I am not a doctor and am, therefore, not qualified to give medical advise.
All communication is, therefore, hearsay and opinion from people who also may not be qualified.
I am as entitled to my opinion as anyone else, but it should not be taken as anything BUT "My opinion" along with the added condition that I am not "qualified" to have an opinion that's to be taken the least bit seriously.
You wouldn't take advise from the village idiot, now would you?
But you just might use something the village idiot said to form YOUR OWN OPINION.
I say ONLY what "I" think and do and repeat what I have "HEARD" that "OTHERS" [qualified or not] think and do. I am NOT making any distiction between them.
ASSUME THAT I AND EVERYONE HERE IS ENTIRELY IGNORANT.
BY NO MEANS should ANYTHING be taken as what YOU should think or do.
YOU ARE ENTIRELY RESPONSIBLE FOR WHAT IS IN YOUR HEAD.
IT IS NOT AND NEVER WAS MY INTENTION TO "PUT" ANYTHING, AT ALL, THERE.
IF YOU WANT ADVISE, GO ASK SOMEONE WHO IS QUALIFIED TO GIVE IT.
I WANT THIS TO BE VERY VERY CLEAR....
THAT PERSON IS NOT ME OR ANYONE I KNOW OR ANYONE I COMMUNICATE WITH.
Then be careful to use disqualifiers such as "I heard" or "I believe".
Ode
At 09:35 AM 11/21/2003 -0500, you wrote:
>>>>
----- Original Message -----<<<<
From: <mailto:kort...@skybest.com>walt
To: <mailto:asthmacu...@yahoogroups.com>asthmacu...@yahoogroups.com
Sent: Thursday, November 20, 2003 10:36 AM
Subject: [asthmacured] Fw: [illusions] Fw: [Alternative_Medicine_Forum] Death of the newsletter and my FMS/CFIDS website??
----- Original Message -----
From: walt
To: Illusions Mailing List
Sent: Thursday, November 20, 2003 9:00 AM
Subject: [illusions] Fw: [Alternative_Medicine_Forum] Death of the newsletter and my FMS/CFIDS website??
----- Original Message -----
From: Theresa in Fl
To: <mailto:alternative_medicine_fo...@yahoogroups.com>alternative_medicine_fo...@yahoogroups.com
Sent: Thursday, November 20, 2003 7:08 AM
Subject: [Alternative_Medicine_Forum] Death of the newsletter and my FMS/CFIDS website??
I really enjoy this information and am sad to hear this. Anyone have any advise on this.
Is there a group or someone who can help her..
----- Original Message -----
From: Dominie Bush
To: Theresa
Sent: Thursday, November 20, 2003 2:08 AM
Subject: Death of the newsletter and my FMS/CFIDS website??
Dear Newsletter Readers,
1. I was contacted today by a leading attorney whose job it is to warn those
who give advice related to health conditions on the internet. This is now illegal,
unless you are a medical doctor. My website at <http://www.fms-help.com>http://www.fms-help.com is not
in compliance with FTC regulations.
2. Beginning Jan. 1, 2004, the FTC will begin a "sting operation" where someone
will email or call to ask for help with a health problem. Should the kind-hearted
soul reply with some advice, they can be fined $250,000--yep, that's a quarter
of a million dollars(!) if they are not a medical doctor. I asked the attorney
if the FTC would sue companies or individuals and was told that the FTC isn't
putting up with it anymore and that individuals will be sued.
3. Because of this, I can no longer trust that people who write to me are actually
FMS/CFIDS sufferers. I will still be accepting email at d...@fms-help.com but
may not reply.
4. The attorney was most sympathetic with the use of nutritional supplements,
because of a family member with serious health problems that drugs couldn't help.
The person suffered serious side effects and is now using ONLY nutritional supplements
and doing much better. The attorney even enthusiastically endorsed a popular
nutritional supplement in the course of our conversation.
5. The attorney said that Sen. Richard Durbin of Illinois is trying to get rid
of dietary supplements and described him as "the meanest man on the planet."
My husband looked up Sen. Durbin's website and found an email address to write
to him: d...@durbin.senate.gov My husband also found a good letter on the
net at <http://joeclarke.net/vitamins.htm>http://joeclarke.net/vitamins.htm (It's called, "Hey Government, Don't
Take Away My Vitamins.") There are many more letters out there too, I've found.
6. Well, I have been in tears and grieving the loss of the website and newsletter
most of the day. I need to do something VERY QUICKLY about my website, but I
have no idea what! Please PRAY for me to know what to do! Many of you have
been with me for years and we have had the most wonderful relationship of support
and caring. I will always treasure that!!!
7. What happened to my freedom of speech?....Or is that only reserved for pornographers
now?! How can I get information out to people with FMS/CFIDS, if I can't say
anything because I am not a doctor?!!?? I am stumped!
8. My monthly newsletter is really YOUR newsletter, because much of the information
comes from you and I pass it on via the newsletter to others who suffer with
FMS/CFIDS. This is now against FTC regulations and they will be enforced and
I could be sued.
9. The information on my website at <http://www.fms-help.com>http://www.fms-help.com has helped many
people around the world and even prevented suicides. For the past 7 years, I
have had calls and emails from thousands of people who desperately needed information
and help in dealing with their fibromyalgia and chronic fatigue syndrome. Their
doctors have failed them and no one really understands what it's like unless
you have these conditions yourself. When you consider that Dr. Kervorkian has
"helped" 4 women with FMS/CFIDS to end their lives, you realize the desperation
and hopelessness in the hearts of many with chronic "invisible" illness.
10. My FMS/CFIDS website has been on the net since 1996, but it appears to now
be coming to an end. At the very LEAST, I will have to severely curtail the
information I offer on my site in the next few weeks to avoid being fined. If
there's anything you want on my site at <http://www.fms-help.com,>http://www.fms-help.com, you may want
to print it out now before it is taken down.
11. The attorney said that NO health condition can be mentioned along with a
nutritional supplement or advice of some kind. For example, when I say in my
tips site that magnesium helps the muscle stiffness of fibromyalgia, that is
a NO NO! All words have to be in "secret code" almost. Here are some examples:
You can't say A.D.H.D. - You CAN say "trouble concentrating"
You can't say pain - You CAN say "discomfort"
You can't say insomnia - You CAN say "difficulty sleeping"
You can't say menopause - You CAN say "change of life"
You can't say fibromyalgia - Now I'm really stuck! Maybe I should say--"severe
discomfort in my body, count sheep all night, feel like an old lady, can't stand
up for more than 15 minutes, think negative thoughts, have to lie down to rest
frequently, can't stop my mind from thinking, have to go the bathroom a lot,
etc."
12. See "Stop Senator Durbin's Ban of Health Foods" at <http://philadelphia.craigslist.org/pol/18242201.html>http://philadelphia.craigslist.org/pol/18242201.html
There are many more sites on the net about Senate Bill 722. Simply type in
these words at <http://www.google.com>http://www.google.com -- Sen. Durbin's ban on nutritional supplements
bill--and you will get a lot of websites about this. I have already written
a letter to Sen. Durbin and ask you to do the same if this crisis in American
health is of importance to you.
13. I may be pulling my site down at <http://www.fms-help.com>http://www.fms-help.com soon so I can work
on it to try to make it compliant. That will be a mammoth job and I'm not sure
that I have the time or skills to do it. I am also concerned that if and when
I relaunch it, it will say next to nothing, like many other sites that have been
targeted by the FTC. They have been watered down to where there's almost no
point in reading them.
14. I am especially saddened because helping fibromyalgia patients has been
my life's work for the past 7 years and I believe was a calling from God. I
was glad that my 14 years of suffering hadn't been in vain--that what I learned
from dealing with FMS/CFIDS since 1982 could actually help other people to not
have to go through all the torments of this illness that I did. But this can
no longer be.....and I don't know what to do with all the love and caring I feel
in my heart toward those who are still suffering? I am in tears! How can I
help if I can't say what helps??!! It is so confusing!
15. I will be giving much thought and prayer about what to do next. Thank you
for all your contributions in the past years to the newsletter. We sure have
been a caring and supportive group of people and I have learned as much from
you as you have learned from me. The attorney told me that the newsletter had
great information in it, but is illegal. Frankly, I don't know how to write
a newsletter that uses only the "approved" language and never mentions advice
or a nutritional product in relation to a disease condition. What about all
those companies on the radio and TV who are marketing their brand of calcium
for people's "osteoporosis"?? I presume they will also be targeted?
16. I feel that I am being muzzled. I hate it. I am hurting and confused.
Thank you for your prayers for me to know what to do. If my website disappears
for awhile and you don't get any more newsletters, it's because I am either working
on trying to make it compliant and still saying something of value, or I have
given up on it. I had the December 2003 newsletter almost ready to go and it's
a great one! Was just putting some finishing touches on it, but will not be
able to send it now, since the whole concept of the fibromyalgia newsletter violates
the FTC regulations (of giving people advice for a disease condition when you
are not a doctor).
I am open to any thoughts or suggestions you may have. I may not write back,
but will be reading everything you write!
Faithfully yours,
Dominie Bush
904-291-4168
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