Re: [CMLHope] off Sprycel

Hi Joyce: if you go to drugs.com and type in name omacetaxine is well explained. It requires an injection twice a day, which I did. I was on it about two years. I have been 100% Phillies until I started ponatinib and this drug reduced my phone Phillies to about 50%. I am very sensitive to ponati

Re: [CMLHope] off Sprycel

John, When you were on sprycel did you get to PCRU? My husband was on sprycel for 3 years and then, just as you, had to go off because of pleural effusion. He was undetectable for 2 years and lost his PCRU in 2 months. He is now on bosulif.first 100 mg which was not working.then on 20

Re: [CMLHope] last Fridays test

Yeah Richard! sounds great!...and Martyso wonderful to hear your 71 year old young body is doing so well adjusting to the new kidneyyou are kicking azzas you would say..:) and Jeanie, Susan, et alChoi...keep hanging in there!!! 18's and love, Beth -Original Messag

Re: [CMLHope] last Fridays test

Marty your battles always uplift me. You are 70 years young to me. Only tasigna dropped my hemo low. Thanks for the info. ❤️❤️ Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On Jun 9, 2015, a

Re: [CMLHope] off Sprycel

Hi Choi Yes I developed mutants for gleevec tasigna and sprycel. I was recently put on ponatinib and it is supposed to be mutant resistant. He could talk to his onc about it. I am doing pretty good so far. Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna

Re: [CMLHope] last Fridays test

Yahoo Richard !!! Great news❤️❤️ Prayers & Blessings Jeanie 🐟🐟18,s Dx 1/2004 Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib January 2015 > On Jun 8, 2015, at 11:59 PM, Richard H wrote: > > Hemoglobin is climbing without the shot now at 12.4. YEAH!!!

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

oops, dont have my glasses on!!! it's very On Tue, Jun 9, 2015 at 9:53 AM, Maria Cashion wrote: > Richard, I am bery happy for you! > > Maria :) > > > On Tue, Jun 9, 2015 at 6:26 AM, wrote: > >> cmlhope@googlegroups.com >>

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 2 updates in 1 topic

Richard, I am bery happy for you! Maria :) On Tue, Jun 9, 2015 at 6:26 AM, wrote: > cmlhope@googlegroups.com > > Google > Groups >

Re: [CMLHope] last Fridays test

Hi Richard, Very good hemoglobin count! This tells me something. Your TKI is going it's job and your kidneys are working well. It is your kidneys that produce a hormone (can't remember the name of this hormone at the moment) that goes to your bone marrow to help promote hemoglobin and red blood cel

Re: [CMLHope] off Sprycel

Hi Choi I solid also mention that I have or had the mutation E355 Sent from my iPad > On Jun 9, 2015, at 6:47 AM, Choi wrote: > > Hi, this is Choi from South Korea. One of my CML friends had some problems > and I just wonder who had a similar experience. > > He was diagnosed with CML chronic

Re: [CMLHope] off Sprycel

Hi Choi I was on sprycel and to go off it because of pleural effusion. I then went on omacetaxine for a couple of years and finally am on ponatinib. I only take normally one pill a week it is a strong drug so I am off it for three weeks. John B Sent from my iPad > On Jun 9, 2015, at

Re: [CMLHope] off Sprycel

Hi Choi, Pleural Effusions are quite common to people that are using Sprycel sometimes even on low doses. Since he also has the E55G mutation he or you may want to get in touch with Dr. Brian Druker and Dr. Moshie Talpaz. Both of these doctors are the CML experts Dr. Druker was the one that made S

[CMLHope] off Sprycel

Hi, this is Choi from South Korea. One of my CML friends had some problems and I just wonder who had a similar experience. He was diagnosed with CML chronic phase on july 2012 and started Gleevec 400mg for 16 months and switched to Sprycel due to E355G mutation. At that time his PCR was 1.89.