but I hate it, so every other day is even too much for me!I have noticed that different foods effect my bladder control, but haven't really noticed any foods effecting my bowel patterns, or lack thereof! I still have 'spontaneous' bowel movements but they are much farther apart than they used to be. Good luck with it! DebC in MI.--- On Sat 01/21, Sue Zieke lt; [EMAIL PROTECTED] gt; wrote:From: Sue Zieke [mailto: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Sat, 21 Jan 2006 17:23:34 -0600Subject: [TMIC] loss of bowel controlany suggestions for embarrassing loss of bowel control? it doesn't happen that often, every 2-3 weeks but is s embarrassing. please help. sue ___ No banners. No pop-ups. No kidding. Make My Way your home on the Web - http://www.myway.com
Re: [TMIC] loss of bowel control
any suggestions for embarrassing loss of bowel control? it doesn't happen that often, every 2-3 weeks but is s embarrassing. How extensive, e.g., marking of the underwear or a tablespoon or so or a full BM The answers are different. Alton, who found a solution to a tablespoon
Re: [TMIC] loss of bowel control
i wish it were a tablespoon. no it is a full bm. and ends up everywhere, even in my shoes. do they make some kind of diapers that would actually work and contain it until i can get to the bathroom? On Saturday, January 21, 2006, at 09:16 PM, Alton Ryder wrote: any suggestions for embarrassing loss of bowel control? it doesn't happen that often, every 2-3 weeks but is s embarrassing. How extensive, e.g., marking of the underwear or a tablespoon or so or a full BM The answers are different. Alton, who found a solution to a tablespoon
