Good luck John ! Sounds like you are still "tweeking" things...I am just happy
that this med works for you...keep us posted!!!
and wear shirts with pockets!!!
!8's Beth
-Original Message-
From: John Barrons
To: CML Hope
Sent: Wed, May 13, 2015 4:26 pm
Subject: [CMLHope] Ponatinib
Hi Jeanie and the group: I had my counts done today and after four weeks off,
my counts started to increase. So now I am on one 15mg of ponatinib a week. Two
pills a week really reduces my counts so we will see what one pill does. I will
see him again one week from today. Maybe I will just have
Hi Nick and Elizabeth, yes that is neat! I went through this when I was on
Gleevec and my hair did grow back. I take one day at a time and happy each day
I am given.
The ponatinib is a tiny little pill that you wouldn't think was big enough to
heal anything but my blood that was way off is al
Jeannie, sure understand the "foggy brain" symptoms with any CML RX. Hope your
hair regrows soon. Had a friend who said, "I went into the hospital with a
high fever and a serious illness. My hair was black. Then it fell out. When I
got well and left the hospital, my hair had grown back in an
Thankful to hear you had good medical treatment which could relieve such pain!
Hope you're getting stronger and feeling much better now, Marty. Elizabeth &
Nick
On Monday, May 11, 2015 5:16 AM, "cmlhope@googlegroups.com"
wrote:
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