[CMLHope] Sandy and Side effects

ust have to deal with it. > > May God Bless You, > > Sandy > > > From: Barb Stanley > To: CMLHope > Sent: Monday, July 27, 2009 9:45:59 AM > Subject: [CMLHope] Re: LOW ENERGY > > Sandy > The gleevec side effects were cyclic with me

[CMLHope] Re: LOW ENERGY

, all through my scalp and I am losing my hair. So my skin rash I had on both drugs has turned into this. It really does get frustrating. Every day we suffer with the side effects seems to remind me of my loss of health which seems to me to be depressing! I wish you the best. Barb Barb Stanley

[CMLHope] Sandy - blood counts

Sandy – I remember when I was diagnosed; I was so illiterate about the blood information! And I had such a need to know. I found this site that explains the counts, what they mean and how you interpret them. http://www.nlm.nih.gov/medlineplus/ency/article/003642.htm#What%20abnormal%20resu

[CMLHope] Oops! I forgot the most important site!!!

PROTECTED]   Check it out!!  Barb in AZ       Message: 25       Date: Sat, 17 Jun 2006 07:54:17 -0700    From: "Barb Stanley" <[EMAIL PROTECTED]> Subject: Good Reading and Information   Hi all,   I just posted on another list, some of the following. I thought with

[CMLHope] Chrissy - Good reading

Chrissy When I was diagnosed, I looked diligently for anything I could get my hands on to read. For me, I firmly believe that knowledge is power. I found the following that may prove interesting to you.  I found them all either on Amazon.com or at a Changing Hands bookstore.   Survivor

[CMLHope] Hard Muscles,pain and loss of mobility -Chrissy and Laura Rose

Hello Chrissy and Laura Rose,  I read your posts with great interest.  I have been on gleevec for 4 years the 11th of this month. I did not have any side effects that affected my leg or arm muscles until a year ago.  What you describe is exactly what I had. There were very few of us.  The

[CMLHope] Renee

Hi Renee You have a great response!   I am 55 and diagnosed May 5, 2002.  I had the same basic diagnosis, gleevec dosage and result you had.  Your tests show you PCRU – or undetectable!  What good news.  When I was first diagnosed, my oncologist sent me to City of Hope for the testing to

[CMLHope] Irene - no gleevec for a year?

Hello Irene, I am curious about your trial, the PR1 vaccine?  Could you tell me more about it?  And, what kind of side effects did you have that made you intolerant of gleevec?  I have recently been on a break from it for various things, but the most debilitating was painful muscles, join

[CMLHope] Rob -

Rob, Is there a way to get the complete article of this below – more than the abstract?  I registered with PUBMEDline and I still can’t get the full article.  This describes exactly what I have had the last year.  I would like to read more. Thanks for your help. Barb in AZ ==

[CMLHope] Breathing Difficulty

Mike and Cindy   Just a comment on the breathing difficulty: I had pretty severe water retention for the last 8 months. At Dr.Drucker’s advice, my oncologist has given me a gleevec break for a short time. In the week so far, the water retention has subsided, and the shortness of breath a

[CMLHope] vertigo - Penny

Hi Penny I had vertigo a couple of years ago.  I was in bed for three days unable to lift my head. I was nauseous and it took three days of meclazine before I could sit up. I am certain it was from gleevec.  My ears ring all the time with tinitus as well.  The vertigo left after 6 months or