When the heat gets high I stay in my refigerated house and move as little as
possible.
Roger in Kennewick, WA
- Original Message -
From: bobby jim
To: bobby jim ; Rev. Craig Crossman ; tmic-list@eskimo.com
Sent: Tuesday, August 03, 2010 5:31 PM
Subject: Re: [TMIC] Heat
Saroj,
It is so good to hear from you. I have thought of you often. I am one who
reads, but rarely posts. After 16 years of TM I have now contracted another
autoimmune condition and am on massive doses of steroids to try to get it under
control. This time it was with the peripheral nerves
Ditto for me too, John. Pain is just something we live with.
Roger in Kennewick, WA
- Original Message -
From: Pieter and Heather pieterheat...@shaw.ca
To: pjv1...@chartermi.net; john snodgrass jcs...@yahoo.com;
transverse myelitis tmic-list@eskimo.com
Sent: Monday, August 02, 2010
Thanks Gunny. This made my day - Roger in Kennewick, WA
- Original Message -
From: bgunny7...@aol.com
To: Tmic-list@eskimo.com
Sent: Thursday, July 22, 2010 4:50 PM
Subject: [TMIC] Fwd: The Seasons
-
From: L T CHERPESKI
To: tmic ; Roger Pratt
Sent: Thursday, July 01, 2010 3:07 PM
Subject: Re: [TMIC] 2010 - Here we go again!
Hi Roger - I am really sorry to hear about the Mononeuritis Multiplex, just
one more curve ball you certainly could have done without. I did take some
Here it is almost the 4th of July, 2010, I haven't written in a long time, and
here I am again at a major turning point in my life.
It all started in mid-February. While on vacation in Mexico, my
right foot started hurting. More fun and after-effects from my Transverse
Myelitis,
Barbara, The way my doctor explained it to me is that the MRI shows the lesion
while it is inflamed and that later MRIs don't show it because the swelling is
gone and scar tissue has replaced where the myelin was damaged and does not
necessarily show up. The damage is still there, thus the TM
You're right. I was really 44, I guess I'm just trying to think that I haven't
had it so long ( or maybe old age is really setting in. LOL) Roger, in
Kennewick, WA
- Original Message -
From: Pieter and Heather
To: Roger Pratt ; Jan Hargrove ; Todd Tarno ; tmic-list
Sent
I was 54 back in 1994. I'm now about 60 (23rd of Dec.) so TM has been with me
over 15 years. k
Roger, in Kennewick, WA
- Original Message -
From: Jan Hargrove
To: Todd Tarno ; tmic-list
Sent: Friday, December 11, 2009 12:25 PM
Subject: Re: [TMIC] Age
Todd caught an
Frank, I was also affected in the C portion of my spine (C2-C4). At first
my hands were swollen. I was most affected on my right side, but both arms
and hands are affected. Lately I have had more problem with my ankles
swelling during the day. They are better after a nights sleep, but swell
New MedicationRob, My doctor put me on Zanaflex and it helps some. I take a
lot of medications, but only get so much help and then just have to live with
the rest. I am one of the lucky ones who can walk. With me the hardest part
is the fatigue and constant nerve pain. I guess it could be
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