[CMLHope] Re: Son has CML

2009-03-02 Thread Matt
Jody, I was dxed at the age of 29, and this past October i made my five years and have been doing great. Started 400mg Gleevec that day back in October 2003 and it has worked great. Minor side effects but compared with the other options it's no big deal. The first weeks were the hardest, but

[CMLHope] Re: Son has CML

2009-02-26 Thread Nox
Here is some information that could help put the diagnosis into context: http://ubb-lls.leukemia-lymphoma.org/ubb/Forum17/HTML/001519.html --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You

[CMLHope] Re: Son has CML

2009-02-26 Thread Trey
Here is some information that could help put the diagnosis into context: http://ubb-lls.leukemia-lymphoma.org/ubb/Forum17/HTML/001519.html --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com - You

[CMLHope] Re: Son has CML

2009-02-26 Thread mustardny
Hi Jody, ?? I remember how i felt when I was diagnosed with CML about 4 years ago I thought thaat my life was over.? My oncologist told me that if i was going to get leukemia that CML was the most treatable. I''ve been on Gleevec for almost four years I have a life and I'm enjoying it more

[CMLHope] Re: Son has CML

2009-02-26 Thread ICANDOALLTTC
Hi Jody, Yes, as CML WARRIROS we can all give you hope. Most of us have been fighting this CML for years now, and we are still fighting, praying and hoping. Where there is life, there is hope. Learn everything you can about your son's condition, get a good doctor, and have faith in him,

[CMLHope] Re: Son has CML

2009-02-26 Thread GB
Hi Jody, My son diagnosed when turning 16 (7 years ago) now 23. Back then I felt devastated however after he commenced Glivec and his blood became normal (took about 9 months) we haven't looked back. I remember what I was told by a nurse back then at diagnosisshe said this day is the worst

[CMLHope] Re: Son has CML

2009-02-25 Thread C.M. Houtz
Hi JodyIt is devastating to have a child with any disease, but there is lots of hope with CML. There are many drugs out there and other options, so I pray that one will work for him. I'm 69 and have been fighting this for 10 years. I am on one of the new drugs (Tasigna), and so far so

[CMLHope] Re: Son has CML

2009-02-25 Thread John Kuptz
Dear Jody, There is so much hope out there for CML. I was diagnosed 3 years ago and had some ups and downs until the correct meds and dosage was found. Usually the first line of defense is the Golden Bullet called Gleevec. I was told when first diagnosed if you have to have Leukemia CML is

[CMLHope] Re: Son has CML

2009-02-25 Thread Ricardo Gadelha
Dear Jody, Good night from Brazil. My son was diagnosed in may 2007 when he was 17. It was like visiting hell... I was more than devastated - really bad We had bad times with side effects and everything else. But now, he is doing good!!! he has a normal life with CML!!! your son can do the

[CMLHope] Re: Son has CML

2009-02-25 Thread John Penrose
Jody, My son was diagnosed almost a year ago, in late March 2008, when he was six years old. He went on Gleevec and is doing really well now! He plays team sports and has a normal life. He might be a bit over-scheduled in fact, and he keeps up with everything. We were devastated as well, and

[CMLHope] Re: Son has CML

2009-02-25 Thread Nox
Here is some information that may help put the diagnosis into perspective: http://ubb-lls.leukemia-lymphoma.org/ubb/Forum17/HTML/001519.html --~--~-~--~~~---~--~~ [CMLHope] A support group of http://cmlhope.com -

[CMLHope] Re: Son has CML

2009-02-25 Thread Rosemary Delaney
season he has CML. So there is always something to look at and say we will be just find. But I have to say I think my family had a harder time with my diagnosis than I did. I always knew everything would be just fine. Rosemary Date: Wed, 25 Feb 2009 22:32:12 -0300 Subject: [CMLHope] Re: Son

[CMLHope] Re: Son has CML

2009-02-25 Thread judy
Jody.  Hello I have had CML for 12 yrs.  I started on Gleevec about 6 yrs ago and I;am doing good.  With all the new pills he will to  JUDY  dx97 --- On Wed, 2/25/09, Jody jody0...@yahoo.com wrote: From: Jody jody0...@yahoo.com Subject: [CMLHope] Son has CML To: CMLHope CMLHope@googlegroups.com