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Jillybean
(USA)
My 2c for what
it's worth.
I find that when
something else is going wrong, maybe an infection, flu, or I've been overdoing,
that all of the tm symptoms are much worse (almost a flare up). After 5
years, I just don't bother any more, especially when I used to go to my dr and
he'd just have a quick look and say "you seem to be ok, nothing too
bad"!!!!!!!
I spent time in
the first 12 months going to all sorts of specialist all of whom treated me like
some kind of neurotic housewife.
So,
I just don't
bother anymore.
I feel, young
Jillybean, that you might be doing just way way way toooooooooooooo
much.
hugs
Gillybean
(Australia)
www.originaltouchofgilly.com
for quality handcrafted costume
jewellery
To: bobby jim hijar ; Heather &
Pieter ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Sunday, September 17, 2006 12:00
PM
Subject: Re: [TMIC] Re: Brain stuff or
not
I'm confused too. I
swear something is wrong w/ my jaw and my left side feels weaker and less
sensation than the right. My lesion is at T10-11 why the hell am I
feeling it in my left arm and jaw and
neck and ears??? I see the neuro on
10/18 maybe something else is going on? Anyone else feel this. It
sounds like only the MS'rs get this stuff?
bobby jim hijar
<[EMAIL PROTECTED]>
wrote:
Am not quite sure what recurring TM is........
a flare up...???? And I don't think it happens in a different part of
the spine...... (help me, guyze).
As I understand it,
recurring MS is the same as recurring-relapsing MS. It is not a second
attack if it's only an exhacerbation to a previous event (correct me if am
wrong, y'all) but I believe that doesn't happen in MS, only
TM. And then, it's the
progressive MS that doesn't respond to most ABCs. But that's a horse of a whole different
color.
Rain and snow..........????????
Already........??????? Yikes. It hit 32ºC earlier today
down here. Damn.!!!!!!
Bobberino in balmy
Elvisland
Sent: Saturday, September 16, 2006
12:52 AM
Subject: Re: Brain stuff or not
Hmm, then what about Recurring
TM? Is that not a second attack in a different part of the
spine? I should read about it on the Forum website.
Thanks
Bobberino,
Heather in Calgary (and yes we had
some rain mixed with wet 'snow' flurries today - Yuuuuuck.
Sent: Friday, September 15, 2006
6:57 PM
Subject: Re: Brain stuff or
not
Well, yes, from what I've heard as
well, brain lesions are a sure reason for an MS
dx.
On the other hand, I was also told
that once there is a second attack in a different part of the spine, the
dx changes from single sclerosis (TM) to multiple (two or more)
sclerosis.
Ergo the change of
dx.
The change of dx didn't upset us
one bit. It meant me missus qualified for the ABCs, and
today, 325 injections later (I shudder at the 'real' cost), Da Boss is
doing just fine, thankyew.....;>)
Hang in there, y'all........
Bobberino
Sent: Friday, September 15, 2006
1:25 PM
Subject: Re: [TMIC] Re: (OT) Re:
tmic-digest Digest V2006 #185
I find it odd that if there are no
lesions on your brain that the doctors have determined that you now
have MS. I have been under the belief that lesions on the brain
'usually' is why the diagnosis changes from TM to MS.
I have a sister 3 yrs younger than
myself who has MS. Hers is the slow moving kind and she was
officially diagnosed back in 1991 but feels she had it for many more
years than that. In 1991 she had her second 'attack' and the MRI
at that time found the brain lesions which were not in her first MRI a
few years prior to that.
{{{ Hugs to you}}} and a listening ear
from all of us.
Heather in Calgary
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