Mindy, Your Neurologist is just wrong about not expecting to have any further improvement past the six months of onset, especially if you've already had improvement prior to that point. There are many of us who have gotten improvement at two years and past that. They may be small, but every bit is so important to us, and is so appreciated. It comes from hard work though, and that means therapy, in the centers and home as well. That doctor just isn't interested in treating you for some reason, which is very sad. Please tell your PCP (also friend) to look at the TMA website and she'll find some good information there about treating people with TM. I am not sure, but I would think that she should be able to refer you for PT if she is the doctor treating you. If there is a question with the insurance company, she should be able to answer anything they need, including the Neurologists unwillingness to continue treating you. I wish you good luck with this, but you have got to be your own advocate for this. Sometimes you just have to remain firm and make things happen for yourself or it just doesn't happen. Don't give up! Hugs, Barbara A
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