Welcome back!
On Tuesday, August 8, 2017 at 5:57:29 AM UTC-5, Ken wrote:
>
> Good morning everyone,
> I just discovered that this site is still active.
> I have been on Gleevec for 17 years with good results, but have had
> additional medical challenges.
> I was a member of the original partic
Thank you for the note. Regular blood work is ok. My onco thinks it's a blip.
Keeping figures crossed!!
Good luck and thanks for the reply..
Best Regards,
Rakesh Doshi (513) 205-7469
> On May 21, 2016, at 10:27 AM, 'Icandoallttc' via CMLHope
> wrote:
>
> Hi Raj
> I was in Gleevec for 5 years
Hi Raj
I was in Gleevec for 5 years and then it quit working for me. My platelets and
WBC shot up really high. I was put in Tasigna but it never worked for me. Then
I went in sprycel and it worked for a few years and put me in remission. It
quit working and again my platelets and WBC shot up. I
When I have never had a long response of 0.000 response. I was off
Gleevec for 6 1/2 years, when had to go back on Gleevec. I have actually
reduced Gleevec to 300mg because CML likes to to work on my blood. I run
from 0.000 to 0.00.3 on my Bcd-abl every 3-6 months. It is not being
called
Thank ypu so much for the information! Have a great day...
On Mar 19, 2014 1:24 AM, "ANGELYN ESDERS" wrote:
> I used to live on Gaviscon (an over-the-counter drug) for acid reflux. My
> dr. finally prescribed a daily pill call Pantoprazolemaybe 4 years
> ago. I NEVER EVER have acid reflux an
I used to live on Gaviscon (an over-the-counter drug) for acid reflux. My dr.
finally prescribed a daily pill call Pantoprazolemaybe 4 years ago. I NEVER
EVER have acid reflux anymore. I take 300mg of Gleevec daily, as well as
several other pills for various conditions. They are compatible.
way I am slowly getting
> back
> SkipD
>
>
>
>
>
> *From:* Marty Gartenberg
> *To:* cmlhope@googlegroups.com
> *Sent:* Tuesday, April 16, 2013 11:20:06 AM
> *Subject:* Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
>
>Hi Peg and everyone else
ive or is it that cml 2 and hope are just being quiet...
MARTY how are you feeling, I do hope your well. Anyway I am slowly getting
back
SkipD
From: Marty Gartenberg
To: cmlhope@googlegroups.com
Sent: Tuesday, April 16, 2013 11:20:06 AM
Subject: Re: [CMLHope] Re: Gleevec pat
Millie, Warm
regards, Beth. "18's as Marty has taught us!
-Original Message-
From: C.M. Houtz
To: cmlhope
Sent: Thu, May 16, 2013 3:50 pm
Subject: Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
Hi MartyI know that you're dealing with a lot
Hi MartyI know that you're dealing with a lot and that having dialysis
isn't easy. I went through that with a sister. She didn't watch her diet and
so it didn't work to well for her. I know that the diet alone is almost
impossible, but it is what it is. I can remember that green beans a
Hi Millie,
sorry it took so long to get back to you. Since I am on dialysis it is
sometimes difficult to do what I want. However we are both fighters so that
is what we know how to do. Even with all of your problems you are still
hanging in there and so am I.
As far as 18's well that is what we a
Hi Marty.I did have the scope into my stomach done, and other then minor
things, nothing showed up. I did, however, spend a couple of days in the
hospital as my blood thinner working overtime and I was bleeding
internallyalso I was completely dehydrated. The cause is still unknown ad
Hi Millie,
I'm just checking up on you. Did you get those tests done yet? I hope that
everything turned out well for you.
18's,
Marty
On Thu, Apr 18, 2013 at 2:02 PM, C.M. Houtz wrote:
> **
> *Hi Marty.It is good to see you one line. I will keep you in my
> prayers and pray that you hea
Remember Millie what I told you. Your mind is a very powerful tool. It
seems that your starting to use it with things that you seem to enjoy.
You also Beth. Both of you are survivors! Keep that in mind when you have
any problems that may be a bit difficult to deal with.
18's
Marty
On Fri, Ap
Thanks for the wonderful words. I printed them out and will do something with
them. I might just stitch them and then make a picture, or pillow to look at
and read. That way, I can share it with others and perhaps help someone. I
know that reading them helped me. I just wrote Beth, and hope
Great advice, Marty!
Angie in Canada
What lies behind us and what lies before us are tiny matters compared to what
lies within us
Angie
From: Marty Gartenberg
To: cmlhope@googlegroups.com
Sent: Friday, April 19, 2013 9:30:59 AM
Subject: Re: [CMLHope] Re
Hi Millie,
You just said something that shows me what type of a person you really are.
You said that you are working to make yourself feel better. Maybe not in
those exact words but the same idea. I would like to send you something
that was given to me when I had my bone marrow transplant. It was
Hi Marty.It is good to see you one line. I will keep you in my prayers and
pray that you hear something about a transplant soon. You are always such an
inspiration to all of us. No one keeps on top of things like you do. I've
been feeling sick for months now, and now they're going to sen
roblem
> with what I receive or is it that cml 2 and hope are just being quiet...
> MARTY how are you feeling, I do hope your well. Anyway I am slowly getting
> back
> SkipD
>
>
>
>
>
> *From:* Marty Gartenberg
> *To:* cmlhope@googlegroups.com
> *Sent:* Tuesday, A
>Sent: Tuesday, April 16, 2013 11:20:06 AM
>Subject: Re: [CMLHope] Re: Gleevec patent coming to an end in U.S. soon
>
>
>
>Hi Peg and everyone else.
>
>Just so you know, Novartis was sued by some people in India over the patent
>rights of Gleevec and they won the law s
Hi Peg and everyone else.
Just so you know, Novartis was sued by some people in India over the patent
rights of Gleevec and they won the law suit. Now, this means that India is
now allowed to use a generic drug instead of the original Gleevec.
So, with this said, Gleevec may just become a thing o
Hi All,
Been out of the loop for a while, but wanted to add my two cents to this
post about Gleevec patent. The end of the patent on any TKI is going to be
a mixed bag. While the development of a generic will dramatically bring
the cost down on that generic, it will pose a real problem for th
Despite what you may read elsewhere on the Internet, the Gleevec
patent is not coming to an end soon in the US. While the original
expiration date was May 28, 2013, Novartis was granted an extension to
Jan 4, 2015. And as noted earlier, there are other issues as well.
http://www.uspto.gov/patents/r
From: Richard H
Sent: Wednesday, February 06, 2013 6:03 AM
To: cmlhope@googlegroups.com
Cc: CMLHope@googlegroups.com
Subject: [CMLHope] Re: Gleevec Interactions
Gleevec was the drug that qualified me dental care with the VA. I have broken
teeth, root canals that resulted in brittle shells
Hi Richard, it's great that you get dental care; it is so expensive. I
cringe when the dentist says root canal. I have no dental insurance and it
has to come right out of my pocket; not good. So far I have most of my
teeth even though I have a lot of fillings from my youth. I've had one
Gleevec was the drug that qualified me dental care with the VA. I have
broken teeth, root canals that resulted in brittle shells that broke off at
the gums.
Richard H.
On Sunday, February 3, 2013 1:56:55 AM UTC-6, wa2yyx wrote:
> I did some research and here is what I found out about wha
Victoria:
I have not experienced the thinning eyebrows, but did with the front
of my hair.I use Nioxin Shampoo & Scalp Therapy (#3 or the Gold
lid) that's for "fine thinning hair". I don't seem to be losing it as
I did. Also, I now have very naturally curly hair (I use to pay big
bucks for
I did think of that Rebecca...:):)
Suzieq
--
[CMLHope]
A support group of http://cmlhope.com
-
You received this message because you are subscribed to the Google Groups
"CMLHope" group.
To post to this group, send email to CMLHope@googlegroup
You could just keep getting the Gleevec, but not take it, if you needed to
avoid such a ridiculous! loophole.
On Wed, Jul 20, 2011 at 11:35 AM, Suzieq wrote:
> Susan:
>
> My doctor & I discussed it a while back. If my BCR-ABL keeps coming
> back "none detected", she said it's a possibility if I
Susan:
My doctor & I discussed it a while back. If my BCR-ABL keeps coming
back "none detected", she said it's a possibility if I wanted to. I
discussed it with my husband, & the only thing that concerned us was
if I did, & then went back on the Gleevec, would the insurance pick
back up and pay
Hi Mary Jo,
Thanks for sharing these pain management methods. I am really glad to
hear that the joint pain and muscle spasms of your daughter is a thing
of the past.
My daughter, 7 years ago, was diagnosed with CML in March. She's been
responding to Gleevec well, and we'll have the 3rd BMA test t
yes, patrick, the nurse lady told me all of this to tell my sister-in-
law the reason why her son could only take it for the 30 days. I
babysat the nurse lady's son who was my son's age. Her boy had severe
Asthma, so she was very well knowledgeable on all steriods. :)
My mother has been on a ve
Long term use of prednisone doubles your chances of fractures and cataracts.
Long-term side-effects include Cushing's syndrome, truncal weight gain,
osteoporosis,
glaucoma,
type II diabetes mellitus, and depression upon withdrawal. (Wikipedia.org)
But it's generally worth the risks and side eff
I had a nurse tell me one time years ago that prednisone was called
"the feel good drug" by those in the medical field (mid-80's), so
guess it must still be. :) They had put my nephew on it because of his
severe allergies, but would only let him have it for 30 days and his
mother could not understa
I cannot speak to the absolutely unbelievable experience you've had
over the last ten years; however, I have had several short term
prescriptions of prednisone since being on Gleevec and now Sprycel for
almost two years.
All I can say is that I hope your experience is similar to mine.
Every time I'
others on Gleevec have developed it
also.
Please keep in touch...
Angie in Canada
--- On Thu, 4/22/10, ssil...@waldentesting.com
wrote:
From: ssil...@waldentesting.com
Subject: Re: [CMLHope] Re: Gleevec and Prednisone
To: CMLHope@googlegroups.com
Date: Thursday, April 22, 2010, 9:57 AM
Hell
Hello,
Diagnosed with CML in 1989. Ten years of daily high dose interferon with
enormous side effects put me into complete remission for another ten years.
Then it came back with a vengeance to accelerated mode. After six months of
Gleevec (600 mg daily) again in complete molecular remission. Z
Hello,
Diagnosed with CML in 1989. Ten years of daily high dose interferon with
enormous side effects put me into complete remission for another ten years.
Then it came back with a vengeance to accelerated mode. After six months of
Gleevec (600 mg daily) again in complete molecular remission. Z
necessary
every six months or annually. I found the BMB to be extremely painful, and
this has been a great relief to me.
Trust in God for Emily's recovery,
Sandy Byrd
From: Thomas Chang
To: CMLHope
Sent: Sun, April 11, 2010 12:45:26 AM
Subject: [CMLHop
Anil, Ricardo, John and ALL,
Thanks to all your encouragements and helpful sharing.
Yes, indeed, Gleevec is so far working great for Emily. She has shown
a partial Cytogeneric remission (Bone Marrow Aspiration FISH 65%) 1+
month into Gleevec, as we just heard from the doctors last Friday. We
were r
Dear Thomas,
I am sure your daughter will be fine soon with all her blood counts reaching
normal.
Just to share with you , my son was diagnosed 5 yrs back and is on Gleevec
since then.
Gleevec is indeed a miracle drug and my son is doing well.
Hugs!!!
Anil
On Tue, Mar 23, 2010 at 1:07 PM,
My son felt joint/muscle/bone pain in the first months he was taking
gleevec. But after the PCR level went down to less than 10% he started to
not feeling those pain.
He used pain killer.
Yes, he felt tired as well.
But now he is ok.
keep going
Ricardo.
On Thu, Mar 25, 2010 at 3:01 PM, Thomas
Dear John,
Thanks so much for sharing the details about your son. It helped a
great deal. I completely agree with being "normal" in front of the
kid. My wife and I have tried hard to do that.
Taking Motrin seems to be a common strategy among kids showing the leg
pain side-effects, as some parents s
Thomas,
My son was diagnosed a month after he turned six, exactly two years
ago. He was diagnosed with a count of 47,500, and something like
95.0% leukemic cells, went on Gleevec, and went up to 96,000 before
coming down at a good clip. He kept going down very quickly, with
current percentages o
Again, Thanks for all your support.
Can you share experiences in the Gleevec side effects in your kids?
For Emily, there's occasional nausea after taking Gleevec, which we
have been managing by giving her the pill right before falling asleep
to sleep it off.
Emily is feeling join/muscle pain. Whi
Thomas,
Good night from Brazil.
When my son was diagnosed 3 years ago I was simply devastated. But now I see
that is ok to live with CML and my son is doing very well - normal life.
Emily will be very well soon.
take care,
Ricardo.
On Tue, Mar 23, 2010 at 4:37 AM, Thomas Chang wrote:
> Thank you
Thank you all for your great support...
After being Gleevec for 2 weeks, Emily's WBC dropped to 17000 in
today's checkup, from 120k. We are more optimistic now. Doctors told
us that the effectiveness of Gleevec will only be proven in future
milestones in bone marrow aspirations but this looks like
Thomas, so sorry to hear your young daughter has been diagnosed with
CML. Cancer/Leukemia is scary words to hear. My heartfelt sympathy
goes out to your daughter and family. Gleevec is a miracle drugand
if anyone is destined to get cancer or leukemiashe has the good
kind. You made a good de
lf, as well as Emily, during this difficult time.
Lisa
-Original Message-
From: Thomas Chang
To: CMLHope
Sent: Thu, Mar 18, 2010 4:07 am
Subject: [CMLHope] Re: Gleevec initial response for pediatric CML
Lisa,
hanks so much for your post. Knowing that there are those o
Lisa,
Thanks so much for your post. Knowing that there are those of you out
there, who experienced the hardship we are going through now but came
out of it after having success on Gleevec, brings us a lot of
confidence and hope.
We are hopeful that Gleevec will work for our daughter Emily too in
t
Actually the relevance came after reading the article which you all can read
on the below mentioned link
http://www.haematologica.org/cgi/content/full/94/8/1177?eaf
Only after reading this article the thought process took this direction.
Surprisingly your experience is very different. The concern
This may not be relevant, but my son was diagnosed with CML when he
was 15 years of age. At the time, and even a couple of years prior to
diagnosis, we noticed his strength and height appeared below average.
As a competitive golfer he always seemed to be battling against
stronger and taller boys.
Hello Ricardo,
Thanks for the reply, glad your son is doing so well, I'll try to stay
and eat healtly. Thanks, Jeff
On Nov 10, 8:13 pm, Ricardo Gadelha wrote:
> Hi, Jeff,
> Good evening from Brazil.
> In fact it depends on the person. My son had side effects for about 1 year
> but today he is do
Jeannie, Lenda and Tony:
Thank you all for your responses. Wine gives me serious heartburn,
too. Oatmeal gives me heartburn but orange juice doesn't, how's that
for odd! LOL! I think a milk drink like Kahluah and cream might be the
ticket. I think you're rght, Jeannie, about the martini's too - m
Hi Lenda,
I have had the red face for a long time now--I had it on Gleevec and
Tasigna-I also have hot spells when I feel so hot I throw all the covers off.
Do you take a water pill--I take lasix when if feel I'm getting to much
water on my system. I also have a problem with feeling my heart
Hi Kelly, does wine hurt your tummy; try to eat some mild foods and nothing
spicy with your wine. I get heartburn also if I don't watch what I eat.
Meatloaf is one of my heartburn foods. So stay with mild foods and see if
you can have your wine-
Blessings,
jeanie
In a message dated 11/3/2
To: CMLHope
Subject: [CMLHope] Re: Gleevec I"m on Sprycel also
Hello,
I thought I would add, as an afterthought.having a few drinks with
my friends helps me feel "normal" and it seems to alleviate the worries of
my friendsyou know how they walk on eggshells with the
e"
To: "CMLHope"
Sent: Tuesday, November 3, 2009 8:23:35 AM GMT -06:00 US/Canada Central
Subject: [CMLHope] Re: Gleevec I"m on Sprycel also
Hello,
I thought I would add, as an afterthought.having a few drinks
with my friends helps me feel "normal" and it se
Hello,
I thought I would add, as an afterthought.having a few drinks
with my friends helps me feel "normal" and it seems to alleviate the
worries of my friendsyou know how they walk on eggshells with the
dreaded "cancer" word. I have found just recently, I cannot drink beer
AT ALL now.
Yes, those spicy food can be bad with Gleevec.
I always took my Gleevec in the morning with my breakfast as I always had a
mild breakfast. It seemed to work best for me.
Keep that tummy happy.
Blessings,
Jeanie<3
In a message dated 10/31/2009 10:42:02 P.M. Eastern Daylight Time,
perkuss...
What I miss since taking Gleevec is Mexican food. I can still eat
mexican food, but must be very careful to avoid jalapeno peppers or
anything very spicy, including the salsa. The inside of my mouth is
very sensitive to anything hot. Even hot coffee or soup can irritate
my mouth. Fortunately, I ca
Jennie, I'll drink to that. Greenie
-Original Message-
Date: Wednesday, October 28, 2009 6:23:42 pm
To: cmlhope@googlegroups.com
From: icandoall...@aol.com
Subject: [CMLHope] Re: Gleevec I"m on Sprycel also
Hi to all, I think a glass of wine would never hurt anyone.
Not
Hi to all, I think a glass of wine would never hurt anyone.
Not having it and missing it would be worse.
Good luck,
Jeanie<3
In a message dated 10/23/2009 11:29:15 A.M. Eastern Daylight Time,
kellyeli...@aol.com writes:
Hi Tom:
I am on Sprycel, too. With regards to alcoholwhat's a gla
Jeanie..thanks! I will look forward to the headaches stopping for
sureand the glass of wine should help as well! Take care! Tom
In a message dated 10/23/2009 5:56:24 P.M. Eastern Daylight Time,
icandoall...@aol.com writes:
Hi Tom, and glad you got on Sprycel after not being able to
Hi karen, Tom and Lenda,
Sounds like we are all in the same boat; let's get to the shore together
hehe.
I never had the cytogenic remission either on Gleevec or TAsi, but my blood
stayed good for 5 years on Gleevec and then just went out of control.
I think Sprycel is going to do it for us th
Hi Tom, and glad you got on Sprycel after not being able to take the other
2.
I haven't had any fluid buildup so far; I'm going not my 4th month on
Sprycel.
Had bad headaches but they have gotten better.
I take mine in the morning with breakfast and haven't had the nausea.
Good luck
Jeanie<3
Kelly...I like your philosophy! The next one is on me! Tom
In a message dated 10/23/2009 11:29:21 A.M. Eastern Daylight Time,
kellyeli...@aol.com writes:
Hi Tom:
I am on Sprycel, too. With regards to alcoholwhat's a glass of
wine? I go out with my girlfriends about once a month an
ths before my blood counts were �back to normal. �
>
> I wish you the best and hope Sprycel does well �for you too!!!
>
> Lenda
>
>
>
> - Original Message -
> From: �icandoall...@aol.com
> To: cmlhope@googlegroups.com
> Sent: Monday, �October 19, 2009 4:17:4
Hi Tom:
I am on Sprycel, too. With regards to alcoholwhat's a glass of
wine? I go out with my girlfriends about once a month and have a few
beers/drinks right along with them. I have not noticed any side
effects. It's probably not the healthiest thing I do, but, I have
given up so much alread
u have to take the good and the bad!! �I �believe I was on Sprycel
> for two to three months before my blood counts were �back to normal. �
>
> I wish you the best and hope Sprycel does well �for you too!!!
>
> Lenda
>
>
>
> - Original Message -
> From: �ica
counts were back to normal.
I wish you the best and hope Sprycel does well for you too!!!
Lenda
- Original Message -
From: icandoall...@aol.com
To: cmlhope@googlegroups.com
Sent: Monday, October 19, 2009 4:17:44 PM GMT -06:00 US/Canada Central
Subject: [CMLHope] Re: Gleevec I"
Lenda
- Original Message -
From: icandoall...@aol.com
To: cmlhope@googlegroups.com
Sent: Monday, October 19, 2009 4:17:44 PM GMT -06:00 US/Canada Central
Subject: [CMLHope] Re: Gleevec I"m on Sprycel also
In a message dated 10/18/2009 10:25:02 A.M. Eastern Daylight Time,
lblaine...@c
Jeanie:
It's good to see you pop up on here again.I'm glad to hear that
you are doing well for a change. I do hope the Sprycel continues to
do it's job for you as I know for a while there you really had some
problems with the Gleevec failing and then the Tasigna. It's
wonderful to know we
r you too!!!
Lenda
- Original Message -
From: icandoall...@aol.com
To: cmlhope@googlegroups.com
Sent: Monday, October 19, 2009 4:17:44 PM GMT -06:00 US/Canada Central
Subject: [CMLHope] Re: Gleevec I"m on Sprycel also
In a message dated 10/18/2009 10:25:02 A.M. Eastern Daylight Time
I'm having good luck on Sprycel so far.
My doctor says it's different from the Gleevec and Tasigna; I failed on
both of those.
Blessings,
Jeanie<3
In a message dated 10/18/2009 9:41:27 A.M. Eastern Daylight Time,
ted...@aol.com writes:
Jody..there is Tasigna that is a second generation KI
In a message dated 10/18/2009 10:25:02 A.M. Eastern Daylight Time,
lblaine...@comcast.net writes:
Hi lenda, I am on 100 mgs of Sprycel also. I failed on Gleevec and
Tasigna.
2 years--That is great! I sure hope it keeps working for me--I have been
on it for about 3 months now. I'm doing goo
Hi Jody: Dana Farber is an excellent hospital, but I can only tell
you about my experience. I started on Gleevec 400 Mg. in Oct. of
2000, and only achieved a cytogenetic remission by July of 2001. I
did not start getting PCR testing until later on. I know things are
done differently by a lot o
Coleman
- Original Message -
From: ted...@aol.com
To: cmlhope@googlegroups.com
Sent: Sunday, October 18, 2009 8:40:49 AM GMT -06:00 US/Canada Central
Subject: [CMLHope] Re: Gleevec
Jody..there is Tasigna that is a second generation KI from Novartis that could
be an option. Tom
In a
Jody..there is Tasigna that is a second generation KI from Novartis that
could be an option. Tom
In a message dated 10/18/2009 12:43:11 A.M. Eastern Daylight Time,
jody0...@yahoo.com writes:
Has anyone who has been on glevec after 6 months have their PCR result
as coming back high? Dr.
Perk...thanks for your great advice and support. It sounds like we have
very much the same thing. My lips are dry and cracked all the time. I have
the rash all over and it scales a bit on my arms. So far, not any on my
face. Do you have the name of the Rx drug your dermatologist prescri
For all you "itchy" CML & Gleevec Survivors:
I have this small area right below the belly button on right side of
addomen that itchesno rash or anything.just a very mild itch.
I use "Monkey Butt" powder :) :) every morning and it works great! I
have seen it at Wal-mart for around 5$
I began to break out on my inner thigh areas and on my inner arms when
I first began Gleevec. It soon covered me in a rash. I found a report
stating this was common in patients taking Gleevec, but only in 4% of
these patients. I am in that percentage. Fortunately, it was during
the winter and I wo
Thanks Jeanie.I will try your suggestions...it seem to be getting
better! Tom
In a message dated 9/25/2009 9:00:52 A.M. Eastern Daylight Time,
icandoall...@aol.com writes:
Eat you yogurt and take acidophilus--this helps with the rash. Stay away
from acid foods like tomatoes for a wh
Eat you yogurt and take acidophilus--this helps with the rash. Stay away
from acid foods like tomatoes for a while.
I've had the rash bad, but it always clears up.
Blessings,
Jeanie<3
--~--~-~--~~~---~--~~
[CMLHope]
A support group of http://cmlhope.com
--
Thanks for your responseI will try Benadryl! Tom
In a message dated 9/19/2009 2:49:32 P.M. Eastern Daylight Time,
txbeachlad...@yahoo.com writes:
I had the rash the first week I started Gleevec I was on vacation in San
Diego and I was in the sun maybe 20 minutes and started feeling i
I had the rash the first week I started Gleevec I was on vacation in San Diego
and I was in the sun maybe 20 minutes and started feeling itchy all over and
looked in the mirror and it was all over my chest,stomach, legs, and arms
luckily it didn't cover my face. That was the only time I got it a
Hi Suzzie,
You should try acupuncture.
On Tue, Sep 1, 2009 at 5:10 PM, Suzzie wrote:
>
> Hi: I have seen so many posts on different websites regarding joint
> and muscle pains relating to Gleevec. I am suffering terribly with
> pain, and my doctors do not want me using Ibuprofen or anything.
Suzzie:
I use the Liquid Gel Advils..my doctor (Hem./Onc.) said it was
fine.
was told I can take up to three at a time (up to twelve a day) as long
as I
give myself a day here and there without any to give my body/stomach
a
break. Anyway, this is what I take whenever needful.plus, s
Hi "boopshin"
Just to let you know, Zavie is still around and I speak with him every
Tuesday evening along with some others that are on Gleevec. Also, I think
that you should speak to your Oncologist about you being off of Gleevec
because your CML will not just go away on it's own. I wish you the
Hi Bev,
Of course I remember you. Like Dorothy said, I post mainly on the CML2 site
and get to read all the other sites.
There was turmoil on the old site and two new groups emerged from that one.
CML2 and Asian. This group, CML Hope is what is left of the original site.
I'm sorry to hear abo
Hi Bev,
I do remember you. I've been on Gleevec since 2000. I don't have a
lot of trouble with side effects but have been getting some aches and
pains this last year. I think it's likely that it has more to do with
my age (65) than it does with Gleevec at this point. Anjana has a
list
I have only been on Gleevec for about a year and while it has had some
side effects, it has controlled my WBC. At first my skin broke out to
the point I had to stop taking it. I started taking it again with the
help of a dermatologist. My skin is doing better, but my lips are
always chapped so I k
This post made me smile a little bitThanks!
Sorry to hear of your "Gleevec problems"but, no
I've not experienced any of this...just some forgetfulness
sometimesI do remember it being at it's worse during
the first year (dx'ed Jan. 04). And, I've pretty much
suffered f
Hi RB and sorry to say, I had so many side-effects, I thought I had set a
record hehe. I always thought it felt like I had just had a martini, and
wished I hadand my blood sometimes felt like it was boiling. I didn't feel
like moving most of the time, but got fed up with that and started
Hi, Rick...
I (62 yr old female) started Gleevec 8+ yr. ago. Reading your letter made me
smile, because it brought back to mind those early days and the immediate
symptom of taking my morning Gleevec. About 10 min. after the golden
bullets (which I always took with food), I would go into that
Hi Rick.I think that most people have some side effects from gleevec. I
was on it for a few years, but didn't experience most of the ones that
you've mentioned. I'm a 70 year old female who has had this CML for almost
10 years and have been on all of the drugs available. Gleevec has stop
Be very careful with Potassium.
Mine went way to high on Gleevec and I got so sick.
Make sure to keep a check on it with CMP blood test.
Blessings,
JEanie<3
In a message dated 4/23/2009 3:54:44 A.M. Eastern Daylight Time,
skracml2...@yahoo.com writes:
Potassium loss is listed as one of the
Potassium loss is listed as one of the side effects to Gleevec. Mine was
consistently low and had to take potassium pills the whole time I was on
Gleevec.
Suzan
--- On Thu, 4/16/09, judy wrote:
From: judy
Subject: [CMLHope] Re: Gleevec Side Effects
To: CMLHope@googlegroups.com
Date
Hi Ricardo and Jeff,
I have been on Tasigna for over 6 months now.
Gleevec quit working for me and I went into blast.
When I first started Tasigna, I had a lot of problems.
My counts all dropped and I had to have 2 transfusions.
There are several things that the doctor has to keep an eye on,
e a really hard time losing weight! > >> > >> Jody > >> > >> > >> > >> -Original Message- > >> From: CMLHope@googlegroups.com [mailto:cmlh...@googlegroups.com] On > >> Behalf > >> > >> Of patrickemai
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