his together..there are many new
possibilities on the horizon...HOPE is alive and well.
-Original Message-
From: ICANDOALLTTC
To: cmlhope
Sent: Sat, Sep 15, 2012 3:53 pm
Subject: Re: [CMLHope] Re: stopping meds.
Thanks Beth, Yes I have asked my Onc to lower my dose, but he says if
g hug...to you and
everybody else out there..we are in this together..there are many new
possibilities on the horizon...HOPE is alive and well.
-Original Message-
From: ICANDOALLTTC
To: cmlhope
Sent: Sat, Sep 15, 2012 3:53 pm
Subject: Re: [CMLHope] Re: stopping meds.
Thanks Beth, Yes
the
constant research that supports more and more options...may you feel
some relief from your toxicity... Peace..
Keep us posted. hug,Beth
-Original Message-
From: ICANDOALLTTC
To: cmlhope
Sent: Tue, Sep 4, 2012 2:43 pm
Subject: Re: [CMLHope] Re: stopping meds.
Hi Beth, I w
essings that we have each otherand the
constant research that supports more and more options...may you feel
some relief from your toxicity... Peace..
Keep us posted. hug,Beth
-Original Message-
From: ICANDOALLTTC
To: cmlhope
Sent: Tue, Sep 4, 2012 2:43 pm
Subject: Re: [C
e..
Keep us posted. hug,Beth
-Original Message-
From: ICANDOALLTTC
To: cmlhope
Sent: Tue, Sep 4, 2012 2:43 pm
Subject: Re: [CMLHope] Re: stopping meds.
Hi Beth, I was started on Sprycel after the two other drugs, Gleevec
and Tasigna just quit on me. They started me on 300 me
may you feel
some relief from your toxicity... Peace..
Keep us posted. hug,Beth
-Original Message-
From: ICANDOALLTTC
To: cmlhope
Sent: Tue, Sep 4, 2012 2:43 pm
Subject: Re: [CMLHope] Re: stopping meds.
Hi Beth, I was started on Sprycel after the two other drugs, Gleevec
and Tasig
ect: Re: [CMLHope] Re: stopping meds.
RichardI am totally with you and your decision. The longer I live
with CML the more I understand that there are few "givens". Each of us
reacts differently to the TKI's and we must make individual decisions.
Like you, I am so
Great story Richard and such an inspiration to all.
Blessings,
Jeanie<3
In a message dated 8/27/2012 11:50:45 P.M. Eastern Daylight Time,
richard1huff...@comcast.net writes:
Each of us need to do what is best for that person. My situation is being
monitored by some of our best specialists
and potassium. just wondered what your history has been? How
is your muscle fatigue on the sprycel? thanks for the info, helpful to
me to talk withothers on the same meds. Beth
-Original Message-
From: TEDBDD
To: cmlhope
Sent: Tue, Aug 28, 2012 7:48 am
Subject: Re: [CMLHope] Re
HI Richard, I found out that I had CML two weeks before Xmas of 1998.
Went on Interferon for 3 months, that almost killed me. After that about 2 to
3 month later Chicago called me and put me into a study at Northwestern.
STI571. Their were 8 of us from the Chicago area, I was the only one
Yes, we will all eventually die. You, Lottie, and Skip were the first
names that I thought of when I was writing but didn't want to miss any one
that around before 2/2003. I am fortunate to have some footprints in the
sand to follow and voices to keep me keeping on.
Richard H.
On Tuesday,
Yes indeed Richard,
You stated that since all of these TKI's have been around that "I will die
of something else". You must remember that everyone who is born will
eventually have to die. So it is good to know that CML will not be your
undoing.
I am one of those members that you spoke about. I ha
RichardI am totally with you and your decision. The longer I live
with CML the more I understand that there are few "givens". Each of us reacts
differently to the TKI's and we must make individual decisions. Like you,
I am so grateful for these amazing drugs that have enabled us all to
Each of us need to do what is best for that person. My situation is being
monitored by some of our best specialists. I have other major medical
problems that are being monitored also. I have a heart issues, lung issues
from three bouts with pnemonia when I was young and 40 years of smoking.
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