Re: [CMLHope] CML Newbie

2013-03-13 Thread ICANDOALLTTC
Yes I was on Allopurinal as well for a while. I just remembered that when you posted. Finally taken off both when I went on Gleevec. In a message dated 3/10/2013 4:56:58 P.M. Eastern Daylight Time, wa2...@gmail.com writes: And hi right back at you. You didn't leave your actual name so I

Re: [CMLHope] CML Newbie

2013-03-13 Thread ICANDOALLTTC
The platelets will come down; it takes a while to get everything under control; I managed on Gleevec by planning and eating a large breakfast to take with my pills. It seemed like to took forever for them to come down. My doctor checked my blood every few days in the beginning. Don't eat an

Re: [CMLHope] CML Newbie

2013-03-10 Thread Myvety2k
I get some bone pain, dropped a bar of soap on my right foot, behind my little toe three years ago. Have had x-rays, MRI, etc. and they can't find anything wrong. Been to two different doctors and same story, sorry for you pain. I just live with it. As for cramps in the legs, if you star

RE: [CMLHope] CML Newbie

2013-03-10 Thread Susan Zimmerman
10:48 AM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] CML Newbie Hi, Sorry to know about the CML diagnosis. I was diagnosed at March 2012. I am also on imatinib. I too faced pain initially. Now I dont have body pain. I am not sure about the counts. Please check with your onco about the

Re: [CMLHope] CML Newbie

2013-03-10 Thread Marty Gartenberg
And hi right back at you. You didn't leave your actual name so I don't know who to address this to. All of what your now going through is what initially happens when your first diagnosed with CML and then put onto a TKI which Gleevec is one of. Some of the symptoms that you are experiencing may ge

Re: [CMLHope] CML Newbie

2013-03-10 Thread Gopalsamy Ragavan
Hi, Sorry to know about the CML diagnosis. I was diagnosed at March 2012. I am also on imatinib. I too faced pain initially. Now I dont have body pain. I am not sure about the counts. Please check with your onco about the counts. Hope you will find comfortable soon. regards, Ragavan On Sun, Ma

[CMLHope] CML Newbie

2013-03-10 Thread mylissal
Hi there, I was just diagnosed with CML in Oct 2012. Was put on hydroxyurea initially, but am now on Gleevec. My white counts are now at the low end of normal (4.8), but my platelets remain high. Anyone else experience this? Is this normal with CML? Also have been experiencing excruciati

[CMLHope] CML newbie

2007-05-30 Thread brooklyn bruiser
Well, I've just been diagnosed. Normally I'm a student of the Groucho Marx theory of joining things -"I wouldn't join any club that would have me as a member". Guess I have no choice in the matter this time. I'm taking the miracle drug (the big G) and doing all the right things (I hope!) to live w