Okay – I am dealing with something else then.Wonder what causes this
problem.Told my doc about it and he just said to stretch it out – which I
do. Only lasts about a day or so at a time.
Janice
From: Robert Pall
Sent: Wednesday, January 28, 2015 10:12 AM
To: jannic...@gmail.com ; malu
Everybody,
I had the baclofen Pump inserted in June 2013. Before the pump could be
inserted I first had to do a trial at the hospital to determine if the pump was
right for me. My neuro felt that the banding in my legs is caused by spasticity
and not weakness. The reason I went with the pu
Everybody,
Pat just reminded pointed out that I miss-spoke in my last post.
Please excuse me, Baclophen is a muscle relaxant and anti-spasm med.
It is NOT an anti-seizure med.
One should never substitute one for the other without talking to one's doc!
Dangerous effects could occur!
Everybod
Banding to me does not mean painit means tightness! Like a rubber band
being pulled to its limit! The baclofen pump is used to reduce banding and
spasticity.
Rob in NJ
-Original Message-
From: Janice Nichols
To: Dalton Garis ; Nikki Macleod
Cc: Iris Whiddett ; tmic-list
Sen
Okay, as long as we are talking about this, when you all talk about banding
pain, is it like very sharp pain?Every few weeks I have severe sharp
pain at the top of my rib cage where it is almost hard to breathe.
Is that banding?
Janice
-Original Message-
From: Dalton Garis
Sent:
Some of the neuroleptics (anti-seizure meds), which is what Baclofen is, will
help as well. Good luck!
Sam from BostonOn Jan 28, 2015 8:55 AM, Pat wrote:
>
> Baclofen reduces banding greatly for me. I remember Rob's posts when he made
> the decision to try the Baclofen pump, the operation, and
Baclofen reduces banding greatly for me. I remember Rob's posts when he made
the decision to try the Baclofen pump, the operation, and the dosage changes.
Rob, I wish it had continued to work for you without having other
complications. Continue your group leadership. I know your group has bee
Dalton,
I will be having my bone density test soon. I've had osteopenia since before
TM and developed jaw bone problems after one of the early osteo drugs given to
women years ago. I think that med was removed from the market and I have
gently refused any of the new meds since. I'll have to m
Your son was very active on here (along with many of us). I couldn't have
survived those early days without the information, encourage, and friendship I
received from this Email group. I thank God for Jim Lubin's work behind the
scenes for this and the "old" TM Forum". My Neuro was pleased tha
It is the same thing MS people get. They call it “the MS Hug”, and for them it
can be an almost constant annoyance and discomfort, especially when trying to
fall asleep.
Dalton
> On Jan 26, 2015, at 3:04 PM, Nikki Macleod wrote:
>
> Hi Iris,
>
> I also hope it continues.
>
> Nikki, UK
>
>
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