Re: [CMLHope] Dr. Druker and Marty

2015-02-26 Thread Joyce Mesnarich
I may have missed a post, but are we sure that Marty indeed got his new kidney? I'm still praying that he did and that things are going well. Joyce in IL On Feb 26, 2015, at 9:28 PM, 'Susan Rosenthal' via CMLHope wrote: Susan: I do not remember meeting you or Sharon. However, I

Re: [CMLHope] Doctor's Visit

2015-02-26 Thread 'Marcie Goodman' via CMLHope
Hi Beth, I think Marty had the transplant and I'm praying all is going well for him. How are you feeling? You are such a positive, joyful person and I always look forward to your posts. Best wishes, Marcie Sent from my iPad On Feb 26, 2015, at 5:01 AM, sherri swanson

Re: [CMLHope] Doctor's Visit

2015-02-26 Thread bkbarney via CMLHope
HI all, I agree with Marcie, and Sherri. I think the kidney was a match or we would have heard...so lets all keep sending up lots of prayers and light and joy and laughter to our favorite 18s man...he's been through a lot waiting for this kidney and these things are not easy..but he is a

Re: [CMLHope] Doctor's Visit

2015-02-26 Thread 'Susan Zimmerman' via CMLHope
So happy for you, Richard!!! Fuzzy vision is weird, never had that myself.but those leg and foot cramps, yeah! Now with my bosulif and only on 100 mg, virtually no side effects. Your turn will come, I'm sure of it. Either they'll find a real cure or you'll get to bosulif eventually.

Re: [CMLHope] Doctor's Visit

2015-02-26 Thread 'Icandoallttc' via CMLHope
Hi all Got my blood results and check up today. Everything is good. Got some bad side effects from ponatinib. Vision problems and headaches the worst. Rough dry skin on thighs and some skin peeling. Just finished my 30 day supply of meds. No joint pain or cramps. Praying for

Re: [CMLHope] Doctor's Visit

2015-02-26 Thread sherri swanson
Hi Beth, I was think the same thing you were. I've been sending all the good thoughts I could find to Marty and since we've not heard from him, it must have been a match. Let's just keep praying that the kidney was a match and everything goes well. He is such a wonderful person. Have a good day.

[CMLHope] Dr. Druker and Marty

2015-02-26 Thread 'Susan Rosenthal' via CMLHope
Susan: I do not remember meeting you or Sharon. However, I was chosen by the LLS to introduce him…I thought that was a real honor. He is as awesome as you saw him as he is a doctor. Every having CML does indeed have their own story to tell, that is for sure. Hugs, Susan