Re: [CMLHope] Hi Shaun question

Please remove my wife from your group Please, she too is gone. Our daughter plays with her phone she does not to see these posts! I beg you please remove her Sent from my iPhone > On Dec 31, 2018, at 12:23 AM, Marty Gartenberg wrote: > > Hi Jeanie - > > I miss him every day. I'm

Re: [CMLHope] 39 years with cml

I'm into my 3rd yr with cml/ph. I'm doing well. Took a few meds to find one that did the job with side effects I can live with. But I've been obsessed with the why/how this happened. From 2004 to about 2013 I've had many surgeries that required dozens of blood transfusions. Anyone else been

Re: [CMLHope] Fatigue side effect nilotinib

I hear you!!! I had the fatigue the whole time I was on the drug. When I changed drugs because of the multitude of side effects I had the fatigue lessened dramatically. I'm on gleevec 200mg daily and while I'm not considered in remission I feel s much better I'll take the #'s I got and run

Re: [CMLHope] Pictures

take my risks. Maybe it would be a good idea to talk once again with > your doctors (dermatologist,hematologistic, gynecologist). > best wishes > thinking of you > C. > > > 2016-05-31 4:27 GMT+03:00 kathy walls <cand...@originalsbykate.com>: >> I'm still a newbi

Re: [CMLHope] Pictures

> Which ever way it is has your doctor suggested that you should try another > TKI? and how long are you using Tasigna? > > 18's, > > Marty > >> On Tue, May 31, 2016 at 8:41 AM, kathy walls <cand...@originalsbykate.com> >> wrote: >> On the tasign

Re: [CMLHope] Pictures

> have not taken any, and also is your doctor a CML specialist? > > There is a lot to think about, trust me you will learn to ask questions. > Remember the more ask the more that you will learn. > > Glad to see that your sporting the 18's > > 18's to you as well. >

Re: [CMLHope] Pictures

I'm still a newbie was diagnosed 1/9 and started tasigna on the 23rd, oh yeah I'm lucky enough to have the ph chromosome to boot. I stopped tasigna in December because of horrible side effects, I got an awful rash and cysts. Switched to Gleevev and I feel much better, but did dr said at this

Re: [CMLHope] The wounded Soldier

Marty Have you heard about one have had mega blood transfusions getting CML? Since 2005 I have over 25 transfusions due to sever blood loss during sugeries? Happy to say now I'm at 0.04 Can I get a Zevia ### Sent from my iPhone > On May 21, 2016, at 12:04 PM, Marty Gartenberg

Re: [CMLHope] ZAVIE ZERO CLUB NUMBER

If someone is updating/adding to list I am Kathy Walls , husband Gil from Wilmington DE 5 visible after 14 mo first on tasigna 400mg now on gleevec 200 mg doing ok enlarged spleen 4/16 Sent from my iPhone > On Apr 1, 2016, at 5:38 AM, Marty Gartenberg <wa2...@gmail.com> wrote: >

Re: [CMLHope] To Susan Zimmerman

Hi all, I am real new to the CML world only 14 months out from diagnosis. I have learned a lot from reading posts here. It's been helpful. My dr is a CML dr and I've had very good results medicine wise but he has no answers for side effects Specially bad acne break outs. All he says it's

Re: [CMLHope] Am I strong? Are we all strong? Read on...

Today is my 1 yr anniversary of being diagnosed with CML, I'm here but not happily. So many side effects. Makes you wonder if it's worth it Sent from my iPhone > On Jan 16, 2016, at 12:23 AM, Pete Pabon wrote: > > Diagnosed 1999 > Gleevec 2000 > 15 years still no phillies

Re: [CMLHope] Re: Merry Christmas and happy Hilidays

I got actual red pimples that would hurt. I had to go back to my dermatolgst I saw as a teen. Finally changed to gleevec Sent from my iPhon > On Dec 30, 2015, at 3:34 PM, 'Icandoallttc' via CMLHope > wrote: > > Yes I have had the red flushing with all the tkis. Just