Hi there,
I was just diagnosed with CML in Oct 2012. Was put on hydroxyurea
initially, but am now on Gleevec. My white counts are now at the low end
of normal (4.8), but my platelets remain high. Anyone else experience
this? Is this normal with CML?
Also have been experiencing excruciati
I was diagnosed with CML in Oct 2012. It was funny, I thought what I was
feeling was stress related due to my job and/or perhaps early onset of the
change of life. Symptoms were extreme fatigue, waking up tired after a
full nights sleep, night sweats and fever, weight loss and discomfort when
Hi,
Sorry to know about the CML diagnosis.
I was diagnosed at March 2012. I am also on imatinib. I too faced pain
initially. Now I dont have body pain.
I am not sure about the counts. Please check with your onco about the
counts. Hope you will find comfortable soon.
regards,
Ragavan
On Sun, Ma
Hello
I was on Gleevec from 2001 until September of last year. Bone pain will
subside. Supposedly that is the gleevec working. Cramps did not subside. The
doc told me to up water and potassium but it was touch and go. It gets better
the lower the dose. I started at 800 per day down 2 400 5 years
I was diagnosed March '09 and put on 400 mg. One year later, it was bumped to
600 which is where I still stand. Regretfully, the bone pain and charlie
horses are part of the package. My doctor said it was OK for me to try
salonpas, pain patches, and they have been helpful for my back, hip an
Dear Newly Diagnosed:
The side effects you’re describing are pretty common. They are caused
both by CML and treatment. What is important to know is that the
longer you are in treatment the more the side effects will diminish,
and there are many things that you can do right now to mitigate the
sid
Hi newbie, I was Dxed in April of 1997 I was put on interferon until Gleevec
came along in 2001 was in remission April of 2002. Been on gleevec ever since,
I experienced the cramping and sometimes still do. I found if I drank Tonic
water before going to bed and again if cramps came during the ni
And hi right back at you. You didn't leave your actual name so I don't know
who to address this to.
All of what your now going through is what initially happens when your
first diagnosed with CML and then put onto a TKI which Gleevec is one of.
Some of the symptoms that you are experiencing may ge
To Mylissal:
Try quinine tablets, they cured my problem when I had severe cramping in my
legs while on gleevec. Take as directed.
Best wishes,
Susan Zimmerman
From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf
Of Gopalsamy Ragavan
Sent: Sunday, March 10, 2013 10
Hi Mylissal:
I responded to your first e-mail in a quick fashion about the quinine. I
also had pain in my bones while taking gleevec. The extreme cramping was
really debilitating, so the quinine helped. I did take advil, which is
naproxen sodium, as the doc said that was much better than Tyl
I get some bone pain, dropped a bar of soap on my right foot, behind my
little toe three years ago. Have had x-rays, MRI, etc. and they can't find
anything wrong. Been to two different doctors and same story, sorry for you
pain. I just live with it. As for cramps in the legs, if you star
I have had almost all of your problems, plus a view extra. Very watery
eyes and blurred vision. Drink lots of water that will help somewhat. I get
cramps the same, fingers, hands, feet, legs, cramps in muscles I didn't know
I had. Throw a bar of dial soap between the sheets for the legs t
Hi Marcie, it's greenie. The bar of soap does work, one thing I might add
is to each time the soap you take a bath or shower starts to get to small
to use exchange the one between the sheets with a new one and you the old
one that you were using for the cramps.
In a message dated 3/10/20
All suggestions all all tried and proven aids. However, I take 325mg
asprin daily for a blood thinner, Statin drugs, and Advil for the aches and
pain. tylenol is a big no'no. I was diagnosed in 2003 and spent 5 years
on gleveec. Statin drugs, tylenol, and gleevec put stress on the liver, so
Hi there,
I want to thank everyone for all the kind responses and helpful
suggestions. I can't tell you how much it means to hear that there is a
light at the end of the tunnel, I just need to be patient to get there. I
will absolutely try the dial soap trick and the tonic water to help with
Hi Mylissa -
We're all glad to be of help.
Wanted to give you contact info for the CML Society of Canada. The
website is http://cmlsociety.org/ and the toll free number is
1-866-931-5165.
Take care,
Pat
On Mar 10, 5:42 pm, mylis...@yahoo.ca wrote:
> Hi there,
>
> I want to thank everyone for all t
Thanks Pat - I appreciate it
From: Pat
To: CMLHope
Sent: Sunday, March 10, 2013 9:00:12 PM
Subject: [CMLHope] Re: Thankyou
Hi Mylissa -
We're all glad to be of help.
Wanted to give you contact info for the CML Society of Canada. The
website is http://cmlsocie
Hi Mylissa,
Warm regards.
This group has people across the globe. :) Like Mini Europe in Belgium,
this group is mini world. :)
The initial days look tougher. It will be one year for me by end of March
after CML diagnosis. It was a long journey to this situation.
Confidence and passion towards l
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