RE: [TMIC] Living life on your own terms - accepting TM???

2010-05-22 Thread j ra

oh hell yeah, I'm there now! I can't feel anything under my feet, but I'm a 
"walker". Somehow when the sand gets between your toes in the warm Caribbbean 
sand, you can actually feel it. It's amazing. Warm, wet and new.what we all 
TMers need. I'd like to "walk" barefoot in some snow soon though.feel the 
difference.
Jeron

To: jan...@centurytel.net; tmic-l...@eskimo.net
Subject: Re: [TMIC] Living life on your own terms - accepting TM???
Date: Sat, 22 May 2010 23:45:29 -0400
From: balmat...@aol.com

For all who love the beach: we have found that there are some beaches that have 
very large wheelchairs that have huge plastic wheels that go very well on sand. 
 We've seen these in San Diego, Florida and on private islands that the cruise 
companies have in the Bahamas.  It makes it possible to be at the beach at 
least, they can go into the water also.  Picture a Lily Tomlin chair made of 
PVC pipe, quite fun!  I loved it.  I have tried in the past walking in dry sand 
on my crutches and it moves too much for me so I couldn't do it.  I've walked 
with 2 men holding my arms and that's very hard, but once I get on the hard, 
wet sand I'm in better shape and can do better with help.  It only takes a very 
weak and I mean the weakest kind of wave you can imagine to knock me over 
unless I get into at least waist high water, but I love it.  The caribbean 
water is the best, nice and warm and clear.  It's worth it all to me to be able 
to experience the beach.





Hugs, Barbara A in Auburn CA






-Original Message-

From: Janice Nichols 

To: j.d...@shaw.ca; tmic-list@eskimo.com; Barbara Alma 

Sent: Sat, May 22, 2010 8:58 am

Subject: Re: [TMIC] Living life on your own terms - accepting TM???







Janet, you are right on the money.  I, too, used to think "is this really 
happening?" Life is not the same, but it is life and I am surrounded with a 
great family


and great friends.  I am adjusting to the fact that we will not be doing 
any more beach vacations.Walking on sand would be too difficult and 
exhausting.  But,


we are thinking of other places that we can go. It took 3 years to get to 
where I could travel and I love it, but I have to be picky about what we do.


I hate this more than I can say, but I do still have a life and I still do 
things - dinner with friends, movies, etc.   Pain level is not so bad right 
now, but there is no


warning when the legs will give out on me.  Life is truly full of surprises.


 


Love you all,


Janice


 











From: Barbara Alma 


Sent: Saturday, May 22, 2010 2:05 AM


To: j.d...@shaw.ca ; tmic-list@eskimo.com 


Subject: [TMIC] Living life on your own terms - accepting TM???









Janet, I have to tell you that for so many years, and I've had TM for 12 years, 
so I cannot remember exactly how many, I honestly thought that I may just wake 
up one morning and it could be all gone.  It was a very nice thought, but never 
happened.  It really felt like I was living in a bad dream for so long, so 
thought I'd wake up and I would be out of it.  Talk about not living in 
reality?  


 


Jeron, I believe that you have a right to decide how you live your life, with 
or without medications.  I know that the brain fuzziness is no fun, but I enjoy 
the pain relief that it gives me.  Without it, I have absolutely no energy and 
I am a mental and physical wreck.  I personally cannot live without my family 
support, but you've decided the way you want to handle your life, which is 
between you and your family.  I couldn't handle it, although I do admit to 
hiding out in my room when I'm having a bad episode of spasms so nobody has to 
see me like that.  Still, they know I'm in there and can check on me.  I hope 
that you will be able to find a balance between what you want to do for 
yourself and how to include your family in your life as well.   


 


Hugs, Barbara A in Auburn CA






-Original Message-

From: Janet Dunn 

To: tmic-l...@eskimo.net; tmic-list@eskimo.com

Sent: Fri, May 21, 2010 9:10 am

Subject: RE: [TMIC] alive











What I am really wondering is if one ever really gets to the point of accepting 
this thing?  It has almost been six years (August) and daily I have to decide 
whether to get up and work with it, fight it, or give into it.  


 


Most of the time I fight it.  Working with it would make my life easier I 
suppose, but darn it, I am with Jeron .  It has taken a lot away.


 


One of the things that I have discovered after fighting it so hard for five 
years – to get back to where I used to be before being struck with TM – was 
that either way, TM or no TM – I could not regain my former self.  It would be 
like suddenly becoming 30 again.  It isn’t going to be.  I would have aged 5 
years whether I had TM or not.  That made it much easier for me to realize that 

Re: [TMIC] Living life on your own terms - accepting TM???

2010-05-22 Thread Janice Nichols
That sounds wonderful.
Janice


From: Barbara Alma 
Sent: Saturday, May 22, 2010 10:45 PM
To: jan...@centurytel.net ; tmic-l...@eskimo.net 
Subject: Re: [TMIC] Living life on your own terms - accepting TM???


For all who love the beach: we have found that there are some beaches that have 
very large wheelchairs that have huge plastic wheels that go very well on sand. 
 We've seen these in San Diego, Florida and on private islands that the cruise 
companies have in the Bahamas.  It makes it possible to be at the beach at 
least, they can go into the water also.  Picture a Lily Tomlin chair made of 
PVC pipe, quite fun!  I loved it.  I have tried in the past walking in dry sand 
on my crutches and it moves too much for me so I couldn't do it.  I've walked 
with 2 men holding my arms and that's very hard, but once I get on the hard, 
wet sand I'm in better shape and can do better with help.  It only takes a very 
weak and I mean the weakest kind of wave you can imagine to knock me over 
unless I get into at least waist high water, but I love it.  The caribbean 
water is the best, nice and warm and clear.  It's worth it all to me to be able 
to experience the beach.


Hugs, Barbara A in Auburn CA



-Original Message-
From: Janice Nichols 
To: j.d...@shaw.ca; tmic-list@eskimo.com; Barbara Alma 
Sent: Sat, May 22, 2010 8:58 am
Subject: Re: [TMIC] Living life on your own terms - accepting TM???


Janet, you are right on the money.  I, too, used to think "is this really 
happening?" Life is not the same, but it is life and I am surrounded with a 
great family
and great friends.  I am adjusting to the fact that we will not be doing 
any more beach vacations.Walking on sand would be too difficult and 
exhausting.  But,
we are thinking of other places that we can go. It took 3 years to get to 
where I could travel and I love it, but I have to be picky about what we do.
I hate this more than I can say, but I do still have a life and I still do 
things - dinner with friends, movies, etc.   Pain level is not so bad right 
now, but there is no
warning when the legs will give out on me.  Life is truly full of surprises.

Love you all,
Janice



From: Barbara Alma 
Sent: Saturday, May 22, 2010 2:05 AM
To: j.d...@shaw.ca ; tmic-list@eskimo.com 
Subject: [TMIC] Living life on your own terms - accepting TM???


Janet, I have to tell you that for so many years, and I've had TM for 12 years, 
so I cannot remember exactly how many, I honestly thought that I may just wake 
up one morning and it could be all gone.  It was a very nice thought, but never 
happened.  It really felt like I was living in a bad dream for so long, so 
thought I'd wake up and I would be out of it.  Talk about not living in 
reality?  

Jeron, I believe that you have a right to decide how you live your life, with 
or without medications.  I know that the brain fuzziness is no fun, but I enjoy 
the pain relief that it gives me.  Without it, I have absolutely no energy and 
I am a mental and physical wreck.  I personally cannot live without my family 
support, but you've decided the way you want to handle your life, which is 
between you and your family.  I couldn't handle it, although I do admit to 
hiding out in my room when I'm having a bad episode of spasms so nobody has to 
see me like that.  Still, they know I'm in there and can check on me.  I hope 
that you will be able to find a balance between what you want to do for 
yourself and how to include your family in your life as well.   

Hugs, Barbara A in Auburn CA



-Original Message-
From: Janet Dunn 
To: tmic-l...@eskimo.net; tmic-list@eskimo.com
Sent: Fri, May 21, 2010 9:10 am
Subject: RE: [TMIC] alive


What I am really wondering is if one ever really gets to the point of accepting 
this thing?  It has almost been six years (August) and daily I have to decide 
whether to get up and work with it, fight it, or give into it.  

Most of the time I fight it.  Working with it would make my life easier I 
suppose, but darn it, I am with Jeron .  It has taken a lot away.

One of the things that I have discovered after fighting it so hard for five 
years – to get back to where I used to be before being struck with TM – was 
that either way, TM or no TM – I could not regain my former self.  It would be 
like suddenly becoming 30 again.  It isn’t going to be.  I would have aged 5 
years whether I had TM or not.  That made it much easier for me to realize that 
life is going to go on, I am going to grow older, and with age comes 
limitations, TM or not.  That might not make sense to others, but it sure 
helped me quit fighting so hard, and to accept the down days.

It also enabled me to lift up my head, look around, and realize that my friends 
and acquaintances all have their own struggles with growing older, they are 
just not as visible as mine.  Most of them deal with pain every day, in

Re: [TMIC] Living life on your own terms - accepting TM???

2010-05-22 Thread Barbara Alma
For all who love the beach: we have found that there are some beaches that have 
very large wheelchairs that have huge plastic wheels that go very well on sand. 
 We've seen these in San Diego, Florida and on private islands that the cruise 
companies have in the Bahamas.  It makes it possible to be at the beach at 
least, they can go into the water also.  Picture a Lily Tomlin chair made of 
PVC pipe, quite fun!  I loved it.  I have tried in the past walking in dry sand 
on my crutches and it moves too much for me so I couldn't do it.  I've walked 
with 2 men holding my arms and that's very hard, but once I get on the hard, 
wet sand I'm in better shape and can do better with help.  It only takes a very 
weak and I mean the weakest kind of wave you can imagine to knock me over 
unless I get into at least waist high water, but I love it.  The caribbean 
water is the best, nice and warm and clear.  It's worth it all to me to be able 
to experience the beach.


Hugs, Barbara A in Auburn CA



-Original Message-
From: Janice Nichols 
To: j.d...@shaw.ca; tmic-list@eskimo.com; Barbara Alma 
Sent: Sat, May 22, 2010 8:58 am
Subject: Re: [TMIC] Living life on your own terms - accepting TM???


Janet, you are right on the money.  I, too, used to think "is this really 
happening?" Life is not the same, but it is life and I am surrounded with a 
great family
and great friends.  I am adjusting to the fact that we will not be doing 
any more beach vacations.Walking on sand would be too difficult and 
exhausting.  But,
we are thinking of other places that we can go. It took 3 years to get to 
where I could travel and I love it, but I have to be picky about what we do.
I hate this more than I can say, but I do still have a life and I still do 
things - dinner with friends, movies, etc.   Pain level is not so bad right 
now, but there is no
warning when the legs will give out on me.  Life is truly full of surprises.
 
Love you all,
Janice
 




From: Barbara Alma 
Sent: Saturday, May 22, 2010 2:05 AM
To: j.d...@shaw.ca ; tmic-list@eskimo.com 
Subject: [TMIC] Living life on your own terms - accepting TM???



Janet, I have to tell you that for so many years, and I've had TM for 12 years, 
so I cannot remember exactly how many, I honestly thought that I may just wake 
up one morning and it could be all gone.  It was a very nice thought, but never 
happened.  It really felt like I was living in a bad dream for so long, so 
thought I'd wake up and I would be out of it.  Talk about not living in 
reality?  
 
Jeron, I believe that you have a right to decide how you live your life, with 
or without medications.  I know that the brain fuzziness is no fun, but I enjoy 
the pain relief that it gives me.  Without it, I have absolutely no energy and 
I am a mental and physical wreck.  I personally cannot live without my family 
support, but you've decided the way you want to handle your life, which is 
between you and your family.  I couldn't handle it, although I do admit to 
hiding out in my room when I'm having a bad episode of spasms so nobody has to 
see me like that.  Still, they know I'm in there and can check on me.  I hope 
that you will be able to find a balance between what you want to do for 
yourself and how to include your family in your life as well.   
 
Hugs, Barbara A in Auburn CA



-Original Message-
From: Janet Dunn 
To: tmic-l...@eskimo.net; tmic-list@eskimo.com
Sent: Fri, May 21, 2010 9:10 am
Subject: RE: [TMIC] alive



What I am really wondering is if one ever really gets to the point of accepting 
this thing?  It has almost been six years (August) and daily I have to decide 
whether to get up and work with it, fight it, or give into it.  
 
Most of the time I fight it.  Working with it would make my life easier I 
suppose, but darn it, I am with Jeron .  It has taken a lot away.
 
One of the things that I have discovered after fighting it so hard for five 
years – to get back to where I used to be before being struck with TM – was 
that either way, TM or no TM – I could not regain my former self.  It would be 
like suddenly becoming 30 again.  It isn’t going to be.  I would have aged 5 
years whether I had TM or not.  That made it much easier for me to realize that 
life is going to go on, I am going to grow older, and with age comes 
limitations, TM or not.  That might not make sense to others, but it sure 
helped me quit fighting so hard, and to accept the down days.
 
It also enabled me to lift up my head, look around, and realize that my friends 
and acquaintances all have their own struggles with growing older, they are 
just not as visible as mine.  Most of them deal with pain every day, in one way 
or another, just as a matter of course of growing older, and what that in 
itself can do to the body.
 
But, Jeron, I do totally get where you are coming from.  And I wish I could go 
scuba di

Re: [TMIC] Living life on your own terms - accepting TM???

2010-05-22 Thread Janice Nichols
Janet, you are right on the money.  I, too, used to think "is this really 
happening?" Life is not the same, but it is life and I am surrounded with a 
great family
and great friends.  I am adjusting to the fact that we will not be doing 
any more beach vacations.Walking on sand would be too difficult and 
exhausting.  But,
we are thinking of other places that we can go. It took 3 years to get to 
where I could travel and I love it, but I have to be picky about what we do.
I hate this more than I can say, but I do still have a life and I still do 
things - dinner with friends, movies, etc.   Pain level is not so bad right 
now, but there is no
warning when the legs will give out on me.  Life is truly full of surprises.

Love you all,
Janice



From: Barbara Alma 
Sent: Saturday, May 22, 2010 2:05 AM
To: j.d...@shaw.ca ; tmic-list@eskimo.com 
Subject: [TMIC] Living life on your own terms - accepting TM???


Janet, I have to tell you that for so many years, and I've had TM for 12 years, 
so I cannot remember exactly how many, I honestly thought that I may just wake 
up one morning and it could be all gone.  It was a very nice thought, but never 
happened.  It really felt like I was living in a bad dream for so long, so 
thought I'd wake up and I would be out of it.  Talk about not living in 
reality?  

Jeron, I believe that you have a right to decide how you live your life, with 
or without medications.  I know that the brain fuzziness is no fun, but I enjoy 
the pain relief that it gives me.  Without it, I have absolutely no energy and 
I am a mental and physical wreck.  I personally cannot live without my family 
support, but you've decided the way you want to handle your life, which is 
between you and your family.  I couldn't handle it, although I do admit to 
hiding out in my room when I'm having a bad episode of spasms so nobody has to 
see me like that.  Still, they know I'm in there and can check on me.  I hope 
that you will be able to find a balance between what you want to do for 
yourself and how to include your family in your life as well.   

Hugs, Barbara A in Auburn CA



-Original Message-
From: Janet Dunn 
To: tmic-l...@eskimo.net; tmic-list@eskimo.com
Sent: Fri, May 21, 2010 9:10 am
Subject: RE: [TMIC] alive


What I am really wondering is if one ever really gets to the point of accepting 
this thing?  It has almost been six years (August) and daily I have to decide 
whether to get up and work with it, fight it, or give into it.  

Most of the time I fight it.  Working with it would make my life easier I 
suppose, but darn it, I am with Jeron .  It has taken a lot away.

One of the things that I have discovered after fighting it so hard for five 
years – to get back to where I used to be before being struck with TM – was 
that either way, TM or no TM – I could not regain my former self.  It would be 
like suddenly becoming 30 again.  It isn’t going to be.  I would have aged 5 
years whether I had TM or not.  That made it much easier for me to realize that 
life is going to go on, I am going to grow older, and with age comes 
limitations, TM or not.  That might not make sense to others, but it sure 
helped me quit fighting so hard, and to accept the down days.

It also enabled me to lift up my head, look around, and realize that my friends 
and acquaintances all have their own struggles with growing older, they are 
just not as visible as mine.  Most of them deal with pain every day, in one way 
or another, just as a matter of course of growing older, and what that in 
itself can do to the body.

But, Jeron, I do totally get where you are coming from.  And I wish I could go 
scuba diving today too – especially since there is a heavy snowfall warning in 
effect for my area.  On May Long weekend no less!

Janet