Kristy,
I am presently taking detrol la 4mg for my bladder. If I don't take it then
I have so many bladder spasms sometimes i have leakage and terrible urges to
go to the bathroom.
When I was first diagnosed with tm in 1992 I had an mri about 2 months after
my symptoms. When I had another flrare up in 1996 I had an mri right away.
They did show a lesion at the t4-5 level. Presently it is still there. I
have had a few flare up and each time I am paralyzed from the lesion down.
I have been able to work my way back to walking each time but have more and
more permanent scarring each time and more permanent weakness. No I had no
fever just terrible back pain the first 3 days and then increasing weakness.
Lynn (in RI where it is finally spring)
----- Original Message -----
From: <[EMAIL PROTECTED]>
To: <tmic-list@eskimo.com>
Sent: Thursday, April 19, 2007 4:42 PM
Subject: Re: Re: [TMIC] straight cath
Lynn,
I had problems with my bladder for years but now am doing much better,
Some days (at first) it would be very bad and then when I would cath for a
while it seemed to get better. So the answer to your question is yes I
have experienced the same thing. Also about your MRI & CSF , did they do
those tests within the first four days? That can also make a difference.
You should go to the TMA site and read the updates on some of the artices,
Especially the one called Transverse Myelitis: Pathogenisis, Diagnosis and
Treatment. Did you run a fever when you first got sick?
Kristy Matheson
From: "Lynn Pouliot" <[EMAIL PROTECTED]>
Date: 2007/04/18 Wed PM 04:54:31 EDT
To: <tmic-list@eskimo.com>
Subject: Re: [TMIC] straight cath
Mark,
I cath 5 or 6 or sometimes more depending on how much I drink. I am
hoping to be able to go off all my bladder meds and urinate on my own. I
have been cathing for about 3 years. I have cut down on my bladder meds
and I am now only taking 1. I can urinate on my own a little. But I
don't empty my bladder all the way. Hope this helps you.
Lynn, in RI (cold and rainy for 4 days now)
----- Original Message -----
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Sent: Monday, April 16, 2007 2:22 PM
Subject: [TMIC] straight cath
Hello everyone,
I have not logged in recently but I read as much as possible. But I do
have a question that I hope someone out there has an answer.......one I
want to hear!
But first let me recap....
I was first diagnosed with TM after being in Temple hospital for over 6
weeks back in Sept of 2006. I recently visited Johns Hopkins in MD and
was told by Dr. Greenburg that he was not sure that I had TM. I might
have an AVM. Arterial Vascular Malformation. Temple hospital thought that
as well but could not prove it so they diagnosed me with TM. Dr.
Greenburg wants to do another angiogram in June to see if Temple missed
the AVM. I was told by Dr. Greenburg that there are two ways to determine
TM. One is with an MRI and the other is from the fluid from a spinal tap.
Both were done at Temple Hospital and both did not show TM.
I am numb from the waist down to my toes and must straight cath at
least 4 times a day.
Now to my question. Has anyone had problems urinating and then had the
bladder come back and was able to urinate on their own again? Lately I
have been able to urinate a little on my own but it is psoriatic. Is this
a good sign or just a fluke?
Thanks for letting me vent.
Mark
Marlton, NJ
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