This may be a stupid question, but when you say 'excess anti-bodies from our system', is that the same as the anti-bodies in our blood? (i.e.: Blood type A+ with a positive anti-M anti-body)
Sally
-----Original Message-----
From: ROBERT COOK <[EMAIL PROTECTED]>
To: tmic-list@eskimo.com
Sent: Tue, 28 Feb 2006 08:00:29 -0600
Subject: RE: [TMIC] Relapse & Steoirds
Most definitely, stress has been shown to play an important factor in TM for many. You might talk with your neuro about checking the level of protein in your CSF. Bad thing is it requires a spinal tap. This could assist in confirming a relapse or not. If a relapse is suspected, some have benefited from Plasmapharesis treatments to remove excess anti-bodies from our system, which are thought to be the cause of demyelination in many cases. Unfortunately, steroid treatment/therapy is the recommended course. I am not aware of anything to help control the side effects of confusion and associated general malaise feelings. Bob from Houston-Spring Tex Class of 1994 T-1 para BTW, YESTERDAY WAS MY 12 TH ANNIVERSARY WITH TM. YEA FOR ME !!! HIP HIP HURAY !!!!! dANG, AN'T THIS STUFF FUN ? > [Original Message] > From: C E <[EMAIL PROTECTED]> > To: <tmic-list@eskimo.com> > Date: 2/27/2006 6:58:21 PM > Subject: [TMIC] Relapse & Steoirds > > You all are awesome at giving out words of kindness and encouragement. Here > is what I am going through and if you have any suggestions, through them my > way. > > June 2005, diagnosed TM. Hospitalized 5 weeks. One week IV steroids, 4 > weeks aggressive rehab. Got strong enough to walk again. > > Beginning of Feb 2006 I started growing weaker. My most affected leg > becoming more limp with tighter banding. Met with my neuro, who suggested > f/u MRI to look for any changes since June and a Visual Evoked Response > Test. The brain MRI showed no change. Which I guess is good since he was > looking for MS. But now he says it must must be a relapse of TM.This past > weekend, felt like my back was swollen, both legs got worse. I was on an > oral dose of > Methylprednisolone (Steroid) 250 mg 2 capsules twice daily for 5 days then > 1 daily for 5 days, the neuro said that was equal to the IV I had in June. > Since I finished this dosage 2 days ago, I became worse. Today my neuro is > now putting me back on a steroid, but a different one and a lower dose. > Prednisone 60 mg for 4 days, then 40mg for 4 days, and then 20 mg for 4 > days. I HATE the way I felt while I was on the Methylprednisolone. I was > depressed, food tasted like crap, and overall feeling of exhaustion. I am > also diabetic, controlled by Actos, diet and exercise. Naturally, taking > the steroids I had to use insulin injections to keep the blood sugar under > control. What I would like to do is crawl in a dark room and stay there for > the next 12 days. :( AND I have an interview for a new job on March 3rd, > cause I got fired from my last one cause I can't keep my thoughts straight > and not learning it fast enough. I have NEVER encountered this problem > before. Is there anything I can do? What else besides steroids are out > there for this monster, TM? How many relapses are probable? I was doing so > good and now back to using the walker. Could stress from the job have > brought on the relapse. Are there any finding of this sort that stress and > TM do not mix? How do I get through the next 12 days of steroids and and > interview? How did you all overcome the ill affects of steroids when you > were on them? > > Recap: my concerns of relapse, feeling of sickness and depression and > overall feeling of cloudiness while taking the steroids. > > > Carol in Culver, IN > T10 > >
