I am so confused!!! My new neurologist wants me to start MS meds immediately. I don't understand, it's been four years!He is positive I have MS. I have an appointment with another "top" neurologist in the Washington, D.C. area on March 16th. I will see what he has to say! My injury was at the C7-C11 on the spine. Thanks so much for getting back to me and I will let you know what the next neurologist has to say. Marie
>From: Sue Zieke <[EMAIL PROTECTED]> >Date: Wed Feb 15 10:27:39 CST 2006 >To: [EMAIL PROTECTED] >Cc: tmic-list@eskimo.com >Subject: Re: [TMIC] TM or MS >marie, your story certainly struck a chord with me. i was dx with tm in >may 2000. one lesion c2-c6. none in my brain. sept 2005 my neuro >repeated brain mri, i have 10 plus lesions in my brain, she tells me >absolutely i now have ms. then 2 weeks later as we talk again she >changes her tune after reviewing an mri i had in 2002 when i had >pneumonia, which was not of good quality as i couldn't hold still >because of the pain, because it too showed changes in the white matter >of my brain, then they called them insignificant. she says because >there hasn't been any other big symptoms it might not be ms. i did have >an episode of not being able to initiate swallowing a year ago. so she >ran more tests, evoked potentials on eyes and brain stem, another >lumbar punch, neuropsych testing. no more signs of demylenization so >for now it's not ms. the neuropsych testing did show marked decrease >in memory which could be a sign of ms, but not without other symptoms >she says that some people over 50, i'm 53, get these lesions in their >brains, just a part of aging, i guess. i really felt yanked around >emotionally. but am glad she changed her mind and didn't go ahead and >put me on the ms drugs. i have an appt in may to see dr kerr and am >looking forward to getting another opinion on this. sue > > >On Sunday, February 12, 2006, at 10:12 PM, <[EMAIL PROTECTED]> >wrote: > >> Feb. 7th was my 4th year anniversary of having TM... I have come a >> long way from that night from "hell" when no-one could figure out >> exactly what was wrong with me... Finally, it was decided TM was the >> diagnosis. Johns Hopkins agreed with this diagnosis.I take 600mg of >> neurontin 4 times a day... tho am never without pain.. I now walk with >> a walker, have hand controls on my car and with my faith and family >> have adjusted to my new life style. Due to Medicare I had to switch >> all my doctors. A Neurologist was highly recommened as one of the best >> in the area. Long story short...after all new MRI's etc... etc.. he >> informed me that without a doubt I have Multiple Sclerosis. I am still >> in shock and not sure what is my next step. I have made an appointment >> with another "top" neurologist in the D.C area.. I have 5 lesions on >> my brain which supposedly indicate MS. I am 59 years old. Also my >> brother -55- was just diagnosed with underlying MS.... >> Any thoughts, suggestions would be greatly, greatly accepted... Anyone >> of you with TM have lesions on the brain???? >> Thanks so much! >> Marie Arthur >>
