RE: [CMLHope] Dual Diagnosis: CLL/ CML

2015-04-03 Thread David Bradley
Dear Susan, Thanks for the tip! My wife is a connoisseur of such baths, as am I. Yes, we all came into this world for better or for worse, and we learn to ride the ups and downs. Wishing you strength and peace... David Date: Fri, 3 Apr 2015 20:56:41 -0400 From: cmlhope@googlegroups.com T

Re: [CMLHope] Dual Diagnosis: CLL/ CML

2015-04-03 Thread 'Susan Zimmerman' via CMLHope
Dear David, Dealing with two issues has happened to several of us, but usually not two types of leukemia! You are very special to decide to keep fighting on this. What choice do we really have? It's a win-win, if we leave this earth we go to a better place forever, or if we stay here longer

RE: [CMLHope] Dual Diagnosis: CLL/ CML

2015-04-03 Thread David Bradley
Dear Joyce, Actually, God and I are in this for the duration and I (fortunately) don't see that there are many alternatives to that. I only wish that when my appetite goes bad, and I am feeling detached from the things that once might have led me astray, that it would automatically create lots

RE: [CMLHope] Dual Diagnosis: CLL/ CML

2015-04-03 Thread David Bradley
Dear Beth, You're right: it can take a while until the two TKI's learn to play nicely together. I am so deeply indebted to Gleevec for giving me many good years. I can hardly complain if there is some static when I add a second agent. Further, I am deeply indebted to my fellow Americans who, t

Re: [CMLHope] Today's Test

2015-04-03 Thread bkbarney via CMLHope
Awesome news Richard. Iron can be tended too sounds like you are doing overall much better...What a gift before the holiday. And spring is springing Stay well. Positive and strong.. Beth -Original Message- From: Joyce Mesnarich To: cmlhope Sent: Fri, Apr 3, 2015 12:20 am

Re: [CMLHope] Dual Diagnosis: CLL/ CML

2015-04-03 Thread Joyce Mesnarich
David, The Bible tells us that God will not give us more than we can handle, but I think you are coming close. So sorry you have to deal with two blood problems at the same time. I see you live in Northern Michigan. Have you considered seeing Dr Talpaz in Ann Arbor at the University of Michig

Re: [CMLHope] Dual Diagnosis: CLL/ CML

2015-04-03 Thread bkbarney via CMLHope
Dear David, Thanks for your update. You are a brave soul. I am sorry you have had such a time getting on the meds for CLL. It seems that our initial experiences can be hard until we get settled into the routine, dosages etc..that work best for us. Still, two TKI's at once. Wow. It's good to f

RE: [CMLHope] Dual Diagnosis: CLL/ CML

2015-04-03 Thread David Bradley
Thank you, Giora. You are very kind. I guess we are all fighting the bad mutations. Best of luck in your struggle! Date: Fri, 3 Apr 2015 17:12:12 +0300 From: gio...@inter.net.il Subject: Re: [CMLHope] Dual Diagnosis: CLL/ CML To: cmlhope@googlegroups.com Dear DavidYou are a special brave pers

Re: [CMLHope] Dual Diagnosis: CLL/ CML

2015-04-03 Thread גיורא
Dear David You are a special brave person and i wish you all the best and great success on your dual fight. You are the only person i have heard of that is on both Ibrutinib and Imatinib at the same time My best regards Giora נשלח מה-iPhone שלי ‫ב-3 באפר׳ 2015, בשעה 16:51, ‏‏David Bradley ‏ כת

Re: [CMLHope] Dual Diagnosis: CLL/ CML

2015-04-03 Thread David Bradley
Thanks Beth! Time for another update. Based on my PCR that was negative for CML in December, and my looming CLL, I was taken off Gleevec, and started Imbruvica for my CLL, with the hope that the CML would remain dormant. There have been two slip-ups since then. The Imbruvica triggered a hear