WOW! Just read todays posts. I am praying for the group. I will add my
problem to the list. Dec. 30 I contacted ONC about gaining 9.5 pounds
water weight in 20 days after restarting Gleevec. His nurse called that he
was out of the country on vacation with his family. She checked with the
Dear Sherri,
Yes, you are a fighter and it takes one to know one. I pray that everything
turns out well for you.
And you are correct that all of the radiation and chemotherapy did destroy
both of my kidneys. It has been over 25 years that I had my BMT. It took
many years for my kidneys to fail an
Hi Jeanie,
You know that I am praying for you.
18's times two for you.
Marty
On Thu, Jan 8, 2015 at 1:21 PM, 'Icandoallttc' via CMLHope <
cmlhope@googlegroups.com> wrote:
> Just got back from Moffitt. All counts were up and uremic acid was high.
> Dr took me off sprycel and put me on Hydrea,
Jeannie,
so many good wishes being sent your way..so much love..hopeyou can drink it in
while you are resting..sorry you feel crappy. I am hoping you will feel a bit
better soon. Hydrea- adjusting to new meds..coming down off one and starting
right up on another...is very hard on the system.
Many thanks to all.
Jeanie❤️
Sent from my iPhone
> On Jan 8, 2015, at 3:51 PM, gfrankli wrote:
>
> Prayers and healing thoughts
>
>
> Sent from Samsung Mobile.
>
>
> Original message
> From: 'Icandoallttc' via CMLHope
> Date:08/01/2015 1:21 PM (GMT-05:00)
> To: cmlho
Thanks so much Beth --was wondering how you were.
Glad you are getting the help you need.
A little down this evening but will get better soon.
I feel like I'm back 11 years ago when first dx.
Thanks for everyone's prayers as I pray for all.
Blessings
Jeanie❤️
Sent from my iPhone
> On Jan 8
Dear Jeannie,
I am so deeply sorry to hear about your news. I am and will continue to say
lots of prayers and send healing and peaceful energy your way. Stay positive
Jeannie. I imagine how scary this is, but I trust that Moffit can figure it our
with you and create a plan that will help. Kee
Prayers and healing thoughts
Sent from Samsung Mobile.
Original message From: 'Icandoallttc' via
CMLHope Date:08/01/2015 1:21 PM
(GMT-05:00) To: cmlhope@googlegroups.com Subject:
[CMLHope] Bad need
Just got back from Moffitt. All counts were up and uremic acid was h
Yes you are right.
Thanks Greenie.
Test and wait.
I forgot to get a copy if my blood work. I'll post counts when I get them. I
believe he said WBC were 700,000.
Time will tell.
Seems strange to be back on Hydrea.
Blessings Jeanie
Sent from my iPhone
> On Jan 8, 2015, at 1:58 PM, Myvety2k
Thanks Susan.
Yes always.
Blessings
Jeanie
Sent from my iPhone
> On Jan 8, 2015, at 2:00 PM, "'Susan Zimmerman' via CMLHope"
> wrote:
>
> Jeanie,
>
> Thinking about you and lifting you in prayer. God's got it in control, let
> your faith kick in and be restful..
>
> Love and 18's,
Jeanie,
Thinking about you and lifting you in prayer. God's got it in control, let
your faith kick in and be restful..
Love and 18's,
Susan
-Original Message-
From: Tracie Camlin
To: cmlhope
Sent: Thu, Jan 8, 2015 1:23 pm
Subject: Re: [CMLHope] Bad need
Sending you prayers!
Jeanie, Don't think bad news, think Good news. Their's always up's and
down's with CML. Been their done that. Their's nothing worst then worry.
greenie
In a message dated 1/8/2015 1:22:00 P.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Just got back from Moffitt. All c
Hang in there warrior💕
Jeanie❤️
Sent from my iPhone
> On Jan 8, 2015, at 1:31 PM, sherri swanson
> wrote:
>
> Hi Marty,
>
> The doctors are trying to treat the different illnesses that are included in
> my condition. There are so many and they do so many different things, that I
> am happy
Hi Marty,
The doctors are trying to treat the different illnesses that are included
in my condition. There are so many and they do so many different things,
that I am happy just to to be here. I agree that as we get older there are
some unusual things that that find us. But in the long run, we all
Thanks Tracy
I has been so tired lately. I knew something was wrong.
Blessings
Jeanie🐟
Sent from my iPhone
> On Jan 8, 2015, at 1:23 PM, Tracie Camlin wrote:
>
> Sending you prayers!
>
>> On Jan 8, 2015 12:21 PM, "'Icandoallttc' via CMLHope"
>> wrote:
>> Just got back from Moffitt. All cou
Thanks Marcie. You too!!
Jeanie🐟
Sent from my iPhone
> On Jan 8, 2015, at 1:23 PM, margood18 via CMLHope
> wrote:
>
> Jeanie:
>
> So sorry to hear about your issues. Thoughts, prayers and hugs being sent
> your way.
>
> Marcie
>
>
> -Original Message-
> From: 'Icandoallttc' via C
Jeanie:
So sorry to hear about your issues. Thoughts, prayers and hugs being sent your
way.
Marcie
-Original Message-
From: 'Icandoallttc' via CMLHope
To: cmlhope
Sent: Thu, Jan 8, 2015 1:21 pm
Subject: [CMLHope] Bad need
Just got back from Moffitt. All counts were up and ure
Sending you prayers!
On Jan 8, 2015 12:21 PM, "'Icandoallttc' via CMLHope" <
cmlhope@googlegroups.com> wrote:
> Just got back from Moffitt. All counts were up and uremic acid was high.
> Dr took me off sprycel and put me on Hydrea, and other drugs. Took
> another blood test for mutant. Will kno
Just got back from Moffitt. All counts were up and uremic acid was high.
Dr took me off sprycel and put me on Hydrea, and other drugs. Took another
blood test for mutant. Will know next week if mutant is problem.
Pray for me and all in need.
Jeanie🐟
Sent from my iPhone
> On Jan 8, 2015, at
Hi again Sherri,
Hopefully you will be able to be treated for this condition. It seems that
as most of us get older we start suffering from some very unusual things,
but that is the price we must pay to remain alive. We just have to do
whatever we can to keep on going because we have no other choi
Hi Marty,
Happy New Year. I hope you are well. Thanks for the research I enjoyed
article. I could only wish it was as simple as being as side effect of my
TKI. In my case, nothing is ever simple LOL. What I have is called
Autonomic Neuropathy. Basically, my Autonomic Nervous System has
malfuncti
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