Hi Jude,
There is one page on FB called Living with Transverse Myelitis, this is for TM
sufferers. The second is, Transverse Myelitis Folks which is for caregivers and
TM sufferers, the third is TM-HA, for ladies only. Delicate questions can be
asked and answered amongst us, who have been there
Hi Candy,
It's good to hear from you again. It's been years. I guess there must be
room for 3 groups. I don't know. Maybe it's the fact that on Facebook
one can see what the other person looks like. That aspect was fun for me at
first...seeing everyone for the first time. Incredible
What are the 3 groups? I also started here and since no one was talking, I
moved to FB (which I don't really like). Why are there so many groups? Seems
there should only be one.
Thanks
Candy
From: "heyjude48...@aol.com"
To: s.gurn...@xtra.co.nz
Cc: tmi
Hi Jill,
It's been years! Good to hear from you. Now I have one more member to
add to my list. I am updating my address book on AOL and need your last
name, phone number and address, if you don't mind. I promise I won't share
your info with anyone. I only want it in case I want to se
Hi Shirley,
Thank you for the well wishes...however, I am confused. On one hand you
say we are doing a good job, but then you say (the way I read it) that
Facebook is better because the groups are closed.
Please help me out.
Judy
Michigan
Dare to dream, dare to fly, dare to be the
Good afternoon Jude, Janice, Cheryl, Dalton and many more members that are
coming back to the site. I think a big thank you is in order to Jude and
Janice for their contribution to the club of TMer's that prefer this way of
communicating, well done. I'm a silent observer, I am one of the Global
Mod
Kim,
So glad to see you. I have to wear leg warmers and socks. I get too cold
too easily. Once I get chilled it takes a ton of blankets for me to get
warmed up again and it takes hours. It also bothers me to get too
warm...then I'm likely to have an attack of autonomicdisreflexia. Alm
Thank you Jude.. our Cheerleader !!
How is the cold effecting ya'all.. I HATE it... everything stings and hurts
more
and worse is I can not wear sholes for socks so TM legs stick and feet are
freezing... anyone else?
From: "heyjude48...@aol.com"
To: jcs...@
I'm happy that you guys are glad to see us active again. I am working my
= off to keep us up and running. Neither Jim Lubin or Sam Siegel
are interested in doing anything with us anymore so it is just me trying
like hell to keep things interesting. However, I am running out of ide
i wollowed with why and how and the thought came to me,,it doesnt matter how or
why if i knew,,it would still hurt.
From: Robert Pall
To: heyjude48...@aol.com; i.whidd...@sky.com
Cc: tmic-list@eskimo.com
Sent: Wednesday, January 23, 2013 1:56 PM
Subject:
Wow...thanks Roger for your points on imagery, distraction, and age
progression. Those are all valid things to think about.
Yours,
Jude
In a message dated 1/22/2013 11:09:04 P.M. Eastern Standard Time,
r.c.pr...@frontier.com writes:
First of all, let me say to Jude that I am really
Rick,
Thank you for your words re: Dave. It means a lot to have such a good
friend as you. Is there any ongoing research being done? Would you "Google"
it for me, using whatever browser you use? I have Google for lack of
knowing what else is out there. I only use it when I want to kno
I have been having trouble getting my mail sent out. I hope this gets out. Jude
I'm so sorry to hear about my friend Dave. Very hard to hear. Anyway does
anyone has recently heard anything about the studies being done by Dr. Jack
Kessler. I saw a special about him on Netflix. Have we made any pr
Jan,
I had Janice send you a note from me. I hope you got it. If not, let me
know. I need your spelling of your last name, address and phone number for
my address book. I promise not to share it with anyone. I may want to
send you a card or call you sometime. I love you.
Jude,
Mich
Jan,
It is wonderful to hear from you. It's been so long. For some reason, I
didn't get your email. Thank you for the compliments. Any subjects you
can think of to discuss will be appreciated. I really need your help to
keep this thing going.
Love you,
Jude
In a message dated
Janice,
Will you please forward this to Jan, I don't have her address.
Jan,
For some reason, I didn't get your email. It's great to hear from you
again. I have missed you. If you can think of any topics for us to discuss,
I would surely appreciate the input. I love you,
Jude,
M
So Regina...what are the issues you want to discuss?
Jude
In a message dated 1/23/2013 12:29:34 A.M. Eastern Standard Time,
regina...@sbcglobal.net writes:
I can think of a lot of issues to talk about. What holds me back is that
I don't want to bore anyone. I'm sitting at my computer
Cindy, Wow...you really had it bad. I had the same problems when I was in
the nursing home after my gall bladder surgery, except I had huge pressure
sores the size of a tennis ball on my behind. Isolation for MRSA is the
pits. I hated it that people had to mask and gown in order to come i
Janet. I think we serve the same God. He is my rock and my salvation. I
have two wonderful people coming tonight who pray beautifully. Thank you
for the good wishes.
Jude
Always end the day with a positive thought. No matter how hard things
were, Tomorrow's a fresh opportunity to mak
There is a ton of information and personal stories,pictures etc at the T.M.I.C.
Internet Club. The reason I like this site is that we talk about TM and the
medicines and conditiions we have. I am not looking to make friends (although
that is a plus). I just want to share information that may hel
Thanks Iris, I am so happy you are writing. I am really punishing myself
to find topics for us to talk about. What can you think of that is
pertinent toTM?
Love you,
Jude
In a message dated 1/23/2013 7:20:44 A.M. Eastern Standard Time,
i.whidd...@sky.com writes:
Hi Jude
I've always
I disagree, unless at 61 I am one of the younger ones. I enjoy the words
and the pictures. I collect a lot of the (to me) inspirational photos. I
get a lot out of them, maybe because I haven't been reading as much as I
used to.
I have to get back to my books.
Jude
In a message date
I AM SO HAPPY SOME OF YOU ARE COMING BACK. IT REALLY HELPS TO HEAR FROM TM
PEOPLE. MARIE
I AGREE COMPLETELY DALTON.
PATTI
On Wed, Jan 23, 2013 at 10:09 AM, Dalton Garis wrote:
> For my situation, I don't need Facebook;
>
> But i see that for the young they really like to send pictures to each
> other.
>
> WE, on the other hand, grew up READING things rather than VIEWING things,
> a
For my situation, I don't need Facebook;
But i see that for the young they really like to send pictures to each other.
WE, on the other hand, grew up READING things rather than VIEWING things, and
that is the difference. We read and the younger set views. It is WORDS ON A
PAGE for us, but for
Janice I just love to see the posts from here. I am on FB like so many of
us. I enjoyed it at first, but there is so much needless posting and takes
so long to go everything until you get something about TM that helps. I am
a pet lover, but get tired of looking at all the cute animal posts that
h
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