Re: [CMLHope] face

2010-05-18 Thread Myvety2k
Marcie and Don, I have had the same problems from day one. Started Gleevec on Feb. 5th, 2000. I have my glasses tented dark. My wife doesn't even know what I look like. (smile). Greenie from Chesterton, IN. Club member Number 48 In a message dated 5/18/2010 11:35:48 A.M. Central Dayl

Re: [CMLHope] Re: Question about Tasigna

2010-05-18 Thread TEDBDD
SusanI have been on various CML drugs for the past year and a half. I , too have noticed more tooth decay. My dentist prescribed a higher strength Fluoride toothpaste that he says should help. He suggests that my problem may be just the age of some of my crowns. Tom in KY Tom Dunham,

Re: [CMLHope] face

2010-05-18 Thread ICANDOALLTTC
My eyes were so swollen I couldn't recognize myself in the morning hehe. when I was Gleevec. Not so bad now that I am on Sprycel. Try cool compresses in the morning. Good luck, Jeanie<3 In a message dated 5/18/2010 9:35:46 A.M. Pacific Daylight Time, margoo...@aol.com writes: Hi Don: I

Re: [CMLHope] face

2010-05-18 Thread margood18
Hi Don: I was diagnosed in March '09 and started on 400 mg Gleevec. In March '10 I was bumped up to 600 mg Gleevec. My swollen eyes have stayed with me throughout. I find that if I watch my salt intake that does make a bit of a difference. However there are days when I am very careful wit

[CMLHope] face

2010-05-18 Thread Donald Donofrio
My wife has been getting up in the morning and her face is swollen and her eyes almost shut.  Do any of you have the same problem or an answer.  Thanks.  Don Don Donofrio -- [CMLHope] A support group of http://cmlhope.com - You received this mes

[CMLHope] Re: Question about Tasigna

2010-05-18 Thread Suzieq
I have a friend out in Nevada who alerted me to the problem with Gleevec affecting teeth. They have a member of their church who was on Gleevec about a year or more and his teeth started to crumble. She said he was taken off of Gleevec, but did not say what he went on. I've been taking Gleevec

Re: [CMLHope] Re: Question about Tasigna

2010-05-18 Thread Tina Cohen
I was on Gleevec for 3 1/2 years and then Sprycel for about 2years, I have never been to the dentist in my entire life (23years) until just this month and only have one cavity cause by my wisdome tooh. The cavity was so small that I didnt even need any Novocaine to numb it. So with that being said,

Re: [CMLHope] Re: Question about Tasigna

2010-05-18 Thread lblaine767
I was on Gleevec for two years and had several issues with my teeth. I had several teeth that started to crumble...I went to the dentist several times and they gave me special fluoride tooth paste to use at home, but it did not seem to help. It was not long after that my onc put me on Sprycel be

[CMLHope] Re: Question about Tasigna

2010-05-18 Thread Bob
Suzan, I'm on Gleevec (4yr) and have noticed a definite change in the health of my teeth. Since all of the CML drugs are similar kinase inhibitors, it would not be surprising if they shared that kind of side effect. My onc doesn't think it's related, but it sometimes takes a while for these kind

[CMLHope] cavities

2010-05-18 Thread NChando
I have been on Tasigna for two years. I go to the dentist twice a year and have not had a cavity in the time I've been on Tasigna. Please keep us posted on your progress, and if you find out that Tasigna has had anything to do with your problem. Thanks! Nancy in NY -- [CMLHope] A support