Hi CJ,
There is a maillist very much like this one-in fact, started by a
woman who initially had TM and progressed- and you might want to try
there for info. Sharon's email is: [EMAIL PROTECTED]
There are several injectable drugs used to slow the progress of MS.
They are called the ABCR
About two years ago, when my diagnosis had been MS
all these years, my family doctor prescribed the Avonex shot. It as well
as the others are to slow the progression of MS. The reason for the Avonex
for me, and most people, is because the thinking would be a once-a-week-shot
would be
My new neuro in the pain clinic is telling me that PAIN does not continue following the first episode of TM. I was diagnosed over a year ago and I have had pain from my waist down ever since. I have burning, aching, itching, and my skin hurts so bad that the breeze from the ceiling fan even hurts.
Teresa,
You have Central Pain. Many of us with TM or MS have the pain you have. I have it
from my shoulders down, LeftRight.
You need to get another MD. The person telling you that the pain should have gone away
is totally wrong!! Get a referral to a University/medical school/pain clinic!!
Well, me missus is doing fine with Avonex,
and her aftereffects from the shot are now down to almost nothing.
She's been on Avonex since '99 March, and I've 'pricked' her 245 times and is as
stable as she can be.
She's still working an 8-hour day and is
as active as she can be, till fatigue
I can't believe there are three people on the list with Aug 11 birthdays,
that is mine too.
Happy Birthday to all.
Erin
TM 1/6/04
WOW CJ SHE HAS REALLY BEEN THRU THE MILL WELL AT LEAST SHE HAS GREAT CAREGIVERS AND SHE SEEMS DETERMINED TO BEAT THIS.I AM SORRY ABOUT THE MS THING I WAS TOLD THE SAME THING BUT I DO NOT HAVE MS JUST TM. THE SIDE EFFECTS OR SO SIMILAR. THEY CAN TREAT MS BUT NO DRUGS FOR TM JUST MEDS TO HELP
My TM started in 5/76 and other than
the painful spasms in the beginning I was virtually painfree until the past
couple of years. Any pain that I did feel in the beginning, i.e., a
stubbed toe felt 10 times worse than I remembered pre-TM. Now I have pain
with the least little thing and
