Re: [TMIC] They're baaack
Dalton, can’t believe it.Thought you finally had the right meds. Keep your chin up, we are all behind you and pray only the best for you. Keep us posted – often. Janice From: Dalton Garis Sent: Wednesday, April 27, 2011 11:40 AM To: James Berg ; john snodgrass Cc: transverse myelitis ; tmic-digest-requ...@eskimo.com Subject: Re: [TMIC] They're baaack Well, the cramping-spasticity-contractions—whatever-yoy-wanna-call-them, came back this morning. The first sign was that I knocked over a perfectly good, and totally full, cup of coffee all over the kitchen table, including on my meds. By the time I got to work my limb coordination was diminishing. But I got through the lecture—barely! Then informed my reassuring, but write-it-all-down-for-future-reference boss that I was heading home early. OK now, just sore and embarrassed. It is hard to be better than normal as worse than normal as both situations land me in trouble. Dalton Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760 From: James Berg molokai...@gmail.com Date: Tue, 26 Apr 2011 09:51:27 -1000 To: john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] revisiting an old issue Resent-From: tmic-list@eskimo.com Resent-Date: Tue, 26 Apr 2011 12:52:04 -0700 thanks for the input On Tue, Apr 26, 2011 at 9:08 AM, john snodgrass jcs...@yahoo.com wrote: ativan along with hydrocodone use to ease the banding but that does not have much effect anymore for me --- On Tue, 4/26/11, James Berg molokai...@gmail.com wrote: From: James Berg molokai...@gmail.com Subject: Re: [TMIC] revisiting an old issue To: john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Date: Tuesday, April 26, 2011, 2:28 PM I am having a bad day--the thrumming is at its worst and the banding has gotten wider and tighter--to the point I couldn't eat dinner or breakfast this morning. Baclofen does nothing. It took four glasses of red wine and two alergy pills to get me to sleep. Being in the chair now is making the banding pain worse. any suggestions? On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass jcs...@yahoo.com wrote: I remember hearing the concern of thrumming in the legs. You know,,like the sound that a power transformer makes except it's a feeling,a buzzing or even sometimes like energy going up and down your leg or legs. I gert this a lot and when it is real bad it is from the top of my head to the bottom of my feet. sometimes it even feels like something poking at the bottom of my feet from the inside trying to get out. perhaps i could harness it and drive a car with it! I am taking the maximum dosage of baclofen and neurontin and was wondering if anyone ever ran across something to either slow this part down or even stop it. sometimes it will last all day and can go from irritating to depressing. most of the time when this does stop that's when the burning begins. this on top of the wast banding and pain can drive me to thinking thoughts that are not normal for me. thoughts like,,perhaps i should find some marijuana and smoke it or perhaps i should drink enough to pass out or maybe i should punch someone and they will knock me out! my Doc's know about it but have no answer. losing insurance on may 5th.
Re: [TMIC] They're baaack
Well, the cramping-spasticity-contractionswhatever-yoy-wanna-call-them, came back this morning. The first sign was that I knocked over a perfectly good, and totally full, cup of coffee all over the kitchen table, including on my meds. By the time I got to work my limb coordination was diminishing. But I got through the lecturebarely! Then informed my reassuring, but write-it-all-down-for-future-reference boss that I was heading home early. OK now, just sore and embarrassed. It is hard to be better than normal as worse than normal as both situations land me in trouble. Dalton Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760 From: James Berg molokai...@gmail.com Date: Tue, 26 Apr 2011 09:51:27 -1000 To: john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] revisiting an old issue Resent-From: tmic-list@eskimo.com Resent-Date: Tue, 26 Apr 2011 12:52:04 -0700 thanks for the input On Tue, Apr 26, 2011 at 9:08 AM, john snodgrass jcs...@yahoo.com wrote: ativan along with hydrocodone use to ease the banding but that does not have much effect anymore for me --- On Tue, 4/26/11, James Berg molokai...@gmail.com wrote: From: James Berg molokai...@gmail.com Subject: Re: [TMIC] revisiting an old issue To: john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Date: Tuesday, April 26, 2011, 2:28 PM I am having a bad day--the thrumming is at its worst and the banding has gotten wider and tighter--to the point I couldn't eat dinner or breakfast this morning. Baclofen does nothing. It took four glasses of red wine and two alergy pills to get me to sleep. Being in the chair now is making the banding pain worse. any suggestions? On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass jcs...@yahoo.com http://mc/compose?to=jcs...@yahoo.com wrote: I remember hearing the concern of thrumming in the legs. You know,,like the sound that a power transformer makes except it's a feeling,a buzzing or even sometimes like energy going up and down your leg or legs. I gert this a lot and when it is real bad it is from the top of my head to the bottom of my feet. sometimes it even feels like something poking at the bottom of my feet from the inside trying to get out. perhaps i could harness it and drive a car with it! I am taking the maximum dosage of baclofen and neurontin and was wondering if anyone ever ran across something to either slow this part down or even stop it. sometimes it will last all day and can go from irritating to depressing. most of the time when this does stop that's when the burning begins. this on top of the wast banding and pain can drive me to thinking thoughts that are not normal for me. thoughts like,,perhaps i should find some marijuana and smoke it or perhaps i should drink enough to pass out or maybe i should punch someone and they will knock me out! my Doc's know about it but have no answer. losing insurance on may 5th.
Re: [TMIC] They're baaack
hate to hear that Dalton. I'm having an extremely bad day myself wondered if it was the weatherbut your way over there? hows the weather? --- On Wed, 4/27/11, Dalton Garis malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] They're baaack To: James Berg molokai...@gmail.com, john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com, tmic-digest-requ...@eskimo.com tmic-digest-requ...@eskimo.com Date: Wednesday, April 27, 2011, 12:40 PM Well, the cramping-spasticity-contractions—whatever-yoy-wanna-call-them, came back this morning. The first sign was that I knocked over a perfectly good, and totally full, cup of coffee all over the kitchen table, including on my meds. By the time I got to work my limb coordination was diminishing. But I got through the lecture—barely! Then informed my reassuring, but write-it-all-down-for-future-reference boss that I was heading home early. OK now, just sore and embarrassed. It is hard to be better than normal as worse than normal as both situations land me in trouble. Dalton Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760 From: James Berg molokai...@gmail.com Date: Tue, 26 Apr 2011 09:51:27 -1000 To: john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] revisiting an old issue Resent-From: tmic-list@eskimo.com Resent-Date: Tue, 26 Apr 2011 12:52:04 -0700 thanks for the input On Tue, Apr 26, 2011 at 9:08 AM, john snodgrass jcs...@yahoo.com wrote: ativan along with hydrocodone use to ease the banding but that does not have much effect anymore for me --- On Tue, 4/26/11, James Berg molokai...@gmail.com wrote: From: James Berg molokai...@gmail.com Subject: Re: [TMIC] revisiting an old issue To: john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Date: Tuesday, April 26, 2011, 2:28 PM I am having a bad day--the thrumming is at its worst and the banding has gotten wider and tighter--to the point I couldn't eat dinner or breakfast this morning. Baclofen does nothing. It took four glasses of red wine and two alergy pills to get me to sleep. Being in the chair now is making the banding pain worse. any suggestions? On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass jcs...@yahoo.com wrote: I remember hearing the concern of thrumming in the legs. You know,,like the sound that a power transformer makes except it's a feeling,a buzzing or even sometimes like energy going up and down your leg or legs. I gert this a lot and when it is real bad it is from the top of my head to the bottom of my feet. sometimes it even feels like something poking at the bottom of my feet from the inside trying to get out. perhaps i could harness it and drive a car with it! I am taking the maximum dosage of baclofen and neurontin and was wondering if anyone ever ran across something to either slow this part down or even stop it. sometimes it will last all day and can go from irritating to depressing. most of the time when this does stop that's when the burning begins. this on top of the wast banding and pain can drive me to thinking thoughts that are not normal for me. thoughts like,,perhaps i should find some marijuana and smoke it or perhaps i should drink enough to pass out or maybe i should punch someone and they will knock me out! my Doc's know about it but have no answer. losing insurance on may 5th.
Re: [TMIC] They're baaack
HOTTER HERE ALSO ,GETTING READY TO STORM --- On Wed, 4/27/11, Dalton Garis malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] They're baaack To: john snodgrass jcs...@yahoo.com Date: Wednesday, April 27, 2011, 1:10 PM Getting hotter but still bearable. Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760 From: john snodgrass jcs...@yahoo.com Date: Wed, 27 Apr 2011 09:47:03 -0700 (PDT) To: James Berg molokai...@gmail.com, Dalton Garis malugss...@gmail.com Cc: transverse myelitis tmic-list@eskimo.com, tmic-digest-requ...@eskimo.com tmic-digest-requ...@eskimo.com Subject: Re: [TMIC] They're baaack hate to hear that Dalton. I'm having an extremely bad day myself wondered if it was the weatherbut your way over there? hows the weather? --- On Wed, 4/27/11, Dalton Garis malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] They're baaack To: James Berg molokai...@gmail.com, john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com, tmic-digest-requ...@eskimo.com tmic-digest-requ...@eskimo.com Date: Wednesday, April 27, 2011, 12:40 PM Well, the cramping-spasticity-contractions—whatever-yoy-wanna-call-them, came back this morning. The first sign was that I knocked over a perfectly good, and totally full, cup of coffee all over the kitchen table, including on my meds. By the time I got to work my limb coordination was diminishing. But I got through the lecture—barely! Then informed my reassuring, but write-it-all-down-for-future-reference boss that I was heading home early. OK now, just sore and embarrassed. It is hard to be better than normal as worse than normal as both situations land me in trouble. Dalton Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760 From: James Berg molokai...@gmail.com Date: Tue, 26 Apr 2011 09:51:27 -1000 To: john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] revisiting an old issue Resent-From: tmic-list@eskimo.com Resent-Date: Tue, 26 Apr 2011 12:52:04 -0700 thanks for the input On Tue, Apr 26, 2011 at 9:08 AM, john snodgrass jcs...@yahoo.com wrote: ativan along with hydrocodone use to ease the banding but that does not have much effect anymore for me --- On Tue, 4/26/11, James Berg molokai...@gmail.com wrote: From: James Berg molokai...@gmail.com Subject: Re: [TMIC] revisiting an old issue To: john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Date: Tuesday, April 26, 2011, 2:28 PM I am having a bad day--the thrumming is at its worst and the banding has gotten wider and tighter--to the point I couldn't eat dinner or breakfast this morning. Baclofen does nothing. It took four glasses of red wine and two alergy pills to get me to sleep. Being in the chair now is making the banding pain worse. any suggestions? On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass jcs...@yahoo.com wrote: I remember hearing the concern of thrumming in the legs. You know,,like the sound that a power transformer makes except it's a feeling,a buzzing or even sometimes like energy going up and down your leg or legs. I gert this a lot and when it is real bad it is from the top of my head to the bottom of my feet. sometimes it even feels like something poking at the bottom of my feet from the inside trying to get out. perhaps i could harness it and drive a car with it! I am taking the maximum dosage of baclofen and neurontin and was wondering if anyone ever ran across something to either slow this part down or even stop it. sometimes it will last all day and can go from irritating to depressing. most of the time when this does stop that's when the burning begins. this on top of the wast banding and pain can drive me to thinking thoughts that are not normal for me. thoughts like,,perhaps i should find some marijuana and smoke it or perhaps i should drink enough to pass out or maybe i should punch someone and they will knock me out! my Doc's know about it but have no answer. losing insurance on may 5th.
Re: [TMIC] They're baaack
Hi Dalton, I'm so sorry that you are having problems again. You just never seem to get a break for long. Hang in there and pray for better days ahead, and a break again soon. You deserve it. Good notes can get you through a multitude of things. Man, we started out when we were kids taking notes in class, then making notes to get through an oral presentation. And it goes on and on from there. Then we become disabled. Notes can be your best friend, for tasks to do ourselves, things to remember to tell others, have others help with, etc. It's something that we all will eventually need to get in the habit of doing, or should get used to doing. It's like a to-do list, and who of us haven't done one of those at one time or another. Oh boy!!! Hugs, Barbara A -Original Message- From: Dalton Garis malugss...@gmail.com To: James Berg molokai...@gmail.com; john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com; tmic-digest-request tmic-digest-requ...@eskimo.com Sent: Wed, Apr 27, 2011 9:41 am Subject: Re: [TMIC] They're baaack Well, the cramping-spasticity-contractions—whatever-yoy-wanna-call-them, came back this morning. The first sign was that I knocked over a perfectly good, and totally full, cup of coffee all over the kitchen table, including on my meds. By the time I got to work my limb coordination was diminishing. But I got through the lecture—barely! Then informed my reassuring, but write-it-all-down-for-future-reference boss that I was heading home early. OK now, just sore and embarrassed. It is hard to be better than normal as worse than normal as both situations land me in trouble. Dalton Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760 From: James Berg molokai...@gmail.com Date: Tue, 26 Apr 2011 09:51:27 -1000 To: john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] revisiting an old issue Resent-From: tmic-list@eskimo.com Resent-Date: Tue, 26 Apr 2011 12:52:04 -0700 thanks for the input On Tue, Apr 26, 2011 at 9:08 AM, john snodgrass jcs...@yahoo.com wrote: ativan along with hydrocodone use to ease the banding but that does not have much effect anymore for me --- On Tue, 4/26/11, James Berg molokai...@gmail.com wrote: From: James Berg molokai...@gmail.com Subject: Re: [TMIC] revisiting an old issue To: john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Date: Tuesday, April 26, 2011, 2:28 PM I am having a bad day--the thrumming is at its worst and the banding has gotten wider and tighter--to the point I couldn't eat dinner or breakfast this morning. Baclofen does nothing. It took four glasses of red wine and two alergy pills to get me to sleep. Being in the chair now is making the banding pain worse. any suggestions? On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass jcs...@yahoo.com wrote: I remember hearing the concern of thrumming in the legs. You know,,like the sound that a power transformer makes except it's a feeling,a buzzing or even sometimes like energy going up and down your leg or legs. I gert this a lot and when it is real bad it is from the top of my head to the bottom of my feet. sometimes it even feels like something poking at the bottom of my feet from the inside trying to get out. perhaps i could harness it and drive a car with it! I am taking the maximum dosage of baclofen and neurontin and was wondering if anyone ever ran across something to either slow this part down or even stop it. sometimes it will last all day and can go from irritating to depressing. most of the time when this does stop that's when the burning begins. this on top of the wast banding and pain can drive me to thinking thoughts that are not normal for me. thoughts like,,perhaps i should find some marijuana and smoke it or perhaps i should drink enough to pass out or maybe i should punch someone and they will knock me out! my Doc's know about it but have no answer. losing insurance on may 5th.
Re: [TMIC] They're baaack
It all depends on the weather. Weather I hurt or weather I don't. (But I usually do.) - Roger in Kennewick, WA - Original Message - From: john snodgrass jcs...@yahoo.com To: James Berg molokai...@gmail.com, Dalton Garis malugss...@gmail.com Cc: transverse myelitis tmic-list@eskimo.com, tmic-digest-requ...@eskimo.com Sent: Wednesday, April 27, 2011 9:47:03 AM Subject: Re: [TMIC] They're baaack hate to hear that Dalton. I'm having an extremely bad day myself wondered if it was the weatherbut your way over there? hows the weather? --- On Wed, 4/27/11, Dalton Garis malugss...@gmail.com wrote: From: Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] They're baaack To: James Berg molokai...@gmail.com, john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com, tmic-digest-requ...@eskimo.com tmic-digest-requ...@eskimo.com Date: Wednesday, April 27, 2011, 12:40 PM Well, the cramping-spasticity-contractions—whatever-yoy-wanna-call-them, came back this morning. The first sign was that I knocked over a perfectly good, and totally full, cup of coffee all over the kitchen table, including on my meds. By the time I got to work my limb coordination was diminishing. But I got through the lecture—barely! Then informed my reassuring, but write-it-all-down-for-future-reference boss that I was heading home early. OK now, just sore and embarrassed. It is hard to be better than normal as worse than normal as both situations land me in trouble. Dalton Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760 From: James Berg molokai...@gmail.com Date: Tue, 26 Apr 2011 09:51:27 -1000 To: john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] revisiting an old issue Resent-From: tmic-list@eskimo.com Resent-Date: Tue, 26 Apr 2011 12:52:04 -0700 thanks for the input On Tue, Apr 26, 2011 at 9:08 AM, john snodgrass jcs...@yahoo.com wrote: ativan along with hydrocodone use to ease the banding but that does not have much effect anymore for me --- On Tue, 4/26/11, James Berg molokai...@gmail.com wrote: From: James Berg molokai...@gmail.com Subject: Re: [TMIC] revisiting an old issue To: john snodgrass jcs...@yahoo.com Cc: transverse myelitis tmic-list@eskimo.com Date: Tuesday, April 26, 2011, 2:28 PM I am having a bad day--the thrumming is at its worst and the banding has gotten wider and tighter--to the point I couldn't eat dinner or breakfast this morning. Baclofen does nothing. It took four glasses of red wine and two alergy pills to get me to sleep. Being in the chair now is making the banding pain worse. any suggestions? On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass jcs...@yahoo.com wrote: I remember hearing the concern of thrumming in the legs. You know,,like the sound that a power transformer makes except it's a feeling,a buzzing or even sometimes like energy going up and down your leg or legs. I gert this a lot and when it is real bad it is from the top of my head to the bottom of my feet. sometimes it even feels like something poking at the bottom of my feet from the inside trying to get out. perhaps i could harness it and drive a car with it! I am taking the maximum dosage of baclofen and neurontin and was wondering if anyone ever ran across something to either slow this part down or even stop it. sometimes it will last all day and can go from irritating to depressing. most of the time when this does stop that's when the burning begins. this on top of the wast banding and pain can drive me to thinking thoughts that are not normal for me. thoughts like,,perhaps i should find some marijuana and smoke it or perhaps i should drink enough to pass out or maybe i should punch someone and they will knock me out! my Doc's know about it but have no answer. losing insurance on may 5th.
