Re: [CMLHope] 3 months off Gleevec

2018-01-25 Thread Jamie Tufariello
On Saturday, September 2, 2017, nycotb176 wrote: > Going on 16 yrs on 400 gm of Gleevec, when I was diagnosed with > sclerosis of the Liver. My Oncologist at Moffitt Cancer Center lowered my > dosage to 200. After a year, I was still in remission.No Philadelphia Bug >

Re: [CMLHope] 3 months off Gleevec

2017-09-05 Thread 'Jeanie' via CMLHope
So happy for you. Hope I can get the same results. You are such an inspiration to me so keep up the good work. Love you so very much My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib

Re: [CMLHope] 3 months off Gleevec

2017-09-05 Thread 'Jeanie' via CMLHope
Thanks for all Marty The humming bird picture was so beautiful. My sister has humming birds in her yard in the Smokie mountains where she has a summer cottage. I've never had them here but I love them. Looks like a hurricane might be headed our way. Pray for all. I have cut back on my

Re: [CMLHope] 3 months off Gleevec

2017-09-05 Thread bkbarney via CMLHope
! Love to all. 18's Beth -Original Message- From: Tony Lanoue <tonylan...@hotmail.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Sun, Sep 3, 2017 12:39 pm Subject: Re: [CMLHope] 3 months off Gleevec That's great Susan, maybe I gave up too soon! That's good to kno

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread Marty Gartenberg
I will Skype you when i can I was up in PA and fell and fractured my knee and my tibia and in a wheelchair now and back in Florida Marty On Sun, Sep 3, 2017 at 1:41 PM, Tony Lanoue wrote: > Thx Marty! Give me a shout sometime via Skype, it's been a while! > > Sent from

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread Tony Lanoue
Thx Marty! Give me a shout sometime via Skype, it's been a while! Sent from my iPhone On Sep 3, 2017, at 11:38 AM, 'Susan Rosenthal' via CMLHope > wrote: Tony: This Oct. 2, 2017, I will have been off Gleevec for two years. So far,

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread Tony Lanoue
That's great Susan, maybe I gave up too soon! That's good to know when I try going off Sprycel if my numbers come up a little bit I will try to ride it out and see if they start coming back down, thanks so much for the info! Sent from my iPhone On Sep 3, 2017, at 11:38 AM, 'Susan Rosenthal'

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread 'Susan Rosenthal' via CMLHope
Tony: This Oct. 2, 2017, I will have been off Gleevec for two years. So far, I've remained undetectable-had on blip February 2015, but Dr. Druker assured me that happens about 4 months out and that the next month would show undetectable again. Been undetectable since just like he said Had

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread Marty Gartenberg
You know what Tony, i have known you for a long time and the one thing that always impress me is that your always on top of things and being so is that your mind will treat your body in a very helpful way. No question about that. You'll see. 18's, Marty PS still recovering from a fractured

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread Pete Pabon
Every two months From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> Sent: Sunday, September 3, 2017 8:07 AM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] 3 months off Gleevec How often are u getting tested. Thanks. My Motto: Faith and Pills Wit

Re: [CMLHope] 3 months off Gleevec

2017-09-03 Thread 'Jeanie' via CMLHope
How often are u getting tested. Thanks. My Motto: Faith and Pills With Love 18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 2, 2017, at 3:58 PM, nycotb176

Re: [CMLHope] 3 months off Gleevec

2017-09-02 Thread Tony Lanoue
I just read last week on one of the Facebook groups that somebody has been off Gleevec for two years now and their counter remain stable. I am your other hand tried going off last year and my counts started coming back up. So this year I switched to Sprycel, going to stay on the Sprycel for one

[CMLHope] 3 months off Gleevec

2017-09-02 Thread nycotb176
Going on 16 yrs on 400 gm of Gleevec, when I was diagnosed with sclerosis of the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to 200. After a year, I was still in remission.No Philadelphia Bug found in the last 15 yrs. Six months ago I was told I may be a candidate for a