I do want to tell you all about the TENS pads and my experience. I am highly
allergic to many things especially glue - I need to use paper tape for example.
The pads provided with any TENS units caused me to have a rash and hives - VERY
uncomfortable. I tried several types of pads - even the
Janice, I went to John Hopkins and I did meet with Dr. Kerr plus 5 or 6
others. I can't remember all thier names. I was given the same tests - blood,
spinal tap mri.
Dr. Kerr agreed with the dx BUT he also stated that he thought I had Sjogrens -
which rheumotoloist (sp?) confirmed.
I was given the option of the implanted stimulator also. BUT, since I'm
alleric to so many things AND I had a botched surgery just 3 months before TM
came to stay, I was reluctant to have surgery. ALSO, I wasn't certain it would
work. SO the TENS seemed like the best solutions and it does
Yep! I agree but I learned as a young girl (uhhh, a few years ago :) not
to be a back sasser. Makes one into a 'not-so-nice person)!
When I was lead nurse before TM and had to do interviews for potential new
hire nurses, one of my black and white rules was that there was NOT to be
any back
*Hi Janice, *
*It's Mayo treatment protocol for NMO that has kept me on my feet and
still alive. *What would Hopkins or Mayo do that would make any difference
in your recovery?* For me at this point, nothing---it is what it is.
Sometimes we just have to bite the bullet, swallow hard,
Hi, Janice,
My doctors were all really good to me and I agree with you in that all they
could do was to treat the symptoms. It's really hard to describe what it is
that we TMer's are feeling when we talk about hot/cold, acid-like pain,
painful spasms, the 'band', and everything else that goes
Grace,
Thank you for your post. I find myself longing to go there just to know I
have tried everything too, but it is so far and financially out of the
question for now. My dreams for big lottery winnings have just changed
just a bit from what they used to be.
Speaking of dreams, I
Oh but I love the 70's! Great music!
Tami
_
From: kimr1...@bellsouth.net [mailto:kimr1...@bellsouth.net]
Sent: Friday, April 24, 2009 11:09 AM
To: tstree...@abf.com; 'Grace M.'; 'Janice'
Cc: Tami Streeter; tmic-list@eskimo.com
Subject: RE: [TMIC]
ok that is scary, I also
Hi,
I use a TENS and MNES machine (mine is combo, so I can use it either for Pain
relief with the TENS or for building muscle with the MNES settings). I got it
from a company that sells refurbished or extra medical equipement. The machine
I got is worth $800+, I got it for $230. The TENS works
ok that is scary, I also dreamed I was roller skating agan (ok it was the 70's and roller disco) but I was moving all over the floor!
-- Original message from "Tami Streeter" tstree...@abf.com: --
Grace,
Thank you for your post. I find myself longing to go
It appears my posts are not going thru...can you let me know if you
receive this.
Thx
Rob in New Jersey
I received your post.
Life is short! Break the rules! Forgive quickly! Kiss slowly!
Love truly, Laugh uncontrollably .
And never regret anything that made you smile.
Prayers and thoughts for you and yours,
Candy K.
- Original Message -
From: Robert Pall rp...@neillsupply.com
I tried sending this with an attachment and it did not go thru...I am
trying it again with a cut and paste and hopefully the group will
receive it!
I have been reading all of the many posts many of which are
heartbreaking. I can only relate to my own personal experiences. First
of all living in
I tried sending this with an attachment and it did not go thru...I am
trying it again with a cut and paste and hopefully the group will
receive it!
I have been reading all of the many posts many of which are
heartbreaking. I can only relate to my own personal experiences. First
of all living in
Thank you for sharing. And well said.
From: Robert Pall [mailto:rp...@neillsupply.com]
Sent: April-24-09 12:24 PM
To: tmic
Subject: [TMIC] misc
I tried sending this with an attachment and it did not go thru.I am trying
it again with a cut and paste and hopefully the group will receive
*Hello Rob, *
**
*What a wonderful post. Thank you. No one could have said it better.*
**
*Gracie (NMO+ since 2005)*
Robert,
What a wonderful to put normal and our condition. So much of what you wrote
I've felt and I believe all of us have felt.
I think it is wonderful that you can still work.
Life is short! Break the rules! Forgive quickly! Kiss slowly!
Love truly, Laugh uncontrollably .
And
How blessed we all are to have each other and Rob pretty much has been able
to put it into such beautiful words.. Jeanne
---Original Message---
From: Robert Pall
Date: 4/24/2009 1:28:08 PM
To: tmic
Subject: [TMIC] TM misc
I tried sending this with an attachment and it did not go thru
Here are the shoes/sandles that I find I can wear - and they are on sale.
http://www.carolwrightgifts.com/Shoes-Slippers/Womens-Shoes/Stretch-Comfort-Sandals/55400.cfm
Prayers and thoughts for you and yours,
Candy K.
yes you are getting through
**The Average US Credit Score is 692. See Yours in Just 2 Easy
Steps!(http://pr.atwola.com/promoclk/100126575x1221421330x1201417418/aol?redi
r=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Ap
rilAvgfooter424NO62)
Am I getting through?
You are here!
Life is short! Break the rules! Forgive quickly! Kiss slowly!
Love truly, Laugh uncontrollably .
And never regret anything that made you smile.
Prayers and thoughts for you and yours,
Candy K.
- Original Message -
From: Catherine camoa...@yahoo.com
To: Transverse
Does anyone know of good shoes to wear with an AFO? I can't find anything
but tennis shoes to wear with them.
- Original Message -
From: CANDIS KALLEY cakal...@embarqmail.com
To: tmic-list tmic-list@eskimo.com
Sent: Friday, April 24, 2009 5:22 PM
Subject: [TMIC] Newbies other women
Grace M,
Thank you for taking the time to answer my questions. I feel kind of
ignorant to have to ask this but, what is NMO? How
is it different than TM? Janice
- Original Message -
From: Tami Streeter
To: 'Grace M.' ; 'Janice'
Cc: tmic-list@eskimo.com
Sent:
TESTGot your email. Keep your posts going through so we can hear from you.
Janice
- Original Message -
From: Robert Pall
To: tmic
Sent: Friday, April 24, 2009 1:09 PM
Subject: [TMIC] TEST
It appears my posts are not going thru.can you let me know if you receive
Yes you are! Don't remember hearing from you before. If you are new,
welcome. If not, glad you got through to us. Janice
- Original Message -
From: Catherine
To: Transverse Mylitis Group
Sent: Friday, April 24, 2009 8:36 PM
Subject: [TMIC] test
Am I getting
Thank you for replying. I live in a medical center and feel these doctors
have done everything they can. I do think the proper medication and
physical therapy is extremely important.I think we all are doing the best
we can and the rest is up to the Almighty. Janice
-
Hi Janice,
Thank you for replying. I actually Have been around for several years ... I
tend to be on the quiet side.
Thoughts and Prayers,
Catherine
--- On Fri, 4/24/09, Janice jan...@centurytel.net wrote:
From: Janice jan...@centurytel.net
Subject: Re: [TMIC] test
To: camoa...@yahoo.com,
Melissa,
I strictly wear BORN shoes. Give them a try, and then you decide.
Catherine
--- On Fri, 4/24/09, Melissa B mizbr...@charter.net wrote:
From: Melissa B mizbr...@charter.net
Subject: Re: [TMIC] Newbies other women
To: CANDISKALLEY cakal...@embarqmail.com,
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