Re: [TMIC] back to the first bend in the road

2010-09-09 Thread Dalton Garis
Thanks Linda. It has now added disorientation to its symptoms. But with great effort I can break through. Motion is the key. Keep moving or you become like a tree stump. Dalton Dalton Garis Abu Dhabi +971-050-668-5760 -Original Message- From: L T CHERPESKI cherp...@msn.com Date: Wed,

Re: [TMIC] Neurologist visit

2010-09-09 Thread Alton Ryder
typo - should have typed took Alton On Sep 8, 2010, at 6:53 PM, Barbara Alma wrote: Alton, I'm curious why you take gabapentin, yet you find it ineffective. Perhaps you need a stronger dosage? Or another drug that may help with symptoms? Just wondering, as I personally wouldn't

[TMIC] Medications

2010-09-09 Thread Janet Dunn
Hello to all I find it very interesting the number of us that are on or have taken hydrocodone, especially when it is said that opoids do not help with the pain of TM For me personally, I wouldn't make it if I didn't have a member or two of the hydrocodone family in my drug repertoire. I

Re: [TMIC] Medications

2010-09-09 Thread john snodgrass
it really bothers me to hear of these instances of people not getting to the Dr or having to travel vast distances and wait times when I can go to my family Dr on a whim and my neurologist works at the same place as my sister-n-law and is always asking about me and making sure i have

[TMIC] Jude

2010-09-09 Thread Celrods
Has anyone heard anything about Jude. She stays in my thoughts.

Re: [TMIC] Medications

2010-09-09 Thread Janice Nichols
I have stopped going to my neuro. If there is a change, or something I don't understand, I will go back. He just did not have anything new for me - either meds or advice. My meds now come from my family doctor - who was right with me all the 9 weeks in the hospital calling in

[TMIC] RE: tmic-digest Digest V2010 #433

2010-09-09 Thread Rev. Craig Crossman
Good Lord, Janet. And I thought I had a long way to drive! From: tmic-digest-requ...@eskimo.com [mailto:tmic-digest-requ...@eskimo.com] Sent: Thursday, September 09, 2010 2:57 PM To: tmic-dig...@eskimo.com Subject: tmic-digest Digest V2010 #433

[TMIC] TRANSVERSE MYELITIS

2010-09-09 Thread Janice Nichols
My sister, who lives in Savannah, told me about a Transverse Myelitis patient that lives near there. He will be on the 2nd half of Discovery Health channel. Dates are: Saturday, Sept. 11 at 5:00pm and Monday, Sept. 13 at 3:00pm Should be

Re: [TMIC] Medications

2010-09-09 Thread frank
Janet, If you have pain that medication can't handle, ask your M.D. for a prescription of Sativex, subungal spray, one spray as needed every 8 to 12 hours, 4 spray bottles per box, Disp. 0ne (1) box every 2 to 3 months. Sativex is a distillate of cannabinoids made in the U.K. and now paid

Re: [TMIC] Medications

2010-09-09 Thread john snodgrass
I am going to fight this thing as long as i can without stoping working. if i go on disability i will get @ 1400 a month if i am lucky. thats opposed to the @3000 i get working. still paying for my home. From: Janice Nichols jan...@centurytel.net To: john

Re: [TMIC] TRANSVERSE MYELITIS

2010-09-09 Thread Akua
Thanks! What do you mean by the second half? the second half hour? My sister, who lives in Savannah, told me about a Transverse Myelitis patient that lives near there. He will be on the 2nd half of Discovery Health channel. Dates are: Saturday, Sept. 11 at 5:00pm

Re: [TMIC] TRANSVERSE MYELITIS

2010-09-09 Thread Beeclark
The story is about Greg Sapp who lives in Statesboro, GA. The show originally aired this last Monday and will repeat next week. Here's a link about the show. Unfortunately, those who don't have cable and don't get this particular station won't be able to see it... and for those who can get it,

Re: [TMIC] TRANSVERSE MYELITIS

2010-09-09 Thread Beeclark
My mistake... the episode is titled The Toddler Who Stopped Walking and it originally aired last Sunday night. I watched it and it was GREAT! It would be wonderful if all the physicians who are not familiar with TM would watch! Betty In a message dated 09/09/10 15:42:43 Pacific Daylight

[TMIC] RE: tmic-digest Digest V2010 #429

2010-09-09 Thread Vicki Whitford
Date: Wed, 8 Sep 2010 16:54:35 -0700 From: tmic-digest-requ...@eskimo.com Subject: tmic-digest Digest V2010 #429 To: tmic-dig...@eskimo.com --Forwarded Message Attachment-- tmic-digest Digest Volume 2010 : Issue 429 Today's Topics: [TMIC] Neurologist

Re: [TMIC] Medications

2010-09-09 Thread Janice Nichols
I don't blame you. Janice From: john snodgrass Sent: Thursday, September 09, 2010 3:40 PM To: Janice Nichols Cc: transverse myelitis Subject: Re: [TMIC] Medications I am going to fight this thing as long as i can without stoping working. if i go on disability i will get @ 1400 a month if i

Re: [TMIC] TRANSVERSE MYELITIS

2010-09-09 Thread Janice Nichols
Yes, it is an hour show and it looks like it will be the 2nd half on TM. Don't know what is on the first half. Janice -- From: Akua a...@artfarm.com Sent: Thursday, September 09, 2010 5:32 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] TRANSVERSE

Re: [TMIC] Medications

2010-09-09 Thread Barbara Alma
John, If I could have continued working after TM I would have. It does take a high hit on your finances when you stop working and go on disability. It's great that it is there if need be, but in my mind, nothing beats working until you are ready to stop by choice. The doctor may however,

Re: [TMIC] TRANSVERSE MYELITIS

2010-09-09 Thread Janice Nichols
Betty, did you learn anything different from watching - meds, exercising, etc.? Janice From: Beeclark Sent: Thursday, September 09, 2010 5:51 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] TRANSVERSE MYELITIS My mistake... the episode is titled The Toddler Who Stopped Walking and it

Re: [TMIC] Medications

2010-09-09 Thread Barbara Alma
Hydrocodone: I personally do not get any relief from my nerve pain, burning/freezing or hyper sensitivity. I take it for other pain, and I also take it to sleep occassionally. Before anyone states that it isn't a sleep aid, I know it, but it allows my other aches and pains to stop hurting

Re: [TMIC] Medications

2010-09-09 Thread Barbara Alma
I take baclofen as well, but if I've had a pretty busy day, it's not always dependable for me. It just may be a longer night than usual. Hugs, Barbara A in Auburn CA -Original Message- From: Janice Nichols jan...@centurytel.net To: j.d...@shaw.ca; tmic-list@eskimo.com; Barbara Alma

Re: [TMIC] Medications

2010-09-09 Thread Janice Nichols
That does happen to me every once in a while, but not often. Janice From: Barbara Alma Sent: Thursday, September 09, 2010 10:30 PM To: jan...@centurytel.net ; j.d...@shaw.ca ; tmic-list@eskimo.com Subject: Re: [TMIC] Medications I take baclofen as well, but if I've had a pretty busy day,