[CMLHope] Re: Need help with a decission

2007-06-29 Thread tlnadal
Livia, I did take a combination of Interferon and Gleevec (with Neupogen so my white counts would not "crash") for eight months with Dr. Mauro at OHSU. I started with only Gleevec when I was diagnosed in 2003. I did achieve my "zero" on PCR , but then my numbers started steadily rising. Rather t

[CMLHope] Re: Need help with a decission

2007-06-25 Thread Trey
Livia, Here is the summary report on the Phase I clinical trial of this vaccine you are considering: http://meeting.jco.org/cgi/content/abstract/24/18_suppl/6509?maxtoshow=&HITS=10&hits=10&RESULTFORMAT=&fulltext=vaccine+cml&searchid=1&FIRSTINDEX=0&volume=24&issue=18_suppl&resourcetype=HWCIT K562

[CMLHope] Re: Need help with a decission

2007-06-25 Thread anjana
Dear Livia, Since I see your doctor's name as the trial investigator, this may be the trial you are talking about. If so, Gleevec is given in both arms of the trial. One arm is Gleevec + Interferon + GMCSF and the other arm is Gleevec + vaccine. You can be randomized to either arm but I am s

[CMLHope] Re: Need help with a decission

2007-06-25 Thread anjana
Dear Livia, Please be assured you are doing well on 600mg Gleevec since your PCR is trending downwards, same with Roy and many Gleevec patients. Doctors wish to do immunotherapy via either Interferon or vaccines, build up your immune system so that one day you can take a break from Gleevec.

[CMLHope] Re: Need help with a decission

2007-06-25 Thread [EMAIL PROTECTED]
Hi Livia, I can understand your concern. I guess we keep on learning that until we ask the questions we will never know the answers - so unless you ask what your counts are - well It is good that your PCR is trending down and has been doing so for the past year. I think Dr. Douglas Smith