Hi Trudy,
It'd be great if you could turn off your return receipt.
Thanks,
Raine
tmisner wrote:
I have never posted before...hope I am doing it right..
My son has been diagnosed with variegate porphyria with 'iron overload'.
He is experiencing extreme stomach pain; the skin on his hands is
easily broken, bleed and scar and now blistering. There does not seem
to be much information on this conditon, related symptoms or
successful treatment. His doctor has offered little
information.....more testing.
Is there any one on this group familiar with this 'condition' that
could help.
Thanks,
Trudy
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