Candy,
Thanks for the website. After reading it, I think that most of us with TM
would also suffer from Central Neuropathy Syndrome, I know I do. The only
thing the website omitted was my name, LOL.
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis
Mindy,
I can certainly consider my sensation Central Neuropathy Syndrome. I am
sensitive to hot and cold, and also to touch. The weather and my stress level
plays a huge part in my pain management. I understand what you mean about
throwing yourself off a cliff. I also take Lyrica and
welcome back Naomi! I have just survived my one year TM anniversary.
I am also C4-C5 but my damage is only central neuropathy syndrome.
Everything still works but I feel as though I am being electrocuted
from the chest down 24/7 what a strange disease this is!!!
Mindy the artist
On Mar
Mindy,
Happy one year anniversary! I've never heard of Central Neuropathy
Syndrome. Electrocution is something I've always tried to steer clear of. I
worked
for my local electric company, installing electrical equipment for 25 years.
I did not like getting those little zap then and I
Naomi,
I wouldn't call it a happy anniversary but I've decided it's still
good to be alive. There is some question as to whether I can call my
sensations Central Pain Syndrome or not because I don't have the
three forms of pain defined, which include things like intolerance to
hot and cold
