Dear Germaine,
Since my cml dx(Mar. '00) I decided I would have a 2nd
opinion for a hangnail.
I had a 2nd opinion & found it invaluable.
Re Dr. Druker: Some time ago I researched clinical trials
for a friend. I called Druker's office & explained the
situation to the woman who answered the phone
-- Forwarded message --Oral Desensitization Prevents Recurrent Imatinib RashNEW YORK (Reuters Health) Aug 31 - Oral desensitization can be used to
prevent the recurrent rash that prevents therapy with imatinib in somepatients with leukemia, according to a report in the August Annals
I was diagnosed with CML 3/3/3. I filed for disability the day I got out of the hospital. And was granted disability at the 6 month point. At the time I was 36. I have been reviewed at 2 years and continue to be on disability. The most important thing for you is to have a doctor that will supp
> It is pretty sad when being almost 40 I am really starting to
> become so distrustful of our goverment, and jaded about society in general.
If you are sad now, in 30 years you will be devastated.
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhop
Thanks Anjana,Dr. El- Khoury would not give him Neulasta because he said he did not know enough about it,that is why he went with Neupogen.Dr El-Khoury is a young Dr.,but he seems like he knows his stuff.He is also supposed to be conferring with Randy's CML Dr.Gingrich in Iowa City.I get alittle ne
Okay..I have been doing some investigations, Mumps is given as a live virus. I cannot find anything though about whether someone with an immune deficioncy (sp) can contract it from a child who has had his/her shots recently. I also found out that most children do not (including my granddaughte
LoL...that's my mom's favortie quote too that and "ceste La viv" (not sure about the spelling..heheh) meaning "such is life". Besides that not only can I not live life in a bottle but I refuse to miss out on my grandbaby!!! Just was a thought as to maybe "where" I got it.
Hugs,
Katy
--xanga.com/
Hi Judy,
I agree with your doc that staying on Gleevec is a good idea, but he
exaggerated considerably in saying you that you'd be worse off after a
month than when you were first diagnosed. Many people have stopped
Gleevec for different lengths of time for different reasons, and none
has relapse
As the others have mentioned, doesn't seem like your test results are
that bad. I suspect that you don't need a BMT, but if it turned out
that you do, make sure that you go to one of the few BMT centers that
specializes in seniors (you said you were on Medicare). I'm treated at
City of Hope whic
Katy:
I don't know if it has anything to do with getting the mumps or not,
but seems like I read somewhere that people taking Gleevec should be
careful about being around little ones who have had their booster type
shots. I don't remember which ones or if it included all children's
shots. I rem
Dear Suzieq,
The first zero is when you are in complete cytogenetic remission when
the 20 bone marrow cells tested show no Ph chromosome. This is CCR or
0%Ph+. After this, patients graduate to a PCR which can detect 1 bad
cell in 100,000 or more cells. A log reduction refers to reduction in
Germaine:
Hi, if you are at Emory in Atlanta, that's where my favorite hem/onc
went and his name is Dr. Hannah Khoury. He's a great doctor and very
knowledgeable about CML. He left here (St. Louis, Mo,) in Aug. of 2004
to set up a unit at Emory like we have here at Siteman Cancer Center in
St.
Dear Sandy,
Randy is really having a tough time with his ANC. Neupogen has been
used by many Gleevec patients along with Gleevec to boost up the white
blood cells so I would not worry about that aspect. However, there is
a longer acting Neupogen called Neulasta, I think you take that less
oft
Anjana & Allyson:
Thanks to both of you for your reply. That's very good information,
Anjana, and will be looking forward to those trial results.
Can you also explain just what being "zero" is.I know it has to
do with being PCRU, but what are the "numbers" one wants to look for
on their
I think it must be eaier to get on SSI then SSD even for a dissability. When I got on SSI for disibility my Doctor wrote a letter to them and then I had to go see this psychiatrist here for an evaluation and then I was approved.
Hugs,
Katy
--xanga.com/katybug45
-- Original message
Terry, Nope! The only thing I could think of is.my granddaughter Kayla had her shot's a while backdo they give "live" virus in Mumps vaccine? If so I was wondering since our immune systems suck if taking care of her the day after her shots and kissing on her and putting her paci in my
Thanks so much for writing! I will have to ask it I can take a drug
holiday once so I can enjoy a few symptom free days.
I am new to the on-line cml family and I have learned more from all of
you than I have my oncologist. To me, insulin isn't all that bad, it
actually allows me more freedom wh
Hi Anjana& everyone, Well Randy is having his 14TH shot today.He had an appointment yesterday for his fish test results,but it wasn't back yet.Tomorrow I guess! They let him go 4 days with out a shot and his ANC dropped to 0.7. It is now at 1.0.The thing that worries me is this information on Neupo
Hi Richard,
I know I am not Steve but I can tell you what I have ran into. I am going on my third appeal with getting SSD, and I am at the hearing stage. The private insurance disability company hired a third party called ALLSUP to get SSD for me. It does not cost me a dime except I will not ge
Ok thank's for the response. i'll try to contact them and keep you up
to date
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
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I have to totally agree with what everyone else has said. Go to a major clinic before getting that BMT. Hang in there and keep us updated.
Terry
On 9/13/06, anjana <[EMAIL PROTECTED]> wrote:
Dear Germaine,As Trey has pointed out, what is the evidence of the secondchromosomal abnormality? Is it
Oh Katy,
I know that has to suck! Any idea where you might have gotten them? Hope you get over them soon,
Terry
On 9/13/06, anjana <[EMAIL PROTECTED]> wrote:
Dear Katy,I am so sorry you have mumps. I had it when a child and it waspainful. Having these diseases when an adult is even worse. R
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