Re: [CMLHope] Re: sprycel questions

2013-11-25 Thread rszim0702
answer for me than meds. Praying for your continued remission and all to go well for you. Blessings, Susan F. Zimmerman -Original Message- From: Richard H To: cmlhope Sent: Sun, Nov 24, 2013 11:41 pm Subject: [CMLHope] Re: sprycel questions Sorry to hear you are having problems

[CMLHope] Re: sprycel questions

2013-11-24 Thread Richard H
Sorry to hear you are having problems with the different TKIs. You have mot mentioned if you where ever undetectable. I was on and off Gleevec for 6 months proving the Gleevec was the cause low hmg counts and having have transfusions every 3 weeks. My ONC did his research and agreed I could g

[CMLHope] Re: Sprycel Questions

2006-12-14 Thread mburwen
Give it a couple of weeks to see if it settles down. If not, then maybe he can get on a Nilotinib trial. During last night's LLS teleconference, boths Drs. Druker and Shah enmphasized the need for patients willing to participate in these trials. My words of comfort are that it is very likely th

[CMLHope] Re: Sprycel Questions

2006-12-13 Thread PFOUNDO
Dear Deb, I started Sprycel beginning of October at 140mg daily. Within 15 days my WBC went from 67 thousand to 8.6 My Platelets went from 1 million 700 thousand down to 460 thousand. I also had mild swollen glands, and mild fatigue, but the biggest was the blistered hives which I had al