Re: [QUAD-L] AD episodes

2014-02-10 Thread Quadius
Yes. Ended up having an urostomy procedure done. I still have some pain, but I don't have the bouts with AD like I used to. My recovery was pretty long and difficult, but all in all for me it was the only option other than continuing on with dysreflexia and other problems. Q Sent from my iPad >

Re: [QUAD-L] AD episodes

2014-02-10 Thread Quadius
My primary physician mentioned that this might be an alternative for me. Trying to find something I can use to control spasms. They think my medication for bladder spasms might be causing spikes in my blood pressure. I'm not sure anymore. I have ceased taking the medication most of the time and

Re: [QUAD-L] AD episodes

2014-02-07 Thread Fragile
I asked the urologist about botox, he doesn't use it. I'd have to travel to ABQ, long rough trip. Every bump in the road hurts. Also been having trouble with AD just from sitting up for a couple of hours. On Fri, Feb 7, 2014 at 7:58 AM, wrote: > For some, botex injections, inside the bladde

Re: [QUAD-L] AD episodes

2014-02-07 Thread wheelchair
Ooops. I meant to say BOTOX Best Wishes In a message dated 2/7/2014 8:43:24 A.M. Central Standard Time, swl...@gmail.com writes: Did you find a solution for bladder atrophy and the bladder wrapping around the catheter? On Thu, Feb 6, 2014 at 5:34 PM, Quadius <_quadius@gmail.com_ (

Re: [QUAD-L] AD episodes

2014-02-07 Thread wheelchair
For some, botex injections, inside the bladder, can help with bladder spasms. Not for everyone, it is best to check with your Uro to determine if you are a candidate for this procedure. Its also successfully used to prevent bladder spillage with older/seniors with bladder issues. Best Wishe

Re: [QUAD-L] AD episodes

2014-02-07 Thread Fragile
Did you find a solution for bladder atrophy and the bladder wrapping around the catheter? On Thu, Feb 6, 2014 at 5:34 PM, Quadius wrote: > I had some problems with pain and AD whenever I've had my suprapubic. I > found that a lot of the problems were occurring because the catheter was > rubbing

Re: [QUAD-L] AD episodes

2014-02-07 Thread Fragile
Any time the catheter moves it triggers dysreflexia, so I keep it taped down. Draining the collection bag also triggers a very short episode of dysreflexia, so I wonder if something is going on inside the bladder. I started using the duette catheter, so far it hasn't made any difference. The onl

Re: [QUAD-L] AD episodes

2014-02-06 Thread Quadius
I had some problems with pain and AD whenever I've had my suprapubic. I found that a lot of the problems were occurring because the catheter was rubbing against the back of the bladder. Have you tried tethering the catheter to your belly so that it doesn't slide into the bladder too far? You mig

RE: [QUAD-L] AD episodes

2014-02-05 Thread nichole rohling
PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] AD episodes There is a good chance the ad will lessen as time goes on. just make sure you have meds to lower your bp if you start getting a pounding headache. Ron From: Fragile To: quad-list Sent: Wednesday, February 5, 2014 8:34 AM Subjec

Re: [QUAD-L] AD episodes

2014-02-05 Thread RONALD L PRACHT
There is a good chance the ad will lessen as time goes on. just make sure you have meds to lower your bp if you start getting a pounding headache. Ron From: Fragile To: quad-list Sent: Wednesday, February 5, 2014 8:34 AM Subject: Re: [QUAD-L] AD episodes

Re: [QUAD-L] AD episodes

2014-02-05 Thread Fragile
I've been having trouble with AD for the past 14 months after having a SP cath put in. The first few days after the catheter is changed, AD occurs every 10 minutes or so. Transferring in and out of my chair also sets it off. When getting dressed, any contact to the groin area also sets it off.

[QUAD-L] AD episodes

2014-02-04 Thread Gmail
I had a very bad AD "episode" back in 1986 before anybody knew what it was and what he signs are. I was hospitalized for severe headache's, they ended up putting an elderly woman who was almost complexly deaf in my room. Every person who came to communicate with her had to SHOUT! It ended up hav