sol, this is so right. I have as well Chronic Epstein-Barr. It is one of the
very few tests that actually came back positive. And many people with Motor
Neuron Disease-ALS/Alzheimer/MS have actually Lyme Disease and could be
treated, if they only knew!!!! If a LLD tests a goup of 20 to 30 CFS
patients, often ALL of them have Lyme.
John
----- Original Message -----
From: "sol"
Chronic Epstein-Barr is another than can be the underlying culprit for a
large suite of symptoms and deteriorations. Implicated in various GI
illnesses, candida that continually recurs despite "successful" treatment,
arthritis, chronic fatigue, and ankylosing spondylitis (sp?). CEBV disease
patients often have hypoglycemia, too. Like Lyme, it is a great imitator
of other diseases, and tests don't always detect it. It wouldn't surprise
me to find out a lot of people have both CEBV and Lyme, as well as other
things all at once.
Above info is paraphrased from Chronic Fatigue Syndrome: The Hidden
Epidemic, by Jesse A. Stoff, M.D., and Charles R. Pellegrino, PhD.
sol
Joni Lovegrove wrote:
Jason,
I was on a quest similar to yours. After many years of continued decline
in my health, many of the same symptoms you have and more, I was finally
diagnosed with MS, this was after interstitial cystitis, chronic fatigue,
fibromyalgia, hypothyroidism, chronic yeast, asthma, etc. BUT, I now
find out I have chronic late stage lyme disease. It can mimic so many
things, there are also many other co-infections that go along with lyme.
As someone else mentioned to you, there are treatments. If you have had
lyme for a long time, it usually requires very aggressive treatment. It
does take someone who understands and treats lyme regularly to properly
diagnose and treat.
When you have multi-system health problems involving your immune system,
most often there is one major culprit, but the primary problem can cause
and mimic so many other illnesses. Keep searching until you find a
doctor that is capable and will listen and be your own advocate.
joni
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