Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185
Hello Michelle, We are really a very good support group and Welcome. Glad you found us. Every once in a while there is a little tiff of one sort or another over some trivial little thing. Unfortunately you have come on board right in the middle of one of these. There are lots of good questions and answers to our very important queries regarding TM. Also some of the members go on to be diagnosed with MS as is your case and we encourage you to stay and ask away. I am a 3 yr TM'er and was affected at T8 to T10 and was paralyzed from waist to toes in the beginning and in a wheelchair. I have learned to walk with cane and walker and still use the chair at times. On board here you will find lots and lots of us and we have varying degrees of damage to the spinal chord with also varying degrees of disability. We seem to all be on one or another of the meds, Neurontin/Gabapentin, Baclofen, Zanaflex, Lyrica (this is one of the new ones) and then there are many many more meds that people use. I'm sorry to hear that you have been diagnosed with MS. However, the fact that you now know that you will be able to start taking the drugs for treatment of such. Actually there is another TM'er who is on here and she also lives in Bothell WA or she did. Her name is Linda. Come to think of it though she may have moved recently. Tell us a little about yourself and the meds you are on and to what degree you have been affected with both TM and MS. I'm 61 and live in Calgary Alberta. You willl find that the majority of those on this site are from the USA however there are some from all over the world. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Friday, September 15, 2006 12:08 AM Subject: Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185 I am confused here. I am a brand new register to the group looking for support and to hear experience of other TM'rs and all I have read today is emails and more emails squabbling about how to write a darn email. Is this a support group or not. I am a 5 year TM'r who was just hit with another attack so the doctors are diagnosing me just today with MS. Thought I registered on this list to hear others testimonys and tips. Am I wrong? What kind of support group is this?MichelleBothell, WA No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.405 / Virus Database: 268.12.3/447 - Release Date: 9/13/2006
Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185
Thank you very much for your reply!! As I was saying to one other member who emailed me directly, I don't plan on checkin out just yet. I am at a loss as to where to go from here and what future life will be like. And I am looking forward to all the support I can get. Thank you for the encouragement. I don't get offended very easily. I was just wanting to know I guess how much people really discuss their disability issues here. (not to get into the scrabble myself, but I completely understand why one would only type in caps as I currently have lost most of the feeling in half of both my hands. Leaving numbness from middle finger to pinky. This makes it extremely difficult to hit that shift key for capitalizing words. I keep making mistake after mistake but just keep pluggin along) :-) I currently am in steroid treatments. I was in the hospital the past couple days and now will be an outpatient. Then home steroid treament. After that they will discuss long-term MS care with home injections. I don't know much about MS or its care. I have cried much the past 48 hours which I'm sure most of you can relate. I currently have partial paralysis from the ribcage down in both legs allowing me to only walk a small distance. And like I said, has begun to work down my arms and through my hands. My lesions on my spine currently are at C5 when before 5 years ago they were at T5 to T7. One blessing is that the CAT scan on my brain came out clean and there currently are no lesions. Though I do not understand why prognoses was made just for having two spinal attacks. I am believing for a recovery. And I assume that the rest is just taken one day at a time. I know that each person is unique in their disabilities and symptoms and these diseases are just unpredictable. I have experience various other symptoms from time to time about 6 years ago that could have related to MS. Like twitches in face, various numbness in arms and legs and even had my whole tongue go numb for two weeks (that was horrible). So now I guess I will go forward in the learning stages of what different care options there are. I have not a clue. Have a wonderful night everyone. God Bless, Michelle Bothell, WA
Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185
MICHELLE PLEASE POST ANY INQUIRIES TO THE LIST, ASK QUESTIONS OR SEEK HELP OF ANY NATURE. SOME MEMBERS HAVE BEEN ON HERE A LONG TIME AND USE THE LIST FOR WHATEVER ENTERS THEIR MIND AT THE TIME. YES, WE ARE ALL IN THE SAME BASKET HERE, SOME MORE OR LESS AFFECTED MY TM, BUT THAT IS WHAT WE ALL HAVE IN COMMON. WHEN ONE NEEDS HELP, WE ALL REACH OUT TO SEE WHAT WE CAN DO. NO DOUBT, OUR INDIVIDUAL PERSONALITIES ARE OFTEN REFLECTED AND SPOKEN ON HERE, BUT AS A GROUP, YOU COULD NOT FIND MORE CONCERNED AND SUPPORTIVE PEOPLE. SOME OF THE E-MAILS COULD BE DONE PRIVATELY, BUT WE ARE KINDA LIKE A FAMILY AT THE DINNER TABLE, AND DISCUSS WHATEVER A FAMILY WILL DO, LIKE ASKING FOR PRAYERS FOR A LOVED ONE TO ANNOUNCING GOOD NEWS. I HOPE YOU CAN UNDERSTAND AND JOIN US IN OUR DINNER AND STAY THROUGH DESERT, WHICH IS THE BEST PART. WISHING YOU WELL, BOB COOK SPRING, TEXAS TM SINCE 1994 AND PARALIZED FROM THE CHEST DOWN. - Original Message - From: To: [EMAIL PROTECTED];tmic-list@eskimo.com Sent: 9/15/2006 1:19:41 AM Subject: Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185 I am confused here. I am a brand new register to the group looking for support and to hear experience of other TM'rs and all I have read today is emails and more emails squabbling about how to write a darn email. Is this a support group or not. I am a 5 year TM'r who was just hit with another attack so the doctors are diagnosing me just today with MS. Thought I registered on this list to hear others testimonys and tips. Am I wrong? What kind of support group is this?MichelleBothell, WA
Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185
I find it odd that if there are no lesions on your
brain that the doctors have determined that you now have MS. I have been
under the belief that lesions on the brain 'usually' is why the diagnosis
changes from TM to MS.
I have a sister 3 yrs younger than myself who
has MS. Hers is the slow moving kind and she was officially diagnosed back
in 1991 but feels she had it for many more years than that. In 1991 she
had her second 'attack' and the MRI at that time found the brain lesions which
were not in her first MRI a few years prior to that.
{{{ Hugs to you}}} and a listening ear from all of
us.
Heather in Calgary
- Original Message -
From:
[EMAIL PROTECTED]
To: [EMAIL PROTECTED] ; [EMAIL PROTECTED]
; tmic-list@eskimo.com
Sent: Friday, September 15, 2006 2:29
AM
Subject: Re: [TMIC] Re: (OT) Re:
tmic-digest Digest V2006 #185
Thank you very much for your reply!! As I was
saying to one other member who emailed me directly, I don't plan on checkin
out just yet. I am at a loss as to where to go from here and what future life
will be like. And I am looking forward to all the support I can get. Thank you
for the encouragement. I don't get offended very easily. I was just
wanting to know I guess how much people really discuss their disability issues
here. (not to get into the scrabble myself, but I completely understand why
one would only type in caps as I currently have lost most of the feeling in
half of both my hands. Leaving numbness from middle finger to
pinky. This makes it extremely difficult to hit that shift key for
capitalizing words. I keep making mistake after mistake but just keep pluggin
along) :-)I currently am in steroid treatments. I was in
the hospital the past couple days and now will be an outpatient. Then
home steroid treament. After that they will discuss long-term MS care
with home injections. I don't know much about MS or its care. I
have cried much the past 48 hours which I'm sure most of you can relate.
I currently have partial paralysis from the ribcage down in both legs allowing
me to only walk a small distance. And like I said, has begun to work
down my arms and through my hands. My lesions on my spine currently are
at C5 when before 5 years ago they were at T5 to T7. One blessing is
that the CAT scan on my brain came out clean and there currently are no
lesions. Though I do not understand why prognoses was made just for
having two spinal attacks. I am believing for a recovery. And I
assume that the rest is just taken one day at a time. I know that each
person is unique in their disabilities and symptoms and these diseases are
just unpredictable. I have experience various other symptoms from time
to time about 6 years ago that could have related to MS. Like twitches in
face, various numbness in arms and legs and even had my whole tongue go numb
for two weeks (that was horrible). So now I guess I will go forward in
the learning stages of what different care options there are. I have not
a clue. Have a wonderful night everyone.God
Bless,Michelle Bothell, WA
No virus found in this incoming message.Checked by AVG Free
Edition.Version: 7.1.405 / Virus Database: 268.12.3/447 - Release Date:
9/13/2006
Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185
I don't know who in the Internet world decided using all caps was yelling -- but it's not, in and of itself. If it is being done for emphasis it's obvious. My mom had arthritis and the skipping that extra step of hitting the shift key to capitalize made it a little easier for her to type (though after getting scolded about it from other people she switched to writing in all lower case). I'm sure that's the case with many on the TM list, though as Pam said, some felt all caps were easier to read. Using a bigger font helps with that. I don't see why it can't be one of those "live and let live" things. (Shrug.) Barbara H. http://barbarah.wordpress.com/
