Hi,
Son has been on Tasigna for approx 5 months. Had headaches first week
or two but none after that. Had rash and itchy scalp and also liver
enzymes increased so dose was halved and no side effects at all. I
think for some gradual increase of dosage is best to enable body to
adjust.
On Aug 14
This may not be relevant, but my son was diagnosed with CML when he
was 15 years of age. At the time, and even a couple of years prior to
diagnosis, we noticed his strength and height appeared below average.
As a competitive golfer he always seemed to be battling against
stronger and taller boys.
Hi Russell,
Thanks for posting your experience! Its great to hear from those of
you who have expereienced BMT.
My son is on Glivec and now trialling Tasigna but not sure whether it
will suit at this stage. He has
fearful view of BMT and the ONC steers away from it 'as last resort'
only. So its
Hi everyone Just wondering if any of you have experiences with
Tasigna??
Son (now aged 24) on Glivec for 7years, PCR has shown between 4% to 7%
cml cells over the last couple of years - pretty stable. However he
has just started Tasigna trial here as ONC thinks better response will
be achieved
Hi Jody,
My son diagnosed when turning 16 (7 years ago) now 23. Back then I
felt devastated however after he commenced Glivec and his blood became
normal (took about 9 months) we haven't looked back. I remember what
I was told by a nurse back then at diagnosisshe said "this day is
the worst
Hi Pat,
Just thought I'd share a little in case it helps. My son has always
suffered a little nausea with this drug and his appetite goes up and
down. One week he became ill and began vomiting., after which he was
continually nauseus for 10 days. He visited his local GP who thought
he had appe
Hi,
Hang in there! My son commenced glivec when he was 16 - numbers
gradually went down and he achieved complete response approximately 1
year (may be a little longer) later. Hope your results are good but
even if they aren't perfect don't worry. If he's on a downward trend
he is responding!!
This is a question I have been asking since my son was diagnosed with
CML 6 years ago at age 15, and I'm sure its a question many of us
dwell upon. He is on Glivec (400mg) a day with a few mild side
effects (little nausea, cramping, etc), but in full remission now for
5 years. 6 years ago he was
Hi there,
Gleevec is a wonderful drug. My son was diagnosed 51/2 years ago.
Gleevec was not yet on the PBL in Australia and his first course of
treatment was interferon (daily injection) coupled with a drug hydrea.
The treatment had powerful flu like side effects and a few weeks later
his oncolog
Hi all,
Haven't posted in a while - but was wondering what your thoughts are on
immunisation?
My son 21, in remission on glivec, hasn't been immunised for Hep C, or
meningococcal.
He leads a normal life just a little fatigued but working full time.
His specialist says as immune system is normal i
Hi Tena,
My son was diagnosed at 15 and is now 20 years of age and on 400mg
gleevec a day. He is in remission and remains so to date.
I too was interested in pursuing a cure, feeling I'd like to have this
disease eradicated once and for all. At the time of his diagnosis, at
age 15 we learnt a
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