I have never posted before...hope I am doing it right..
My son has been diagnosed with variegate porphyria with 'iron overload'.
He is experiencing extreme stomach pain; the skin on his hands is easily
broken, bleed and scar and now blistering. There does not seem to be much
information on this conditon, related symptoms or successful treatment. His
doctor has offered little information.....more testing.
Is there any one on this group familiar with this 'condition' that could
help.
Thanks,
Trudy
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