"Common sense is not as common as it
really ought to be."
That is so true! Thanks for a new favorite
saying.
I didn't know they threw out MRIs after 7 years. That means
mine is gone, too. :-( That's a good reminder to get copies of all pertinent
medical records.
Barbara H.
In a message dated 8/23/2006 9:52:13 AM Eastern Standard Time,
[EMAIL PROTECTED] writes:
Krissy,
I think you and I are seeing the same
guy! I thought I had mine figured out but just this week I got a call
from him that made me furious. I had another MRI on 7/31. I called
4 times for results and no one would call me back. Then on Monday he finally
calls and is very abrupt. He announces that I have my first brain lesion and
that confirms the diagnosis of MS. He then says that it "doesn't change
what we are doing" and tries to end the conversation. Drop bomb get off
the phone quick does not work for me. Sooooo I say geez since the
symptoms during my July attack were the same as my TM symptoms how did the
lesion at the C1 look this time? No answer...his pager goes off and he
says...."I have to answer this page." No mention of I will check and
call you back.
In talking to the nurse yesterday I find that
the report did not mention the cord lesions and also did not compare this
MRI to previous. So she asked to get the comparison
done this week. I now know that I must ask for this every
time I have an MRI. This is one of those things that my common sense
says should be routine. But alas...like I always say, "Common sense is
not as common as it really ought to be."
I also found out that after 7 years the
hospital throws out an MRI!!! So my first MRI that showed TM in 1998
is gone! The 2001 is still there for a while but then it too
is gone. I cant believe they do this when its a chronic
condition. My nurse said she has tried to change the policy
but they will not. I am getting the CD this go round so I can
hang on to them myself from now on. Evidently even the CDs get tossed after 7
years!
The other thing I wanted to tell you is that I
try to direct the conversation when I am at the neuro's office by taking in
notes. Sometimes two or three pages. I describe everything in detail and ask
that they be put into my file. This gives us some topics to focus on and
keeps me from forgetting to mention stuff. Plus I think my notes are more
complete than his...in fact I know they are. I learned this from someone
on the list a few years back and it has made a huge difference in how my appts
go.
Take care,
Sandy in
Wisconsin
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