Naomi I have TM for seventeen years and the only time I saw a Neurologist was at Onset of TM and when 2 years after , I asked for a referal. which did no good.Since 1992 I have not seen a Neurologist and I honestly think that there would not have been a lot that they could have done for me.
I have been paralysed from the waist down, but have gradually regained feelings in most of my lower body, except from the above ankle area to toes, but that area iis also getting better. Unfortunately I am still unable to walk. even with doing one and half hr. sessions of excercise and swimming 2 times a week. I permanently use a wheelchair and this is not for the want of trying to walk Like someone else said I am resigned to living with TM by now and I dont think that any cure of Stem Cell treatment or any other, will be on the agends in my lifetime. I sincerely hope that it will be possible some day, especially for the little ones. Hope this will also help others. Regards Ann ----- Original Message ----- From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Tuesday, June 26, 2007 5:15 PM Subject: Re: [TMIC] from Gary Gary, I am pretty much in the same boat as you. I was diagnosed with TM July 2005. At that time, I had spinal taps and plasmapheresis. I stayed in the hospital for four months for rehabilitation. Since I've left the hospital, I have not seen a neurologist. I do not have a regular neurologist to go to. When I go to my primary care physician, I will ask her to refer me to one, although I don't know what good he'll be at this point. July 2 is my two year anniversary. The only doctors I see on a regular basis is, my primary care physician and my Physical Medicine and Rehabilitation doctor. I have a Baclofen pump and my rehab doctor maintains that. Any other complaints, I see my primary care physician. I had a post on this message board not to long ago about the need for a neurologist. I read that a lot of people go to them, but I haven't seen one in the past two years. I don't know if it's necessary or not. Naomi C-4 quad, incomplete, since July 2, 2005
