Re: [TMIC] Unidentified subject!

2015-01-26 Thread luthyen
Friends, I too have had TM, but converted to MS as perhaps 1 in 3 will. Some of you may remember me- "Sam from Boston."Remember that MS and TM are cousins, and on the same demyelinization spectrum. TM can be thought of as being "MS of the spinal cord." If you have a symptom that you can't explain

Re: [TMIC] OT ~ LOW BLOOD PRESSURE what to do about it...

2005-12-13 Thread luthyen
This is meand is more debilitating than the typical MS symptoms. Most of the meds that I take are related to the symptomatic low blood pressure, probably related to MS.. I would reccomend working with your MD in dealing with it, to be sure of the cause of low blood pressure before

Re: [TMIC] OT - MS List

2005-12-13 Thread luthyen
Hi Melissa, The group is [EMAIL PROTECTED] It was started by Sharon Marsden who when she couldn't find a group as supportive for MSers as the TMIC was for TMers started her own. Sorry that you are needing it..but it's a good group to go to, and you'll see some famiar faces. Take care, Sam

Re: [TMIC] OT - MS List

2005-12-13 Thread luthyen
Hi Melissa, The group is [EMAIL PROTECTED] It was started by Sharon Marsden who when she couldn't find a group as supportive for MSers as the TMIC was for TMers started her own. Sorry that you are needing it..but it's a good group to go to, and you'll see some famiar faces. Take care, Sam

Re: [TMIC] OT - MS List

2005-12-13 Thread luthyen
Hi Melissa, The group is [EMAIL PROTECTED] It was started by Sharon Marsden who when she couldn't find a group as supportive for MSers as the TMIC was for TMers started her own. Sorry that you are needing it..but it's a good group to go to, and you'll see some famiar faces. Take care, Sam

Re: [TMIC] Fw: Prednisone/Neuro/Devic's

2005-12-10 Thread luthyen
You said it, Alton! Grace, I too have been under some pressure from my endocrinologist to come down on my prednisone. Only problem is that when I do, my blood pressure goes with it! I can only go down about 2.5 mg per month or so! Blood pressure goes, balance goes, pain gets worse, the whole

Re: [TMIC] Newly Diagnosed/Mild case

2005-12-05 Thread luthyen
Welcome aboard, Karen! We wish you didn't have to join the TM club, but you'll find it's a very supportive group. Have you looked over www.myelitis.org? It's got a wealth of info there, and you'll find that your symptoms are typical post-acute TM. You'll also find that once you talk to your

[TMIC] Email phishing

2005-12-03 Thread luthyen
Hi folks, Well, one finally came to me, purportedly from Amazon.com. When I followed the link, it ran me through the Amazon "secure setting" stuff, password and all, and then sure enough it asked for that stuff it never should ask for: card type,number, credit card verification number, ATM

Re: [TMIC] janh--The walking pharmacy. :-)

2005-11-06 Thread luthyen
will ask for a chronology report tomorrow. Thank you! DebC in wintery Mi. --- On Sun 11/06, luthyen [EMAIL PROTECTED] wrote: From: luthyen [mailto: [EMAIL PROTECTED]] To: tmic-list@eskimo.com

Re: [TMIC] pain

2004-08-04 Thread luthyen
Could your neuro be meaning that the pain is ongoing from damage to the spinal cord, and not continuing TM? Certainly TM does cause Spinal Cord Injury (SCI) which causes the sort of nerve pain that you describe. Refer your neuro to http://www.myelitis.org/abouttm.htm This is the location

Re: [TMIC] Grace's Progress

2004-08-03 Thread luthyen
Hi CJ, There is a maillist very much like this one-in fact, started by a woman who initially had TM and progressed- and you might want to try there for info. Sharon's email is: [EMAIL PROTECTED] There are several injectable drugs used to slow the progress of MS. They are called the ABCR