Hi All,
I have just been officially diagnosed with TM and my Neurologist has
dismissed me as his patient. He does not expect my shivering sensation
and Lhermitte’s sign to improve any further because I have passed the
6-month mark since the attack took place.
I had hoped to talk him into some physical therapy even though I am
walking wounded because I have found that walking any distance that
would qualify as exercise causes acute pain. I’ve heard that swimming,
stationary cycling or elliptical training could help restore some of my
level of fitness but I don’t have the financial resources to pay for
access to such equipment. His reason for excluding therapy was that he
believed it would not help me recover from my forms of nerve pain.
I am frustrated because as a result of TM I have lost my fitness,
gained weight and am now experiencing borderline high blood pressure, a
condition which could be reversed by losing 20 lbs and getting moving
again (in a minimal impact fashion).
I tried to see a pain specialist but when he found out what my causes
and symptoms were he wouldn’t see me, said I should stick with my neuro
for pain and my neuro is passing that responsibility off to my family
practitioner. She is an excellent doctor and was my friend first
before she became my physician (hate doing that cause it changes
everything) but she still listens to me better than other doctors
because she knows that I exist outside of her office and she knows what
kind of person I am when I’m not sick. But this is her first venture
into the world of TM.
All the advice I got from the Neuro regarding my pain management was to
tell my family doc. That she could triple my current dose of lyrica (75
mg 3 times a day) if needed but that I’d pay for the relief with
medicine induced fatigue. My insurance does pay for the Lyrica and I’m
sure they would pay for the High blood pressure meds but looks like my
hope of getting a little subsidized fitness help is out of the
question.
Mindy the Artisan
- [TMIC] officially TM Lawrence King
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