I am glad the Mysoline has worked for you. I started with 50 mgm 2xday and
over 1 1/2 years now take 200 mgm 2xday with some improvement the first couple
of hours after I take it, but then my right hand is the same. I am getting
very good at becoming left handed.
Linda E.
- Original Mess
>
> --
*Rick,*
**
*The most mportant thing that you can do right now, is to just take it easy
and stay in bed BUT you have to be extremely careful of pressure sores
developing. Have your wife pick up a lamb's wool underpad for your skin to
make contact with. You can find them in all different si
*Hi Heather,*
**
*Have been trying to contact Lynne from the Msg. Forums. She has a Devic's
patient in Michigan, who needs some help. In the event that you see a post
from her, please mail her and let her know that I am looking for her. Have
mailed her already, but have not heard anything back y
I've been on Mysoline/primidone 50 mg, once/day for seven years.
Before then my hands shook so badly, I was unable to write - almost
as if I had cerebral palsy. It took a while to take effect, then my
shakes went away.
Alton
*Hi Linda,*
**
*Yes, Amantadine helps with tremors. That's one of it's anti-Parkinsonian
properties.*
**
*Grace*
*Hi Linda,*
**
*I'm not sure if it helps with tremors, but I can find out. I've never had
tremors but have had extremely painful dystonic spasms which are now
controlled with Tegretol. (I'm hoping and praying that the Tegretol doesn't
leave me with any tremors. I've got fingers and toes crossed
Grace,
Does the Amantadine aslo work for tremors (I noticed you said it was a
Parkinson disease drug), or do you have that problem? I have developed bad
right tremors (am right handed) & nothing has helped that. Take Primidone &
was taking Topamax, buth side effects with the Topamax were worse
*It's amitriptyline, or Elavil. Many of my Devic's members, use it for
fatigue.*
**
*Grace*
Trudy
I too have a terrible time with fatigue. I tried Provigil with bad side
effects & it did not help either. Provigil is primary use for people with
narcolepsy (trouble staying awake) & boy it do that for me. I would set my
alarm for 6AM to take it & still was aswke at 3AM the next day. I
>
> *Hi Trudy,*
*I just started taking Amantadine for fatigue and it works like a charm.
It's an anti-viral but is also used for Parkinson's disease, and
neurological fatigue.*
**
*Grace*
I have been having a terrible time with hotmail/msn
I could not get back onto the TM list. I hate this new format they came up
with. Anyway I hope everyone had a great Thanksgiving and yes I hope you all
gained as much as I did over the holiday :)
On Tuesday I go to my neuro for my 6 month "Hell
*Hi Sandy,*
>
*I've forwarded Natalie's problem to Jim. He'll be able to get it squared
away.*
**
*Grace*
Gang,
Natalie is having trouble getting back on the list. If anyone can help her with
this please do. I don't know what to tell her. I know some of you have had
these troubles in the past and maybe you could coach her through this.
Thanks,
Sandy
- Original Message -
From: Natalie Mizen
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