Thanks, Jeanie. Yes, they are checking for mutations. I'm actually hoping my
tests come back with lower numbers, as I feel more energized than I did several
months ago. Thank goodness for the new drugs!
Sent from my iPad
> On Jun 6, 2015, at 1:25 PM, 'Icandoallttc' via CMLHope
> wrote:
>
> H
I agree. You are always here uplifting us and giving good advice. ❤️❤️
Prayers & Blessings Jeanie 🐟🐟18,s
Dx 1/2004
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib January 2015
> On Jun 6, 2015, at 11:16 AM, "'Marcie Goodman' via CMLHope"
> wrote:
>
>
Have them check for mutations. Gleevec quit working for me after 5 years. I
had a mutation. Tasigna never worked for me and was put on sprycel. Sprycel
worked for about 5 years and had another mutation. I am now on ponatinib. 6
months into treatment. Good luck.
Prayers & Blessings Jeanie 🐟
Sorry for typos on 1st email. "On Gleevec" and 600 mg! Chemo Brain.
Sent from my iPhone
> On Jun 6, 2015, at 11:14 AM, 'Marcie Goodman' via CMLHope
> wrote:
>
> Thanks, Beth and Jeanie. After 6 years o Gleevec, I've gone out of PCRU and
> the numbers are slowly climbing. They aren't high an
Beth, you are an angel. Marcie
Sent from my iPhone
> On Jun 6, 2015, at 12:16 AM, bkbarney via CMLHope
> wrote:
>
> Dear Angie,
>
> I am so sorry you are having such trouble with your counts...I feel for you
> and know the fear involved when people say to you " I don't know what to do
> wi
Thanks, Beth and Jeanie. After 6 years o Gleevec, I've gone out of PCRU and the
numbers are slowly climbing. They aren't high and I'm still considered to be in
MMR. If this test shows that they are still on the rise, it is likely I'll be
switched to
Tasigna or bumped up to 60 mg Gleevec. I've al
Beth, anyone ever tell you that your an angle? Well, I'm telling you!
18,s sweet and caring person that you are.
Marty
PS. He really saved your life because it was Bashert (meant to be). You as
well as I have a reason for our lives, and I am lucky enough to know
exactly what it is.
On Sat, Jun
Angie, I always want you to remember that you are your own best advocate.
No one will take your hand and lead you where you can lead yourself.
Make sure that you don't forget to contact these two doctors.
18's,
Marty
On Fri, Jun 5, 2015 at 10:39 PM, ANGELYN ESDERS wrote:
> Marty, thank you so
Dear Robert, at first I was perplexed by your question "
*Is the high cost of CML care "worth it"?" Then I read your post to the
bottom.*
*I'm sure you know no matter how much money is spent on keeping us alive is
a good investment. Twenty six years I was "an experiment" having a bone
marrow transp
Thank you for posting this link
http://www.cmleukemia.com/asco-2015---chicago.html> to the cmlhope site.
I zoomed in on the link to the article:
*Is the high cost of CML care "worth it"?
Which finished with the conclusion: ***
*Our findings showed that, despite high costs, CML care provided go
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