Thanks Marty! Absolutely Beautiful presentation
Richard H.
On Friday, February 19, 2016 at 5:17:05 PM UTC-6, wa2yyx wrote:
>
> Oh Susan and everyone else, yes they will find a cure, I have no doubt
> about that.
>
> I want to pass something across to you as well as to everyone else, and it
>
Yes Judy,
I was off gleevec for over seven years after having brain bleeds (small strokes
because of the medicine.) i was tested every 3 mos. all that time. I stayed in
cellular remission but not in molecular remission. Long story but I pray
you get to stay off until they find a cure!!
W
Yes Judy. Congratulations on a successful year off TKI's. Yes a several
of us have had long vacations off the TKI's. Some of us were able to
maintain low counts for long periods of times after the counts were noticed
again and then went back on Gleevec. I am now at my 14 year mark and am on
Hello I for got my pass work so couldn get on cml I was on gleevec for I don't
rember how long ND MY DR SAIR I DIDN'T HAVE TO TAKE IT ANY MORE MY COUNTS HAD
BEEN GOOD AND NO SIGN OF THE CML I VE BEEN OFF IT FOR ABOUT YEAR NOW AND STILL
NO SIGN OF THE CML COUNTS STILL GOOD hAS ANY BODY HEARD OF
Hi Peg,
I don't want you to ever forget something. TWO NUMBERS 18's I always put
them at the end of any of my posts, and if you don't remember the their
meaning it is life.
I think that you must have remembered what I have gone through for this
past year and also from 26 years ago.
You know what
ent, so
> amazingtake good care and know that you are cared for and loved here...
>
> 18's, love and hugs,
> Beth
>
>
> -Original Message-
> From: Myvety2k via CMLHope
> To: cmlhope
> Sent: Tue, Feb 2, 2016 2:24 pm
> Subject: Re: [CMLHope]
rney via CMLHope
To: cmlhope
Sent: Tue, Feb 2, 2016 3:36 pm
Subject: Re: [CMLHope] Just wanted to check in with folks I remember
Thanks for the update Peg..I am glad that things sound a bit more stable
for you...I do understand about not wanting to share with others if your road
is hard
ubject: Re: [CMLHope] Just wanted to check in with folks I remember
Peg, that was my Aunt's name. Anyway, don't be a stranger. All of us that
have CML are in the same boat but taking different drugs. I've been on Gleevec
16 years 1 month, yes their are side effects but done th
Peg, that was my Aunt's name. Anyway, don't be a stranger. All of us
that have CML are in the same boat but taking different drugs. I've been on
Gleevec 16 years 1 month, yes their are side effects but done that I can't
handle. Cramps are the worse but I'm still here driving my wife craz
Hi all,
Thought I would check in today...it has been a while. I see lots of new
names, but still a few that I remember. I am now two years at zero
detectable on only 100mg of Tasigna daily...1/4th of the recommended
dosage. It got a bit rocky for a while, not from the CML, but along that
cou
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