Mr wife takes Gleevac. May started her 10th year. Don
Don Donofrio
--- On Tue, 11/4/08, John Penrose [EMAIL PROTECTED] wrote:
From: John Penrose [EMAIL PROTECTED]
Subject: [CMLHope] Re: !3 Yr Old Son Diagnosed in August
To: CMLHope@googlegroups.com
Date: Tuesday, November 4, 2008, 6:50 AM
Sandy,
My son Kevin is six and was diagnosed with CML in March. After six months
on Gleevec (9/29/2008) he has achieved Complete Cytogenetic Response (CCR)
and his PCR is 0.022. We're sticking with Gleevec.
You don't happen to live on Long Island, do you? Your story sounds very
similar to
Sandy,
My son Kevin is six and was diagnosed with CML in March. After six
months on Gleevec (9/29/2008) he has achieved Complete Cytogenetic
Response (CCR) and his PCR is 0.022. We're sticking with Gleevec.
You don't happen to live on Long Island, do you? Your story sounds
very similar to
Hi Sandy,
This is most likely the most difficult time of your life. Our son,
Adam, now 15, was diagnosed in March of 04. He was on Gleevec for
almost a year and had serious leg and arm pain for about a month. He
took 400mg (in capsule form) and once he got used to it he managed
fine. The
Hi Ricardo,
Thanks so much for your feedback...it is greatly appreciated!!
Just out of curiosity, does your son have a matched donor?
Thanks,
Sandy C
On Tue, Nov 4, 2008 at 4:53 AM, Ricardo Gadelha
[EMAIL PROTECTED]wrote:
Sandy,
Good morning from Brazil.
My son was diagnosed last year while
Hi Parichart,
Thanks so much for the info!
I am so glad to hear that your son is doing well on Gleevec. We have not
been told of the risk of slow growth with Gleevec, is this common?
Thanks,
SandyC
On Mon, Nov 3, 2008 at 8:19 PM, Parichart N. [EMAIL PROTECTED] wrote:
Hi Sandy,
My son is 12,
Sandy,
Good morning from Brazil.
My son was diagnosed last year while he was 17 yr old. It's not easy to live
with Gleevec but we have no option so far. He is doing ok with it. BMT is
very risky and if your son is doing ok with Gleevec, I think that you should
keep him on it.
Blessings,
Ricardo
Sandy,
In fact he doesn't have any donor. But even if he had, we do not go to BMT.
There are only 60% chance of survive and there are some cases that you have
to take gleevec after BMT or even worse, go to another BMT.
So, we are taking our chances with gleevec, and if one day it fails.. go to
Hi Sandy,
My son is 12, diagnosed CML when he was 9 still on Gleevec, and now doing
just fine (with no major side effects except the slow growth rate). He's the
only child we have - no sibling to donate BM for him, and, so far no perfect
match for BMT after almost 3 years of searching.
His
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