Hi Amanda, welcome to the list. It really helps when you are probably scared and wondering how did this happen. Where did the TM hit you and how old are you? I was hit last memorial day 2007 in the c-4 & 5 region. I couldn't use my hands, gross motor skills were affected and so were my legs. I am doing much better today other than fatique and muscle weekness and some other unusual symtoms I did not have before TM.....Hang in there and don't get discouraged. What are they saying they think caused you TM? Rita, in Cleveland Ohio
On 9/12/2008 12:01 AM, Amanda Diskey <[EMAIL PROTECTED]> wrote: >hey everyone, i hope all is going well. i am soooo sick of this hospital. >i might get to go see dr. kerr. did anyone else lose their arms and >hands? i am getting all the muscles in my arms back, however not >my hands. i am hoping vthey come back soon. > >--- On Wed, 9/10/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> >wrote: > >From: [EMAIL PROTECTED] <[EMAIL PROTECTED]> >Subject: tmic-digest Digest V2008 #332 >To: [EMAIL PROTECTED] >Date: Wednesday, September 10, 2008, 12:50 PM > > >tmic-digest Digest Volume 2008 : Issue 332 > >Today's Topics: > [TMIC] Re: tmic-digest Digest V2008 [ [EMAIL PROTECTED] ] > Re: [TMIC] new friend [ Jan Hargrove ><[EMAIL PROTECTED] ] > Re: [TMIC] jude [ Jenna <[EMAIL PROTECTED]> >] > RE: [TMIC] new friend [ wim from holland ><wim_from_holland@ ] > Re: [TMIC] Testing 123 [ [EMAIL PROTECTED] ] > Re: [TMIC] new friend [ "Diane" ><[EMAIL PROTECTED]> ] > Re: [TMIC] jude [ "L T CHERPESKI" ><[EMAIL PROTECTED]> ] > Re: [TMIC] gel cushion [ Alton Ryder ><[EMAIL PROTECTED]> ] > Display Notification: [TMIC] Re: tmi [ Rita Asbury <[EMAIL PROTECTED]> >] > > >#yiv425566364 p { margin:0px;color:#660000;} #yiv425566364 .fall-left >{ font:normal 75% Verdana, Arial, Helvetica, >sans-serif;letter-spacing:1px;color:#660000;} >The site is tmic-list@eskimo.com .At least it as the last the time >I checked.Rick > >-------------- Original message from [EMAIL PROTECTED]: >-------------- > > >Thanks Jim, > >Heather in Calgary > >----- Original Message ----- >From: Jim Lubin >To: tmic-list@eskimo.com >Sent: Sunday, September 07, 2008 10:13 AM >Subject: [TMIC] Paralympics Athletes living with Transverse Myelitis > >Beijing Paralympics Athletes living with Transverse Myelitis > >United States >Sarah Castle (Wheelchair Basketball) >http://www.olympicspirit.us/paralympics/39341_46582.htm > <http://www.olympicspirit.us/paralympics/39341_46582.htm>http://paralympics.teamusa.org/athlete/athlete/1929 > <http://paralympics.teamusa.org/athlete/athlete/1929>Anjali Forber-Pratt >(Wheelchair Track) >http://paralympics.teamusa.org/athlete/athlete/2209 > <http://paralympics.teamusa.org/athlete/athlete/2209>http://anjaliforberpratt.com/content/about > <http://anjaliforberpratt.com/content/about>Amanda McGrory (Wheelchair >Track & Basketball) >http://paralympics.teamusa.org/athlete/athlete/2217 > <http://paralympics.teamusa.org/athlete/athlete/2217>Kerri Morgan >(Wheelchair Track) >http://paralympics.teamusa.org/athlete/athlete/2218 > <http://paralympics.teamusa.org/athlete/athlete/2218>Steven Toyoji >(Wheelchair Track & Basketball) >http://paralympics.teamusa.org/athlete/athlete/2205 > > <http://paralympics.teamusa.org/athlete/athlete/2205>Great Britain >Gordon Reid (Wheelchair Tennis) > >Australia >Greg Ball (Cycling) >http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=61d23790-dd7f-4d77-ad8a-ad2b10874a39 > <http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=61d23790-dd7f-4d77-ad8a-ad2b10874a39>Madison > >de Rozario (Wheelchair Track) >http://www.madid.com.au/bio.htm > <http://www.madid.com.au/bio.htm>http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=725a9395-ceb6-4061-82e6-91f6ea88c337 > > > <http://www.paralympic.org.au/AthleteProfile.aspx?AthleteID=725a9395-ceb6-4061-82e6-91f6ea88c337>Watch > >online >http://www.universalsports.com//SportSelect.dbml?DB_OEM_ID=23000&KEY=&SPID=13327&SPSID=107765 > ><http://www.universalsports.com//SportSelect.dbml?DB_OEM_ID=23000&KEY=&SPID=13327&SPSID=107765> > >http://www.cbc.ca/sports/paralympics/ <http://www.cbc.ca/sports/paralympics/> > >http://news.bbc.co.uk/sport2/hi/other_sports/disability_sport/default.stm > > > <http://news.bbc.co.uk/sport2/hi/other_sports/disability_sport/default.stm> >---- >Jim Lubin >[EMAIL PROTECTED] >http://makoa.org/jim <http://makoa.org/jim> >disAbility Resources: http://www.makoa.org > > > > <http://www.makoa.org/> > > >Welcome, Amanda! > >Sorry you have to meet us this way, but you've come to the right >place......... >Wecome to the family!! > >Hugs, janh > >--- On Tue, 9/9/08, Amanda Diskey <[EMAIL PROTECTED]> wrote: > >From: Amanda Diskey <[EMAIL PROTECTED]> >Subject: [TMIC] new friend >To: tmic-list@eskimo.com >Date: Tuesday, September 9, 2008, 3:40 PM > > > >my name is amanda and i am newly diagnosed with tm. i am still in >the hospital in rehab. hope this gets through to the list. i could >use sum friends. > > > > >Hi Bob, I am sorry you have been in the hospital, I hope you are >feeling better now. > >Jude is doing ok, is the update I got today. I will check with Pam >again tomorrow and she if she can give me more info. Or maybe Ella >or Patti know more. > > Jenna > > > > >----- Original Message ---- >From: bob <[EMAIL PROTECTED]> >To: tmic <tmic-list@eskimo.com> >Sent: Tuesday, September 9, 2008 12:57:00 PM >Subject: [TMIC] jude > > >how is jude doing ???? i just spent 12 days in the hospital and just >came home last evening..can i please have an update on jude?????thank >you > >#yiv307429273 .hmmessage P { margin:0px;padding:0px;} #yiv307429273 >{ FONT-SIZE:10pt;FONT-FAMILY:Tahoma;} Also welcome from Holland. >Your friends are world wide as you see.. > >Wim > > > >Date: Tue, 9 Sep 2008 13:40:13 -0700 >From: [EMAIL PROTECTED] >To: tmic-list@eskimo.com >Subject: [TMIC] new friend > > > >my name is amanda and i am newly diagnosed with tm. i am still in >the hospital in rehab. hope this gets through to the list. i could >use sum friends. > > >Het beste van Windows, nu ook online. Deel jouw wereld met Windows >Live. Download nu. <http://get.live.com/nl-nl/wl/all> >it's okay in Ohio > > > >Psssst...Have you heard the news? There's a new fashion blog, plus >the latest fall trends and hair styles at StyleList.com. > >Hi Amanda. Hope you bounce back soon. Please keep us posted. >Diane in Canada > >----- Original Message ----- >From: Amanda Diskey >To: tmic-list@eskimo.com >Sent: Tuesday, September 09, 2008 4:40 PM >Subject: [TMIC] new friend > > >my name is amanda and i am newly diagnosed with tm. i am still in >the hospital in rehab. hope this gets through to the list. i could >use sum friends. > > > > > >Bob - 12 days in the hospital! How are you doing - are you ok???? >Please give us an update. > >Thank you >Linda > >----- Original Message ----- >From: bob >To: tmic >Sent: Tuesday, September 09, 2008 10:57 AM >Subject: [TMIC] jude > > >how is jude doing ???? i just spent 12 days in the hospital and just >came home last evening..can i please have an update on jude?????thank >you > >I'm not that heavy, but after a decade in a wheelchair, I have insufficient >muscles to pad the ischial protuberances - to sit on a firm chair >is intolerable after just a few minutes. Yet, I sit all day, every >day. > > >The key is a cushion. Included below is a note I wrote last February. > > >Alton, a geezer of 73 who has lost muscle mass with age > > > > > > >From: Alton Ryder <[EMAIL PROTECTED] <mailto:[EMAIL PROTECTED]>> >Date: February 27, 2008 8:30:35 AM EST >To: TMIC List <tmic-list@eskimo.com <mailto:tmic-list@eskimo.com>> >Subject: Re: [TMIC] gel cushion > > >I have used gel cushions from Jay for a decade. The primary use >is in my wheelchairs, but I have used them in restaurants. Being >in a chair leads to atrophy of the butt muscles, and these muscles >pad the ischial protuberances. > > >The first came with the manual chair in the summer of '92, model, >J2. This had the gel in less than a dozen large, shaped compartments. After >three years the gel had hardened; the cushion discarded, the cover, >still in good shape, retained. > > >The second, a JAY Gel, is under me now. I have two chairs, the old, >manual chair for traveling, the power chair for use at home, highway >travel, cemetery work, cross-lawn travel, and bull-dozing furniture >and the toilet bowl. The cushion that came with the chair is junk, >a stiff cushion on a rigid steel plate, a butt killer - the supplier >was saving pennies at my expense. So I use the new Jay on top of >it. That isn't quite sufficient, so I frequently put a third cushion on >top of the other two. > > >When I travel, the Jay Gel is the only cushion on the fabric sling >of the folding chair. Ahh, pure comfort, like a hand in an old glove. I >can sit all day in that chair and often do. > > >All three cushions are rather heavy, and the covers have a loop handle >in the front. The handle is used to move the cushion and to serve >as an anchor for my night bag. Couldn't do without the handle. > > >I shall solve the comfort problem, either with a new base cushion >or with a home-made sling. Medicare reimburses me for cushions. > > >Alton > > >This is a confirmation that the message has been displayed to the >user. Note: >This is NOT a guarantee that the message has been read or understood. >